logo
Edinburgh woman fears 'life-changing' charity will disappear from funding cuts

Edinburgh woman fears 'life-changing' charity will disappear from funding cuts

Edinburgh Live29-05-2025
Our community members are treated to special offers, promotions and adverts from us and our partners. You can check out at any time. More info
A woman who dropped out of university amid a battle with mental illness says an Edinburgh charity at risk of critical funding cuts 'changed her life'.
Lauren Stonebanks, 45, atteded four and a half years of medical school at the University of Edinburgh before dropping in 2002 out when her mental health "deteriorated".
The Meadowbank resident went through a slew of diagnoses in following years - including depression, anxiety, bipolar disorder, and borderline personality disorder - before an Edinburgh charity turned her life around.
Lauren discovered CAPS in 2011 and has been an active member of the independent advocacy organisation for 14 years.
However, the charity is looking down the barrel of extensive funding cuts from the Edinburgh Integrated Joint Board (EIJB), which announced its intention to make £2.2 million in cuts to social care charities.
CAPS offers individual and collective advocacy, providing safe spaces to explore shared issues.
Lauren soon found a community of accepting people with similar experiences. According to advocates at CAPS, they provide the only pathway for people diagnosed with personality disorders in Edinburgh and the Lothians. They worry that without their services, people with personality disorders will not have access the life-saving community that CAPS facilitates.
(Image: Edinburgh Live)
After receiving a diagnosis for borderline personality disorder, Lauren said she was initially devastated. She later was re-diagnosed as having ADHD and autism, but says CAPS taught her to battle the stigma associated with her original diagnosis.
She said: "I spent two weeks feeling absolutely dreadful. There's not much good said about people with borderline personality disorder. It's all bad. That's what I was being taught in the late 90s and early noughties.
"[CAPS] changed my life because it showed positives. It just changed my entire perspective on it. I wasn't toxic, I wasn't a monster. I wasn't manipulative and evil. I was somebody in a lot of pain and trauma, and just as deserving of compassion."
Through CAPS' commitment to collective advocacy, Lauren began using her lived experience with mental illness to educate social care professionals on how to work positively with people with personality disorders. She began delivering training for mental health nursing students at Napier University as well as occupational therapy students, art therapy students, clinical psychologists, and social workers. She also organises exhibitions and advocates for LGBTQ and minority ethnic people.
Lauren added: "I can make a difference to the attitudes of all those people." Prior to CAPS, she reported being too shy to speak to people. She continued: "It made such a difference."
CAPS services are facing the axe this year with potential funding cuts from the EIJB and millions of pounds of funding cuts to social care charities on the docket. When Lauren found out about the proposed cuts, she said: "I cried, and then I got angry.
"[At CAPS] I've gained a family. My [biological] family was kind of emotionally abusive and not accepting of my sexuality or gender identity. They also didn't [understand] the mental health stuff and kind of blame blamed me."
She spoke on the change in her confidence CAPS has afforded her in her 14 years of involvement: "I used to run away if I had to give presentations, I would flee and speak in front of people. It gave me the confidence to actually challenge the diagnosis."
Join Edinburgh Live's Whatsapp Community here and get the latest news sent straight to your messages.
Katharina Kasper, Chair of the Edinburgh Integration Joint Board said: "The IJB funds a range of non-statutory services with third sector providers, through block contracts and service level agreements. We are currently carrying out a review of this spend, with the aim of reducing annual spend by £2.2 million. This will enable us to focus scarce resources on the provision of core, statutory services which help keep the people who most need our help safe and well cared for, while allowing our partners to meet their legal duties.
"We have decided to take more time to consider this proposal until the IJB meets on August 26. This is to make sure we have taken the time to fully understand the services being provided, to assess the data and evidence on the impacts of any changes, and to consider the concerns raised by providers, service users and others.
"We recognise the concern this may cause, however we are now in a position where unfortunately these difficult decisions have to be made in order to protect the essential support we provide for some of Edinburgh's most vulnerable people."
Orange background

Try Our AI Features

Explore what Daily8 AI can do for you:

Comments

No comments yet...

Related Articles

'It's changed my life': Advanced treatments offering hope for colitis patients
'It's changed my life': Advanced treatments offering hope for colitis patients

STV News

time11 hours ago

  • STV News

'It's changed my life': Advanced treatments offering hope for colitis patients

A mum with ulcerative colitis says finding an effective medication has transformed her life as a major study shows advanced therapies are cutting the need for surgery. Retired midwife Emma Louise Jamie said the bowel condition had 'taken over' her life since she began experiencing issues a decade ago. 'I started to have cramps, urgency, needing to go to the toilet very frequently – and it would come from nowhere,' she said. 'I would be fine, then I'd go out for a meal and immediately need to go to the toilet afterwards. If I ate anything, it would come straight out. 'I knew all the toilets around Princes Street, or if we were going on a journey, I needed to know where toilet stops were.' Emma, who was eventually diagnosed with ulcerative colitis after years of symptoms, said the diagnosis initially came as a relief. 'I honestly thought I had cancer, so I thought, 'I can deal with UC,'' she said. 'I didn't know at that point how much it would affect my life.' STV News Ulcerative colitis is a form of inflammatory bowel disease (IBD) that affects around one in every 100 people in Scotland and around 300,000 across the UK. The condition causes chronic inflammation of the colon and rectum, leading to symptoms such as abdominal pain, diarrhoea, fatigue, and weight loss. In severe cases, it can require surgery to remove the large intestine – a life-changing operation known as a colectomy that often sees patients fitted with a stoma. For years, Emma tried steroids, enemas, and other medications that only offered temporary relief before they stopped taking effect. At her lowest point in 2019, she was going to the toilet 70 times a week. 'I was feeling absolutely exhausted, living life just to work and be with my family. But they were often caring for me rather than me caring for them. But in recent years, Emma was prescribed an advanced therapy Infliximab – an IV infusion that targets the specific immune system processes responsible for inflammation. She receives an injection every six weeks, alongside Mercaptopurine tablets and the anti-inflammatory drug Pentasa. Since then, she has seen what she describes as a 'tenfold' improvement in her symptoms. 'It's amazing,' she said. 'We have a caravan and often go away. I went skiing with my son for a week – I skied every day. My brother-in-law said, 'You wouldn't have been able to do this a few years ago.' It's changed my life completely.' Her story mirrors findings from a new study by the University of Edinburgh, which shows that better access to advanced therapies is significantly reducing the number of patients needing surgery for ulcerative colitis. The study collated data over 20 years from people across the Lothian region as and experts say the findings could encourage other health boards to make use of available advanced therapies. University of Edinburgh Over that time, the number of patients prescribed advanced therapies rose from zero to 115, while colectomy surgeries dropped from 42 in 2004 to just seven last year. Professor Charlie Lees led the study at the University of Edinburgh's Institute of Genetics and Cancer. 'This is the first study to document what we've been seeing in clinic – that these new treatments are having a big impact on major outcomes,' he said. He explains that as soon as targeted biologic and small-molecule drugs were being prescribed at scale, the need for colectomy plummeted by more than 80% since 2004. While surgery remains a necessary option for some patients, Professor Lees said it had been overused in the past due to a lack of alternatives. 'Surgery is a good option for the right patient at the right time, but in the past we went there far too frequently because we hadn't had other good options.' Now, with a broader range of highly effective drugs that target different parts of the immune system, doctors can personalise treatment in a way that wasn't possible a decade ago. 'The UC story over the last ten years has gone from having very few effective drugs, to a situation where we have seven – injectables through the vein, under the skin and new tablet medications.' He said while there's no one-size-fits-all solution yet, the results show real progress. 'Patients sequence from one to the other because what we don't have yet is a crystal ball to find out what drug to give to which patient. 'Sometimes it doesn't work – try a drug and see how you get on, and move on from there.' STV News Among the new options is filgotinib, an oral medication that has become the most-used first-line therapy since 2021. Unlike some advanced therapies that require infusions or injections, oral drugs offer more convenience at lower costs – an important consideration for NHS services under pressure. More than 300,000 people in the UK are living with ulcerative colitis. In Lothian, the number of patients doubled over the study period, rising from two in every 1,000 people in 2004 to four in 1,000 by 2023. Yet, despite this increase, surgical rates have fallen sharply – a trend researchers say began in 2013 when advanced therapy prescribing significantly ramped up. While there is a clear correlation between the uptake of advanced therapies and decreased colectomy rates over time, the findings cannot prove that the decrease in surgery is caused by access to new treatments, researchers say. The study also focused on the Lothian region in Scotland, which has ready access to advanced therapies. Leaders say larger studies are needed to better understand the full picture across areas with fewer resources. But Professor Lees says the study offers hope for patients diagnosed with bowel conditions that there are options out there. 'UC disrupts people's lives,' said Professor Lees. 'Unpredictable cramp, diarrhoea, going to the toilet eight or more times a day, fatigue – it often leads to psychological problems like anxiety and depression. 'What this enables us to do is say to our patients, we're doing better with what we have… we can say to other doctors around the country, get on and treat patients with the drugs we have available as they work. 'We can use this information to go to local management systems and regulatory bodies and say it's really important we have access to therapies that work for our patients.' Dr Tracey Gillies, medical director of NHS Lothian, welcomed the findings. 'We're proud of our IBD service and the standards of care it provides,' she said. 'Over the years, we've invested in staff and made services more accessible, ensuring patients can benefit from advanced therapies and clinical trials. 'Our leading role in academic studies like this helps us to continually evolve and feature in a number of reports as an exemplar.' Get all the latest news from around the country Follow STV News Scan the QR code on your mobile device for all the latest news from around the country

How to process a late diagnosis of ADHD in adulthood
How to process a late diagnosis of ADHD in adulthood

Evening Standard

time13 hours ago

  • Evening Standard

How to process a late diagnosis of ADHD in adulthood

Many clients come to ADHD coaching asking for practical help, like tools to stay organised or tips to be more productive. These things matter, but they're often driven by a deeper desire: to feel more 'normal,' to finally function like everyone else. Most have spent years internalising the message that they just need to try harder. Coaching offers a different path. It helps shift that deficit mindset. The goal isn't to become more neurotypical. It's to understand your brain, recognise your strengths, build self-trust, and create systems that actually work for you. The strategies do come, but they come from a place of clarity, not shame.

RSV jab in pregnancy can ‘significantly' cut baby's infection risk, study finds
RSV jab in pregnancy can ‘significantly' cut baby's infection risk, study finds

South Wales Guardian

time2 days ago

  • South Wales Guardian

RSV jab in pregnancy can ‘significantly' cut baby's infection risk, study finds

A team of researchers co-led by the University of Edinburgh said giving pregnant women the respiratory syncytial virus (RSV) vaccine led to a 72% reduction in babies being hospitalised with the virus. RSV can lead to a severe lung infection called bronchiolitis, which is dangerous in babies and can result in them being admitted to intensive care. It is the main infectious cause of hospitalisation for babies in the UK and globally. The study saw researchers examine 537 babies across England and Scotland who were admitted to hospital with severe respiratory disease in the winter of 2024-25. A total of 391 of the babies tested positive for RSV. The team found mothers of babies who did not have RSV were twice as likely to have received the vaccine before giving birth than the mothers of RSV-positive babies (41% as opposed to 19%). They also found receiving the vaccine more than two weeks before giving birth increased the level of protection, with a 72% reduction in hospital admissions in this group compared with 58% for babies whose mothers were vaccinated at any time prior to delivery. The RSV vaccine was introduced across the UK in the late summer of 2024. The scientists said it works by causing the mother to produce antibodies – proteins which help prevent the virus causing severe infection – which are then passed to the fetus, providing protection from severe RSV for the first six months of their child's life. They recommend women get vaccinated as soon as possible from 28 weeks of pregnancy to provide the best protection, as this allows more time for the mother to generate and pass on protective antibodies to the baby, but the jab can be given up to birth. They also said previous research shows only half of expectant mothers in England and Scotland are currently receiving the RSV vaccine, despite its high success at preventing serious illness. Study lead Dr Thomas Williams, from the University of Edinburgh's Institute for Regeneration and Repair, said: 'With the availability of an effective RSV vaccine shown to significantly reduce the risk of hospitalisation in young infants in the UK, there is an excellent opportunity for pregnant women to get vaccinated and protect themselves and their infants from RSV bronchiolitis this coming winter.' Professor Damian Roland, from the Leicester Hospitals and University and a consultant in paediatric emergency medicine, said: 'Our work highlights the value of vaccination and in keeping with the treatment to prevention principle of the NHS 10 Year plan, we would ask all health care systems to consider how they will optimise the rollout of RSV vaccination for mothers.' The research team was led by the universities of Edinburgh and Leicester, and was funded by the Innovative Medicines Initiative, Respiratory Syncytial Virus Consortium in Europe, the Wellcome Trust, and National Institute for Health and Care Research at Imperial College London. The study is published in the journal The Lancet Child and Adolescent Health.

DOWNLOAD THE APP

Get Started Now: Download the App

Ready to dive into a world of global content with local flavor? Download Daily8 app today from your preferred app store and start exploring.
app-storeplay-store