Voices of MND community take part in concert
Voices of Hope choir were brought together by Mel Upton, who volunteers with the North Wiltshire Group of the Motor Neurone Disease Association (MNDA) - a charity that supports those living with the disease and their families.
Many had never sung before and Ms Upton coached them in 10 rehearsals ahead of their concert at the Ellendune Community Centre in Wroughton, at 18:30 BST.
"I felt it was really important to raise awareness for MND and my skills are singing so I thought I could bring a big choir together," said Ms Upton.
Mark Quantick, who is involved in the choir, said: "I'm looking forward to the show, but it's going to be very emotional."
A former plumber, he began noticing symptoms when he struggled to complete everyday tasks at work.
"I realised I couldn't lift radiators that I used to throw over my shoulder," he said.
Mr Quantick was later diagnosed with MND - a rare neurological condition that affects the brain and spinal cord, leading to progressive muscle weakness.
More than 5,000 people in the UK live with the disease and life expectancy is typically just a few years after diagnosis.
Ms Upton said she and her daughter wrote a special song for the event, The Love Inside, inspired by words shared by people living with the disease.
"The words are beautiful and really well meaning," she said.
The choir includes hospice workers, people living with MND, those who have lost loved ones and friends of the MND Association.
Mr Quantick's MND has affected his breathing, swallowing, and mobility, but he says he remains optimistic.
"I'm fortunate my MND has progressed slowly. The biggest challenge is getting up on my feet.
"I've coped quite well - I'm a positive person. But it's difficult when you know what it's leading to."
Mr Quantick's wife, Wendy, will be singing in the choir and has supported him throughout his diagnosis.
"Day-to-day tasks can be a struggle, but we manage. He likes to stay independent - he doesn't want me doing everything for him," she said.
Mrs Qunatick added the performance will be both therapeutic and emotional.
"I think it's going to be tough," she said.
"There are songs he's always sung along to without thinking - but now the words hit differently. They're very poignant."
More news stories for Wiltshire
Listen to the latest news for Wiltshire
Follow BBC Wiltshire on Facebook, X and Instagram. Send your story ideas to us on email or via WhatsApp on 0800 313 4630.
'Life-changing' research to help choking in MND
Husband's death from MND inspires widow to publish book
Swindon fan fundraises to return Darby shirt
MND Association
Hashtags

Try Our AI Features
Explore what Daily8 AI can do for you:
Comments
No comments yet...
Related Articles
Yahoo
21-07-2025
- Yahoo
Dispute between Sandie Peggie and transgender doctor posed ‘no risk to patients'
A dispute between a gender critical nurse and a transgender doctor was treated as a claim and counter-claim disagreement by a manager tasked with a suspension review who found there was no risk to patients, a tribunal heard. Nurse Sandie Peggie was suspended after she complained about having to share a changing room with trans medic Dr Beth Upton at the Victoria Hospital in Kirkcaldy, Fife, on Christmas Eve 2023. She was placed on special leave and then suspended after Dr Upton made an allegation of bullying and harassment and cited concerns about 'patient care'. Ms Peggie has lodged a claim against NHS Fife and Dr Upton, citing the Equality Act 2010, including sexual harassment; harassment related to a protected belief; indirect discrimination; and victimisation. The tribunal resumed in Dundee on July 16 after an initial set of hearings in February. On Monday at the tribunal, service manager Lottie Myles said she perceived the dispute which led to Ms Peggie being suspended as a 'she said/she said' situation, and there was 'nobody who could provide evidence'. Ms Myles said she was tasked with conducting a suspension review on February 27 2024, and was told by the nurse's manager, Esther Davidson, that Ms Peggie was 'anti-trans', and 'had transphobic views because of an incident that occurred in the changing room'. She said that Ms Davidson alleged Ms Peggie had 'some gender critical beliefs, and some other beliefs which she has which may not be everybody's belief', an hour before a suspension review meeting, but Ms Myles said she was not given any documentation to examine prior to the review. During the tribunal, counsel for NHS Fife, Jane Russell KC, asked about these 'other beliefs'. Ms Myles said: 'There was views that Sandie was homophobic and there were elements of racism in her beliefs. It's hearsay. I try to disregard views which haven't been documented or there's little evidence of.' She noted that Ms Peggie referred to Dr Upton using 'male terminology', but said that she believed Ms Peggie's feelings about Dr Upton were 'circumstantial', and later challenged why allegations she branded 'hearsay' had not been documented or escalated, the tribunal heard. Ms Russell said: 'Arising out of this meeting, what was your opinion about how Sandie Peggie really felt about Dr Upton?' The witness said: 'I think Sandie probably wasn't too happy with Dr Upton but I think that was more from the incident which had happened. In summary notes, I had asked if she was to treat a patient who was transgender, would she treat them differently? 'I was reassured she said she wouldn't treat anyone trans differently; I felt that it was circumstantial.' Ms Russell asked for the witness's views on how Ms Peggie 'might deal with transgender patients' after a suspension review meeting on March 7 2024. Ms Myles said: 'I felt reassured she wouldn't treat them differently. Sandie has been a nurse for 30 years, I'm sure in that time she has dealt with transgender patients. I felt there were no safety concerns.' She said she referred to the Nursing and Midwifery Council code, including on freedom of expression, and the Equality Act 2010 which she described as a 'grey area in a lot of workplaces', and said there were 'several reasons' why she lifted the suspension, the tribunal heard. Ms Myles said: 'I wanted to be sure I wouldn't be treating either party in breach of the Equality Act. I wanted to have Dr Upton and Sandie Peggie treated fairly and equally.' She said that a meeting between herself, Ms Peggie and Royal College of Nursing rep Stuart Fraser was 'very difficult' and 'emotional' for Ms Peggie, who was determined to return to the Emergency Department rather than be moved to another department managed by Ms Myles, the tribunal heard. Ms Myles said: 'I wanted both parties to be treated fairly and equally. The situation was 'she said/ she said', we were limited on witnesses and things being documented.' The witness said that a return to work would be 'beneficial' for Ms Peggie, and that she wanted to 'make it as seamless as possible', after discussions about moving departments and moving onto dayshifts were both rejected, the tribunal heard. Giving evidence, Ms Myles said she was aware of reports of 'negative interactions', which she branded 'hearsay'. Ms Myles said: 'I actually challenged that by saying: 'Why wasn't this documented? Why wasn't it escalated?' Nobody could confirm, but I felt that was hearsay. I felt that to try to prevent any other allegations from happening having a senior team member on duty would be supportive for her.' She said it was agreed to put the pair on 'opposite shifts' and for Ms Peggie to be supervised during a phased return, describing it as a 'compromise', the tribunal heard. Ms Myles said that her involvement ceased around April 19 at the request of head of nursing Gillian Malone, and she had no role in the investigation. The tribunal continues.
Yahoo
19-07-2025
- Yahoo
Nurse at centre of gender storm takes action against union
A nurse at the centre of a gender dispute has announced she is taking legal action against her trade union. Sandie Peggie was suspended from her job in 2024 after she complained about having to share a changing room with transgender medic Dr Beth Upton. Ms Peggie was later placed on special leave after a complaint of bullying and harassment by Dr Upton, but was cleared by an NHS Fife investigation earlier this week. The suspension led to an employment tribunal this year, in which Ms Peggie launched a claim against Dr Upton and NHS Fife, citing the Equality Act 2010, including sexual harassment, harassment related to a protected belief, indirect discrimination and victimisation. On Saturday, the Herald reported that Ms Peggie had taken legal action against the Royal College of Nursing (RCN), claiming it failed to support her after her suspension, which the union denies. 'The RCN's failure to act like a trade union ought to has contributed to Sandie Peggie's mistreatment,' Ms Peggie's lawyer Margaret Gribbon said in a statement. 'They have repeatedly failed to exercise their industrial muscle to advocate for female members distressed because they are being deprived of genuine single-sex spaces to dress and undress at work. 'Had the RCN fulfilled the conventional role of a trade union, it is less likely that Sandie would have faced the ordeal of an 18-month disciplinary process and having to raise legal proceedings against Fife Health Board.' The paper reported that Ms Peggie will be taking action for unlawful discrimination. An RCN spokesperson told the newspaper: 'We have responded to the claim, and we deny all the allegations from Ms Peggie.'
Yahoo
15-07-2025
- Yahoo
Right-to-Die Activist Ends Life by Starving Herself to ‘Protect My Children From Seeing Me Choke and Struggle to Breathe'
Two years ago, Emma Bray, 42, was diagnosed with a terminal neurological condition called motor neuron disease She decided to end her life by starving herself, hoping to spare her children from witnessing her decline any further The mom of two announced her own death on Instagram on July 14 alongside a final photo of herself lying in a hospice bedA British mother made the tough decision to starve herself to death to spare her children from witnessing the devastating effects of her terminal neurological condition. Two years ago, Emma Bray from Barnstaple, England, was diagnosed with motor neuron disease (MND). MND is a group of neurological disorders that gradually destroy the motor neurons, according to the Cleveland Clinic. These nerve cells are found in the brain and spinal cord, and they control muscle movement for activities like breathing, speaking, swallowing and walking. ALS — also known as Lou Gehrig's disease — is the most common MND. Never miss a story — sign up for to stay up-to-date on the best of what PEOPLE has to offer, from celebrity news to compelling human interest stories. 'I've had four different health professionals tell me I've got the worst disease possible,' she told The Mirror in May, using an eye-gazing machine to speak. 'I now feel I am at the stage where my quality of life is very affected, I can no longer use any of my limbs. My talking is severely affected, and I struggle to eat, and it's getting harder to breathe. I am only really comfortable in bed, and social visits are exhausting.' 'I have carers multiple times a day, can't be left alone overnight and can no longer do any basic tasks,' the 42-year-old continued. 'I can't scratch an itch, push up my glasses, or move a bed sheet if I am too hot or cold. I feel like I am losing the essence of me. I am still so loved, but I can't be myself, and I see that grief on everyone's faces." is now available in the Apple App Store! Download it now for the most binge-worthy celeb content, exclusive video clips, astrology updates and more! Bray — who actively campaigned for Dignity in Dying — was an advocate for the Assisted Dying Bill, which would allow adults in the UK who are terminally ill to have the choice of medical aid in dying. She said, if it were passed, it would've prevented her loved ones suffering for two years with anticipatory grief. 'Imagine seeing your children crying and upset and not be able to hug them or curl up in bed and wipe their tears away,' she told the outlet, referring to her children, age 15 and 14. 'This is hands down the thing I hate the most about motor neurone disease. It's taken my children's mum from them little by little.' So, Bray decided to end her life using the 'voluntarily stopping eating or drinking' practice, also known as VSED. According to nonprofit Compassion & Choices — which provides resources, training and support for those navigating end-of-life health care — VSED is 'when a mentally capable individual decides to control their own dying by making a conscious decision to refuse foods and fluids of any kind.' 'VSED is not an easy death, but with the current law in England, this is the only way I can have control over my death,' Bray explained. 'I want to protect my children from seeing me choke and struggle to breathe. I don't want to die, but I am going to and have come to terms with my impending death, and I know I want to die surrounded by loved ones, music and laughter, not in an emergency way after further decline.' 'My last bit of parenting I can do is to limit the suffering and trauma they have to witness,' she added. 'I made a promise to myself that I wanted to wait to see my daughter finish high school and my son grow up a little so I can picture the man he will become.' ! In her final months, she told the outlet that she's urging members of parliament to help others 'die with peace.' On Monday, July 14, Bray — from her @stupid_mnd account — posted on Instagram, announcing her own death alongside a final photo of herself lying in a hospice bed overlooking the trees. 'If you are reading this then I've finished my final spin round the sun,' she wrote. 'I've lived a very good life, surrounded by love, music and laughter and I want this to continue in my memory. Rather than shed a tear (or whilst you do) please plant a tree or call a friend, do a random act of kindness or take time to watch a sunset. For moments of doubt please ask 'what would Emma do?' and run with that probably inappropriate answer.' 'Hug everyone a little tighter and love openly,' she ended. 'Please surround those who were closest to me with love, time and patience. And to quote Frank Turner - Remember you get to dance another day but now you have to dance for one more of us. Love you , bye.' Read the original article on People