Global Healthy Living Foundation's CreakyJoints Arthritis Patient Community Takes Top Social Media Spot at European Rheumatology Conference
More than 62,000 people recognized CreakyJoints' Social Media Posts during EULAR in Barcelona
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EULAR, the European Alliance of Associations For Rheumatology, is Europe's largest arthritis medical conference, served as the platform for CreakyJoints' social media posts which received more than 62,000 views on Instagram, Facebook, TikTok, LinkedIn, YouTube, and others in less than a week.
'The total continues to grow,' said Ben Blanc, GHLF's Director of Digital Production and Engagement. 'We expect it to double within the next few weeks as more patients around the world tune in.'
Significant Reach and Engagement
The posts include 12 video interviews with leading rheumatologists, clinical researchers, patient advocates and health innovators covering cutting-edge topics shaping the future of rheumatic and musculoskeletal disease care, including shared decision-making, personalized medicine, PMR (polymyalgia rheumatica), CAR T cell therapies, digital tools, and health equity.
In addition to the interviews, GHLF presented two posters in the main hall:
OA Compass: An Online Decision-Making Tool Empowering Patients with Knee Osteoarthritis through Stories, Treatment Guidance, and Personalized Support.
Implementing a Digital Platform for Real-Time Collection and Integration of Patient-Reported Insights in Rheumatic Disease Management.
To access all of the content from EULAR 2025, visit EULAR 2025 Insights: Voices from the Global Rheumatology Community on the CreakyJoints YouTube channel.
GHLF's global social media presence includes a 17-show podcast network in addition to social media posts which reach approximately 4 million people each month.
'Being at EULAR reminds us why we do this work: when experts, patients, and advocates come together in the same room — or on the same screen — we learn more, push ideas further, and get closer to real solutions,' said Seth Ginsberg, Co-Founder and President of GHLF. 'This year's conversations showed how much progress we're making, and how listening to patient voices at every step is driving the next generation of care.'
About GHLF
The Global Healthy Living Foundation is a U.S. based, 501(c)(3) nonprofit, international organization whose mission is to improve the quality of life for people with chronic illnesses by advocating for improved access to health care through education, patient-centered clinical research, support, advocacy, and economic and policy research. GHLF is also a staunch advocate for vaccines. The Global Healthy Living Foundation is the parent organization of CreakyJoints®, the international, digital community for millions of people living with arthritis and their supporters worldwide who seek education, support, activism, and patient-centered research in English, Spanish, and French. In addition to arthritis and autoimmune disorders, GHLF supports dermatology, gastroenterology, neurology, cardiology, oncology, infectious disease, rare disease, and pulmonary patients through a host of different programs and activities which draw more than 700,000 patients a month to GHLF websites and create more than 10 million impressions a month on seven social media platforms. In 2024, GHLF had more than 1 million views and listens with its patient-centered audio-visual content, found on YouTube and podcast platforms. GHLF never asks the public for donations, receiving funding instead through governments, non-governmental organizations, foundations, industry, family foundations, and GHLF Co-Founder Louis Tharp. Visit www.ghlf.org for more information.
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Forward-looking statements can be identified by words such as: "anticipate," "intend," "plan," "goal," "seek," "believe," "project," "estimate," "expect," "strategy," "future," "likely," "may," "should," "will" and similar references to future periods. These statements are subject to numerous risks and uncertainties that could cause actual results to differ materially from what we expect. 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