
‘We've had more than enough': Bereaved NI families demand action on mental health services
Ms Leahy led a 10-year campaign for a public inquiry into more than 2,000 mental health-related deaths in Essex between 2000 and 2023.
Professor Phil Scraton also backed the families during the meeting hosted by New Script for Mental Health, a grassroots mental health rights movement.
The Queen's University professor led the Hillsborough Independent Panel's research, and played a key role in uncovering the truth behind the 1989 disaster that killed 97 football fans. His book, Hillsborough: The Truth, is widely seen as the definitive account of the disaster.
Ms Leahy, whose son Matthew (20) died in 2012 while a patient at a mental health facility, described more than a decade of 'fighting for the truth'.
She said she has been in contact with the Northern Ireland families for several months after coming across their campaign on social media.
She said: 'I hope my determination serves as a powerful reminder that truth will find its way, no matter what the obstacles.'
Ms Gould, whose 21-year-old son Conall died in 2017 following a struggle with mental health, said the current situation was a 'scandal'.
She described the standards of care within mental health as 'atrocious', and said she feels that those who speak out 'have our voices silenced by a system unwilling to acknowledge the breadth of this crisis'.
As a gesture of solidarity, Ms Leahy and the Essex campaigners have included a photo of Conall in a montage displayed at the inquiry.
Ms Gould, a midwife from Ballymena, said that over two years after a High Court order, the RQIA has failed to meet its obligation to regulate community mental health services.
'Despite promises and briefings, the protocol it claimed to be developing remains unpublished and unproven,' she added.
The establishment of a procedure for regulating community mental health services was ordered as part of a landmark judicial review ruling in May 2023, following a case taken by the family of Belfast man Gareth Waterworth.
It also required the establishing of a protocol for further investigations.
An RQIA spokesperson said the policy is at 'development stage and being utilised to set out the approach to undertaking an inquiry into any case where it appears that there may be deficiency in care or treatment'.
They added: 'The policy is currently subject to equality screening and RQIA are working closely with the equality unit in Business Services Organisation to support the equality screening of this key policy. On completion of equality screening and final internal quality assurance checks RQIA intend to publish the policy.'
Ms Bell, from Coalisland, lost her uncle Stephen in July 2016, less than two months after he suffered an adverse reaction to an antidepressant.
'We just had absolute blind faith in doctors. So when Stephen was telling us it was the medication, we were saying 'how could medication do that', we didn't dare to delve into it,' Ms Bell said.
She has since campaigned for greater transparency around medication risks.
Sara Boyce, New Script for Mental Health campaign organiser, said: 'Families involved in New Script are united in their desire to ensure that the harm and loss they experienced because of health service failures should never happen to other families.'
She said that in Northern Ireland we 'need to start doing things differently'.
'Over the 15 to 17 years of the campaign, one of the biggest lessons for families has been that trying to fix bits of the mental health service isn't working,' she added.
'As a starting point, we must start listening to families, because families know, because they have lived it.'
News Catch Up - Tuesday 15th July
Ms Boyce said Health Minister Mike Nesbitt needs to 'get a grip', adding that there are failures across the board.
'Families have had more than enough, because lessons are not being learnt,' she said. Ms Boyce also called for greater transparency, saying data on the number of people accessing mental health services and those who have died while under their care must be made public.
Ms Gould pointed to Essex as evidence that the scale of the crisis may be greater than it is believed, noting that more than 2,000 cases were identified there.

Try Our AI Features
Explore what Daily8 AI can do for you:
Comments
No comments yet...
Related Articles


BBC News
5 days ago
- BBC News
Covid Inquiry: Care homes had 'fragile' workforce at start of pandemic
Northern Ireland's care home sector had a fragile workforce compounded by tight budgets as it entered the pandemic, the UK Covid-19 Inquiry has were evident pressures in social care at the start of 2020, with an estimated 1,400 care home workers needed each year to maintain staffing levels, Professor Sean Holland was chief social work officer with the Department of Health at the time of the inquiry is currently examining adult and residential care as part of its scrutiny of the response to the pandemic. Prof Holland said social care had been characterised as low-wage, with workers often on zero-hours contracts and a high turnover of had been made to make the sector more appealing as a long-term career option, he about the state of the sector as it entered the pandemic, he said: "There would have been a fragility in the workforce and there would have been pressure on budgets, because the relationship is that the budget buys the service, which drives the workforce." Struggles with isolation policies The inquiry heard that many care homes in Northern Ireland had struggled to ensure they had proper isolation policies in place for elderly patients who were being discharged from hospitals into their care.A report from the Regulation and Quality Improvement Authority (RQIA) had suggested that only about 80 care homes out of the 480 across Northern Ireland had isolation Holland said this had been "a desktop exercise" review and had not been done in person, and he estimated the number of homes with isolation availability had been higher. Prof Holland said mechanisms for isolating patients should be thought about in planning for future pandemics."That then takes you to looking at the actual configuration of care homes," he said."Building of care homes over the years has always been subject to standards, but those may benefit from being revisited to consider how the infrastructure would support a positive response to a future pandemic."The inquiry referenced one study which suggested patients discharged from hospitals to care homes were not substantial causes of Covid outbreaks. NI's care home deaths Prof Holland said Northern Ireland's lower number of care home deaths during the pandemic should be used as a learning tool to deal with future global outbreaks."When I say this, this is not in any way to minimise the experience of people who died in care homes in Northern Ireland, and it is not to suggest anything positive about the system... we know you were least likely to die in a care home in Northern Ireland compared to England, Scotland and Wales," he said."Compared to England, by quite a margin. Many European countries did better than Northern Ireland."He added: "One thing for future learning is that we have to understand that better, because currently we don't really know why."Prof Holland said at one stage during the pandemic, there was a suggestion of creating "a ring of steel" around care homes, with staff remaining there and sleeping there had been no take-up when an expression of interest for the so-called Safe At Home model had been had also been concerns raised by trade unions over the supply of PPE, staff feeling compelled to stay in the care homes and adequate payment for workers, the inquiry Holland told the inquiry about difficulties in obtaining enough supplies of personal protection equipment (PPE).He said he had personally told all the Northern Ireland health trusts that there should be "no boundaries" in the distribution of PPE between the public and independent sectors."I remember someone saying: 'Are you saying we have to share our PPE?'."And I said: 'It is not your PPE, this is a resource for Northern Ireland'."


ITV News
16-07-2025
- ITV News
Public Health agency warns measles vaccine uptake is 'not where it needs to be' in Northern Ireland
The Public Health Agency has warned that the uptake of the vaccination against measles in Northern is well below the level required to protect children from the disease. With an ongoing outbreak in England and cases in Europe at the highest level in three decades, there are concerns that cases here could increase. One virologist has urged people to get their children vaccinated. The death of a child in Liverpool in recent days after contracting measles is a reminder of how deadly this disease can be. Cases have been on the rise across the UK and Europe. In Northern Ireland there have been four confirmed cases and 27 suspected since January. While small, those numbers have sparked concern with officials. Dr Conor Bamford, a virologist from Queen's University said: "Most people consider measles to be a mild disease but we actually know that is really not the case. "It is one of the biggest child killers that we have out there globally. 100,000 kids die of measles each year. The disease - spread by coughing, sneezing and breathing - is also highly-contagious. And one of the reasons for the rise in cases in NI, is a drop in vaccination rates. "One person who is infected with measles could probably infect 10-20 other individuals," Dr Bamford added. "The one great thing that we have got against measles - and have had for the last 60 years - is a really safe and effective vaccine. "Two doses of this before the age of five is going to offer about 95 percent protection. It stops you from getting infected and it stops you from spreading the virus". Dr Bamford added: "After the pandemic we are seeing a large increase in measles cases. Most of this is driven by people not being vaccinated. "Get the vaccine, get your kids vaccinated. We know these vaccines are very safe and very effective. Much safer than getting the disease that is on our doorstep." The Public Health Agency has urged people to get vaccinated. Rachel Spiers told UTV 87% of all five-year-olds were vaccinated. She said that figured "needed" to be 95% as recommended by the World Health Organisation to prevent the spread of measles. "It is never to late to get vaccinated," she said, "it is especially important for young people, not just if you are going on holiday but also if you are going to university or college. Two doses is really needed to give you the best protection." Measles are controllable and MMR vaccine protects against measles as well as two other viruses called mumps and rubella. What you need to know about measles


South Wales Guardian
16-07-2025
- South Wales Guardian
Bereaved mothers call for urgent action to fix mental health services
Kirsty Scott and Mary Gould were among the group of campaigners who have been backed by Melanie Leahy, who led a 13-year campaign for a public inquiry into more than 2,000 mental health-related deaths in Essex between 2000 and 2023. Professor Phil Scraton also backed the families during the meeting hosted by New Script for Mental Health, a grassroots mental health rights movement. Ms Leahy's son Matthew, 20, died in 2012 while a patient at a mental health facility, and described more than a decade of 'fighting for the truth'. She said she has been in contact with the families from Northern Ireland for several months thanks to social media highlighting their campaign. 'What I need to say is whether you're a mum or a dad, you've got kids or you've got elderly parents, at some stage you're going to come across the mental health system, we're here and we've been failed by it,' she told the PA news agency. 'We're not standing here just to get some notoriety, we're here to try and change the system that is failing whether it is kids with special education needs (SEN), autism, ADHD. 'If whatever I am doing in the UK can make some change or a ripple over here then I am going to carry on. 'The system failed me in 2012, we're three bereaved mothers who are united, and there are 30,000 more behind us. 'We will somehow carry on and bring about the change that is needed, but it is hard and we need governments to stand up and the whole country needs to unite to bring about the changes. 'These mums ain't going anywhere, we've got so many angels behind us now that are pushing for this change.' Ms Gould, a midwife from Ballymena welcomed the support, and the inclusion of a photo of her son Conall in a montage displayed at the Lampard Inquiry. The 21-year-old died in 2017 during a struggle with mental health. She described the standards of care within mental health as 'atrocious', and said she feels that those who speak out 'have our voices silenced by a system unwilling to acknowledge the breadth of this crisis'. Ms Scott said they are determined to ensure lasting change. Her son William was diagnosed at the age of 19 with autism after what she termed a '15-year battle' including misdiagnosis. He died of an accidental drugs overdose. 'There is not one lesson being learned, all the promises, all the inquiries you go through, people saying sorry, not one word has meant anything because nothing has changed, if anything the mental health system in this country has got worse,' she said. 'I have battled for the last 12 years since my son died, and I can honestly say it has got worse.' She added: 'My story was a perfect storm, but the problem is my perfect storm is also a lot of other people's story because there are too many perfect storms waiting to happen.' Campaign organiser Sara Boyce said Northern Ireland families look forward to learning from the hard-won experience of the Essex campaigners and believe those lessons must be urgently applied here. 'Families involved in New Script are united in their desire to ensure that the harm and loss they experienced because of health service failures should never happen to other families,' she said. 'Yet the sad reality is that lessons are not being learnt. 'First hand experiences of families, coupled with multiple investigations, inquiries, and reviews, all point to the abject failure of the Health and Social Care Service (HSC) leadership to learn from their mistakes and implement changes recommended.'