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Caregiving for spl children often wears out mothers: Study

Caregiving for spl children often wears out mothers: Study

Time of India10-07-2025
Rourkela: Continuous caregiving demands on parents looking after children with development disabilities takes a significant physical and emotional toll on the caregiver.
According to a study by researchers of National Institute of Technology, Rourkela (NITR), continuous caregiving often results in severe physical symptoms, particularly among mothers, who shoulder majority of caregiving responsibilities.
Common ailments include headaches, ulcers, chronic pain and fatigue.
The research, published in the Asia Pacific Journal of Social Work and Development in June, surveyed 400 parents of children with conditions, including autism, ADHD, cerebral palsy and multiple disabilities. The study was led by Dr. Ramakrishna Biswal, associate professor in the department of humanities & social sciences, along with senior research scholar Abhijit Pathak.
"Disability rights are acknowledged, yet caregivers' contributions often remain in the shadows. Caring for a child with development disabilities should be a shared responsibility of family, neighbours, and society," said Dr. Biswal.
The study, which employed culturally adapted tools and advanced statistical techniques, found that these challenges are particularly acute in India, where social stigma and limited access to specialised care compound the difficulties faced by caregivers.
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by Taboola
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Based on their findings, the researchers recommend integration of caregiver health screening into paediatric disability services and establishment of community-based "one-stop" support centres.
They also suggested implementation of comprehensive stress management programmes and enhanced access to medical, mental health, and financial support services. The research team utilised the biopsychosocial model to analyse how physical, psychological, and social factors interact to affect caregivers' overall well-being.
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