NJ choir singers outperform their Parkinson's disease
Meet Parkinsings: a choir comprised of people battling Parkinson's disease. Formed in 2019, they are a troupe of 20 patients at Hackensack Meridian Health's JFK Johnson Rehab Institute in Edison. They are among 1 million Americans fighting the neurodegenerative disease.
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But as they lift their voices, they lift the burden of the disease together. Daniel Grynberg is one of its founding members.
'When I was approached some five to seven years ago, I said, 'absolutely not, I'm not a singer,'' said Grynberg, of Old Bridge, 'but now I look forward to practice, I look forward to performing.'
'I think music heals, music is really important for the soul,' said speech pathologist and choir director Alison Chananie.
More: Latest News from Around the Tri-State
Their music creates much more than harmonies – it creates camaraderie. But more than that, Chananie says singing is actually key therapy.
'What's not really spotlit in the media is the changes in the voice, the changes in the thinking, the changes in the swallowing,' said Chananie, 'and that's what we're doing here. We're working to improve all of those things through singing.'
The choir is being called up to the big leagues as it is set to perform the national anthem at Yankee Stadium before Friday night's game.
'Being a Yankee fan, standing on that field to sing the national anthem, it was incredible,' said Donna Mastropaolo, of South Brunswick, who was part of last year's choir that performed 'The Star-Spangled Banner' at the stadium. 'It was 33,000 or 35,000 people there. It gave me chills.'
Friday happens to be World Parkinson's Day, a perfect time to step up to the plate and let the world hear them beat Parkinson's.
'Don't give up,' said Mastropaolo. 'Do what you got to do … with a smile on your face. Mental attitude is 90% of the battle.'
Copyright 2025 Nexstar Media, Inc. All rights reserved. This material may not be published, broadcast, rewritten, or redistributed.
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The Hill
3 hours ago
- The Hill
How Trump's megabill will impact health care
The massive tax cut legislation passed by the House and Senate this week will dramatically upend health care in America. The legislation, now on its way to President Trump, was never framed as a health bill, but it will mark the biggest changes to U.S. health policy since the Affordable Care Act (ACA) was passed in 2010. The bill's provisions will impact patients, doctors, hospitals, and insurers, as Republicans partially paid for it by cutting more than $1 trillion from federal health programs. The bulk of the cuts are coming from Medicaid. As a result, changes are coming that will affect how people qualify for and enroll in the program that covers more than 70 million low-income and disabled Americans, as well as how they can maintain coverage. 'No matter how often repeated, the magnitude of these reductions — and the number of individuals who will lose health coverage — cannot be simply dismissed as waste, fraud, and abuse,' American Hospital Association president Rick Pollack said in a statement. 'The faces of Medicaid include our children, our disabled, our seniors, our veterans, our neighbors, and friends. The real-life consequences of these reductions will negatively impact access to care for all Americans.' Almost 12 million lower-income Americans would lose their health insurance by 2034, according to the Congressional Budget Office (CBO), blunting the significant coverage gains made under the ACA. The cuts were deep enough to give some Republicans in both chambers pause, but in the end, only two GOP House members and three senators voted against the bill. It passed the Senate 51-50, and the House 218-214. Here's how the bill could impact Americans: By design, the group that would be hit the hardest are people whose income is between 100 percent and 138 percent of the federal poverty level (roughly between $32,150 and $42,760 for a family of four) who gained insurance when their states expanded Medicaid. The most significant change will be a first-ever requirement for adults under age 65 — including low-income parents of children older than 14 — to prove they work, volunteer or go to school at least 80 hours a month. States will need to develop and launch systems to verify individuals' work status at least every six months, beginning in December 2026. Health experts and advocates warn that a blizzard of red tape and administrative hurdles will strip people of needed health care, even those who would normally be eligible. GOP lawmakers say they are fine with those consequences, even those who have said they oppose cutting Medicaid benefits, because the requirements will only target the 'able-bodied' people who should be working but choose not to. Groups such as the disabled, pregnant women and people who are in prison or rehabilitation centers would be exempt from the requirements. Those people, Republicans say, are the truly needy. But someone who qualifies would need to prove they are exempt, which would require submitting the correct forms and documentation — in the correct order — at the time they apply for Medicaid and after they are already enrolled. Outside of work requirements, the legislation requires states to do an extra eligibility check on Medicaid enrollees starting in 2027. Checking every six months opens the possibility of a person losing coverage mid-year. The bill will also require people with incomes above the poverty line to pay out-of-pocket copays for most Medicaid services, like lab tests or doctor visits. States will be allowed to charge up to 5 percent of a person's income per year, though some Democratic-led states may opt for a smaller amount. Primary care, mental health and substance abuse services are exempted, and prescription drugs would only have a nominal copay. The bill could also limit the number of clinics available to patients who need abortions, even in states where it's legal. It targets Planned Parenthood without explicitly mentioning the organization by banning federal Medicaid funds from going to clinics that offer abortions. Nearly 200 Planned Parenthood health centers in 24 states across the country are at risk of closure, the organization said. More than 90 percent of those closures would occur in states where abortion is legal. The legislation will make it more difficult for people to sign up for and afford health plans on ACA exchanges. It will limit eligibility for premium subsidies to people living in the U.S. who are not eligible for any other federal insurance program. It will also bar most immigrants and lawful permanent residents from receiving the subsidies. The bill will require real-time verification of eligibility before a person can receive those subsidies to help afford premiums. Currently, anyone who purchases a subsidized plan can begin using it almost immediately. The state or federal government has 90 days to determine eligibility. But under the new bill, people won't have access to cheaper premiums until they are deemed eligible. In addition, people who sign up for ACA coverage during some special enrollment periods will not be eligible for subsidies. The bill will also end automatic reenrollment ahead of the 2028 sign-up period, meaning enrollees will need to update their income, immigration status and other information each year. According to health research group KFF, 10 million people were automatically reenrolled in ACA plans in 2025. The GOP bill could pose a major problem for rural hospitals, and subsequently the patients who rely on them. Changes to state-levied provider taxes would reduce spending by nearly $191 billion over a decade, according to the CBO estimate. An analysis of an earlier version introduced in the Senate by the National Rural Health Association and Manatt Health found the legislation generates $58 billion in Medicaid cuts over the next ten years for rural hospitals. The bill that passed includes a five-year, $50 billion rural health relief fund, but provider groups say it's a band-aid compared to the overall cost of the cuts. Hospitals would see a spike in uncompensated care and overcrowding of emergency rooms. 'Millions of Americans will see their health care coverage vanish through burdensome Medicaid work requirements and other eligibility changes throughout the bill. Hospitals across the country have been destabilized, affecting their ability to serve patients and their communities. We are in a crisis,' said Bruce Siegel, president and CEO of America's Essential Hospitals, a group that represents hospitals serving primarily low-income patients. 'Widespread coverage losses plus weakened hospitals is a recipe for disaster, and patients will pay the price.'

8 hours ago
Hospitals brace for financial hits or even closure under Republicans' Medicaid cut
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States and rural health advocacy groups warn that cutting Medicaid — a program serving millions of low-income and disabled Americans — would hit already fragile rural hospitals hard and could force hundreds to close, stranding some people in remote areas without nearby emergency care. More than 300 hospitals could be at risk for closure under the Republican bill, according to an analysis by the Cecil G. Sheps Center at the University of North Carolina at Chapel Hill, which tracks rural hospital closures. Even as Congress haggled over the controversial bill, a health clinic in the southwest Nebraska town of Curtis announced Wednesday it will close in the coming months, in part blaming the anticipated Medicaid cuts. Bruce Shay, of Pomfret, Connecticut, fears he and his wife could be among those left in the lurch. At 70, they're both in good health, he said. But that likely means that if either needs to go to a hospital, 'it's going to be an emergency.' Day Kimball Hospital is nearby in Putnam, but it has faced recent financial challenges. Day Kimball's CEO R. Kyle Kramer acknowledged that a Senate bill passed Tuesday — estimated to cut federal Medicaid spending in rural areas by $155 billion over 10 years — would further hurt his rural hospital's bottom line. Roughly 30% of Day Kimball's current patients receive Medicaid benefits, a figure that's even higher for specific, critical services like obstetrics and behavioral health. 'An emergency means I'm 45 minutes to an hour away from the nearest hospital, and that's a problem," Shay said. And he and his wife wouldn't be the only ones having to make that trip. 'You've got, I'm sure, thousands of people who rely on Day Kimball Hospital. If it closed, thousands of people would have to go to another hospital,' he said. 'That's a huge load to suddenly impose on a hospital system that's probably already stretched thin.' Rural hospitals have long operated on the financial edge, especially in recent years as Medicaid payments have continuously fallen below the actual cost to provide health care. More than 20% of Americans live in rural areas, where Medicaid covers 1 in 4 adults, according to the nonprofit KFF, which studies health care issues. President Donald Trump's $4.5 trillion tax breaks and spending cuts bill, which passed Thursday, would worsen rural hospitals' struggles by cutting a key federal program that helps states fund Medicaid payments to health care providers. To help offset the lost tax revenue, the package includes $1.2 trillion in cuts to Medicaid and other social safety net programs — cuts they insist only root out fraud and waste in the system. But public outcry over Medicaid cuts led Republicans to include a provision that will provide $10 billion annually to buttress rural hospitals over the next five years, or $50 billion in total. Many rural hospital advocates are wary that it won't be enough to cover the shortfall. Carrie Cochran-McClain, chief policy officer with the National Rural Health Association, said rural hospitals already struggle to break even, citing a recent American Hospital Association report that found that hospitals in 2023 got nearly $28 billion less from Medicaid than the actual cost of treating Medicaid patients. 'We see rural hospitals throughout the country really operating on either negative or very small operating margins," Cochran-McClain said. "Meaning that any amount of cut to a payer — especially a payer like Medicaid that makes up a significant portion of rural provider funding — is going to be consequential to the rural hospitals' ability to provide certain services or maybe even keep their doors open at the end of the day.' A KFF report shows 36 states losing $1 billion or more over 10 years in Medicaid funding for rural areas under the Republican bill, even with the $50 billion rural fund. No state stands to lose more than Kentucky. The report estimates the Bluegrass State would lose a whopping $12.3 billion — nearly $5 billion more than the next state on the list. That's because the bill ends Kentucky's unique Medicaid reimbursement system and reduces it to Medicare reimbursement levels. Kentucky currently has one of the lowest Medicare reimbursement rates in the country. It also has one of the highest poverty rates, leading to a third of its population being covered by Medicaid. Kentucky Gov. Andy Beshear, a two-term Democrat widely seen as a potential candidate for president in 2028, said the bill would close 35 hospitals in his state and pull health care coverage for 200,000 residents. 'Half of Kentucky's kids are covered under Medicaid. They lose their coverage and you are scrambling over that next prescription,' Beshear said during an appearance on MSNBC. 'This is going to impact the life of every single American negatively. It is going to hammer our economy."


San Francisco Chronicle
11 hours ago
- San Francisco Chronicle
EPA puts on leave 139 employees who spoke out against policies under Trump
The Environmental Protection Agency on Thursday put on administrative leave 139 employees who signed a 'declaration of dissent' with its policies, accusing them of 'unlawfully undermining' the Trump administration's agenda. In a letter made public Monday, the employees wrote that the agency is no longer living up to its mission to protect human health and the environment. The letter represented rare public criticism from agency employees who knew they could face blowback for speaking out against a weakening of funding and federal support for climate, environmental and health science. In a statement Thursday, the EPA said it has a 'zero-tolerance policy for career bureaucrats unlawfully undermining, sabotaging and undercutting' the Trump administration's agenda. Employees were notified that they had been placed in a 'temporary, non-duty, paid status' for the next two weeks, pending an 'administrative investigation,' according to a copy of the email obtained by The Associated Press. 'It is important that you understand that this is not a disciplinary action,' the email read. More than 170 EPA employees put their names to the document, with about 100 more signing anonymously out of fear of retaliation, according to Jeremy Berg, a former editor-in-chief of Science magazine who is not an EPA employee but was among non-EPA scientists or academics to also sign. Scientists at the National Institutes of Health made a similar move in June, when nearly 100 employees signed a declaration that assailed Trump administration 'policies that undermine the NIH mission, waste public resources, and harm the health of Americans and people across the globe.' An additional 250 of their colleagues endorsed the declaration without using their names. But no one at NIH has been placed on administrative leave for signing the declaration and there has been no known retribution against them, Jenna Norton, a lead organizer of the statement, told AP on Thursday. Norton oversees health disparity research at the agency's National Institute of Diabetes and Digestive and Kidney Diseases. NIH Director Jay Bhattacharya, in his confirmation hearings, had pledged openness to views that might conflict with his own, saying dissent is the 'essence of science.' Under Administrator Lee Zeldin, EPA has cut funding for environmental improvements in minority communities, vowed to roll back federal regulations that lower air pollution in national parks and tribal reservations, wants to undo a ban on a type of asbestos and proposed repealing rules that limit planet-warming greenhouse gas emissions from power plants fueled by coal and natural gas. Zeldin began reorganizing the EPA's research and development office as part of his push to slash its budget and gut its study of climate change and environmental justice. And he's seeking to roll back pollution rules that an AP examination found were estimated to save 30,000 lives and $275 billion every year. The EPA responded to the employees' letter earlier this week by saying policy decisions 'are a result of a process where Administrator Zeldin is briefed on the latest research and science by EPA's career professionals, and the vast majority who are consummate professionals who take pride in the work this agency does day in and day out.' ___