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Associated Press
22-06-2025
- Health
- Associated Press
Key Findings from the "Hong Kong Vitiligo Patients and Caregivers Survey" Released for "World Vitiligo Day"
Patients Demonstrate Significant Knowledge Gaps in Treatment Options, Leading to Lost Hope and Treatment Discontinuation Over 70% of Vitiligo Patients Desire Skin Repigmentation; New Topical Therapy Introduced in Hong Kong Shows Encouraging Results HONG KONG SAR - Media OutReach Newswire - 22 June 2025 - In observance of World Vitiligo Day (June 25), Hong Kong Vitiligo Support Group has released findings from its latest 'Hong Kong Vitiligo Patients and Caregivers Survey.' The study reveals critical gaps in treatment knowledge, with over 80% of respondents demonstrating limited understanding of available therapies and their efficacy. More than 70% of patients hoped therapy could partially or fully restore their original skin pigmentation, yet many reported disappointing outcomes with existing treatments, leading to loss of confidence and treatment discontinuation. (From left) Mr. Chan (pseudonym), a patient with vitiligo; Dr. Chan Yung, a specialist in dermatology; and Ms. Amy Wong, a registered social worker from the Hong Kong Vitiligo Support Group, urge individuals with vitiligo to seek professional medical consultation for personalized treatment plan promptly and to avoid unproven remedies Dr. Chan Yung, a specialist in dermatology, noted that with advancing insights into vitiligo pathogenesis, novel therapy has recently been introduced in Hong Kong. Clinical studies confirm its repigmentation potential, encouraging patients to consult specialists for personalized treatment plans. In Hong Kong, vitiligo affects approximately 1% of the population, with an estimated 70,000 individuals living with the condition. In May 2025, Hong Kong Vitiligo Support Group successfully surveyed 61 patients or their primary caregivers to identify key challenges in disease management. Key findings as follows: 1. Critical Knowledge Deficits in Treatment Understanding 2. Disparity Between Treatment Expectations and Outcomes 3. Treatment Discontinuation Due to Lost Confidence Vitiligo is classified as segmental (SV) or non-segmental (NSV), with 90% of cases being NSV—a subtype with higher progression risk and greater therapeutic difficulty. Traditional options (e.g., topical corticosteroids, topical calcineurin inhibitors, phototherapy) often yield variable results, with limitations such as: Over 70% of Vitiligo Patients Seek Skin Repigmentation - New Topical Treatment Introduced in Hong Kong Offers Hope Dr. Chan Yung stated that targeted therapies like topical JAK inhibitors represent a breakthrough in vitiligo treatment. 'Topical JAK inhibitors are non-steroidal medications with demonstrated efficacy and safety profiles, making them a viable long-term treatment option for patients,' he explained. While the exact etiology of vitiligo remains unclear, current evidence suggests autoimmune-mediated attack on melanocytes plays a key pathogenic role, resulting in depigmented lesions. Non-steroidal Topical JAK inhibitors work by modulating the aberrant immune signaling responsible for melanocyte attack, enabling gradual repigmentation of affected areas. Ruxolitinib cream, the first FDA-approved non-steroidal topical JAK inhibitor for localized treatment of non-segmental vitiligo in patients aged 12 years and above, has recently become available in Hong Kong. Clinical trials show: Ms. Amy Wong, a Registered Social Worker at Hong Kong Vitiligo Support Group noted that many vitiligo patients and caregivers seeking assistance express confusion about treatment options and medication efficacy. 'Many patients spend over a year just obtaining a definitive diagnosis,' she explained. 'In their search for solutions, patients often invest substantial resources in various cosmetic packages and alternative therapies, only to experience significant discrepancies between desired and actual outcomes. This frequently leads to disillusionment, loss of hope for effective treatment, and even emotional distress.' 'However,' Ms. Wong emphasized, 'with medical advancements, vitiligo is no longer considered untreatable. Repigmentation is now achievable, and we strongly encourage patients to seek professional medical consultation at the earliest opportunity.' Conclusion and Recommendations The survey reveals significant gaps in patients' understanding of vitiligo treatments and their mechanisms, leaving many uncertain about where to begin treatment. Over 80% of respondents expressed desire for patient support in medication access and resource referrals. Accordingly, Dr. Chan Yung and Ms. Amy Wong, propose the following recommendations: 1. Public Education Seminars Conduct lectures and workshops to help patients and caregivers understand that vitiligo requires long-term management, with visible results often taking extended periods to manifest. These initiatives should also educate participants about various treatment modalities, particularly newly available options like non-steroidal topical JAK inhibitors, enabling informed discussions with healthcare providers about appropriate treatment plans. 2. Medication Support and Resource Referral Services Given that vitiligo necessitates prolonged treatment, and considering that many patients find private care cost-prohibitive while public service wait times are excessively long, we recommend establishing medication support and resource referral services to facilitate timely access to proper treatment. Hong Kong Vitiligo Support Group is currently implementing a 'Vitiligo Patient Support Program,' offering free psychological counseling, medication assistance, and resource referral services. Interested individuals may contact Hong Kong Vitiligo Support Group for details. Case Study Mr. Chan (pseudonym), 58, first developed symptoms thirty years ago with a small depigmented spot on his neck that subsequently spread to his neck, waist, wrists, and thighs. At diagnosis, his physician prescribed topical corticosteroids but stated vitiligo was essentially 'incurable.' Mr. Chan subsequently pursued numerous alternative treatments including UV light therapy, traditional Chinese medicine, electroacupuncture, topical shampoo applications, and cosmetic packages - exhausting savings and liquidating his stocks - all without achieving satisfactory repigmentation. After years of unsuccessful treatment attempts, he discontinued treatment until being referred to the Hong Kong Vitiligo Support Group. Through their seminars and 'Vitiligo Patient Support Program', he learned about modern treatment advances and, with medication assistance, has begun new therapy with renewed hope for repigmentation. 'My greatest wish is to wear crew-neck shirts again,' Mr. Chan shared. 'Since developing vitiligo, I've only worn high-collared shirts to conceal neck patches and haven't gone swimming in thirty years.' He looks forward to regaining sartorial freedom following successful repigmentation. Hashtag: #Vitiligo #WorldVitiligoDay #TopicalJAKinhibitors #Non-steroidalTopicalJAKinhibitors #Ruxolitinibcream #SkinRepigmentation # #Dermatology #Skincare#HongKongVitiligoSupportGroup The issuer is solely responsible for the content of this announcement. About Hong Kong Vitiligo Support Group Initiated by social enterprise Hong Kong Health Care Alliance, Hong Kong Vitiligo Support Group is a non-profit patient organization dedicated to individuals affected by vitiligo and their caregivers. Our mission is to enhance societal understanding of vitiligo through comprehensive disease education and support services, empowering patients to better understand and confront their condition while fostering public awareness. We strive to ensure no patient faces this journey alone.
Malay Mail
22-06-2025
- Health
- Malay Mail
Key Findings from the "Hong Kong Vitiligo Patients and Caregivers Survey" Released for "World Vitiligo Day"
(From left) Mr. Chan (pseudonym), a patient with vitiligo; Dr. Chan Yung, a specialist in dermatology; and Ms. Amy Wong, a registered social worker from the Hong Kong Vitiligo Support Group, urge individuals with vitiligo to seek professional medical consultation for personalized treatment plan promptly and to avoid unproven remedies 80% lack understanding of treatment options 78% unfamiliar with medication efficacy 84% uncertain about which specialist to consult 74% of respondents expressed a desire for full or partial skin repigmentation, yet among the 48 treated patients, none achieved complete repigmentation, and only 8% reported partial improvement 67% perceived treatments as completely ineffective 43% are not receiving any active treatment at present Barriers included: high private healthcare costs and long public-sector wait times (95%), and perceived futility of therapy (75%) Corticosteroids: Risk of skin atrophy, telangiectasia; unsuitable for long-term use Phototherapy: Requires 3–6 months (or longer) of 2–3 weekly sessions, with potential sunburn and skin cancer risks Non-steroidal topicals: Often only slow progression rather than induce repigmentation Over 70% of Vitiligo Patients Seek Skin Repigmentation - New Topical Treatment Introduced in Hong Kong Offers Hope Approximately 30% of patients achieved ≥75% improvement in Facial Vitiligo Area Scoring Index (F-VASI) after 24 weeks of treatment; 50% of patients showed ≥50% improvement; Extension to 52 weeks of treatment resulted in >50% of patients attaining ≥75% improvement7 Conclusion and Recommendations Case Study HONG KONG SAR - Media OutReach Newswire - 22 June 2025 - In observance of World Vitiligo Day (June 25), Hong Kong Vitiligo Support Group has released findings from its latest "Hong Kong Vitiligo Patients and Caregivers Survey." The study reveals critical gaps in treatment knowledge, with over 80% of respondents demonstrating limited understanding of available therapies and their efficacy. More than 70% of patients hoped therapy could partially or fully restore their original skin pigmentation, yet many reported disappointing outcomes with existing treatments, leading to loss of confidence and treatment that with advancing insights into vitiligo pathogenesis, novel therapy has recently been introduced in Hong Kong. Clinical studies confirm its repigmentation potential, encouraging patients to consult specialists for personalized treatment Hong Kong, vitiligo affects approximately 1% of the population, with an estimated 70,000 individuals living with the condition. In May 2025, Hong Kong Vitiligo Support Group successfully surveyed 61 patients or their primary caregivers to identify key challenges in disease management. Key findings as follows:Vitiligo is classified as segmental (SV) or non-segmental (NSV), with 90% of cases being NSV—a subtype with higher progression risk and greater therapeutic difficulty. Traditional options (e.g., topical corticosteroids, topical calcineurin inhibitors, phototherapy) often yield variable results, with limitations such as:stated that targeted therapies like topical JAK inhibitors represent a breakthrough in vitiligo treatment. "Topical JAK inhibitors are non-steroidal medications with demonstrated efficacy and safety profiles, making them a viable long-term treatment option for patients," he the exact etiology of vitiligo remains unclear, current evidence suggests autoimmune-mediated attack on melanocytes plays a key pathogenic role, resulting in depigmented lesions. Non-steroidal Topical JAK inhibitors work by modulating the aberrant immune signaling responsible for melanocyte attack, enabling gradual repigmentation of affected cream, the first FDA-approved non-steroidal topical JAK inhibitor for localized treatment of non-segmental vitiligo in patients aged 12 years and above, has recently become available in Hong Kong. Clinical trials show:noted that many vitiligo patients and caregivers seeking assistance express confusion about treatment options and medication efficacy. "Many patients spend over a year just obtaining a definitive diagnosis," she explained. "In their search for solutions, patients often invest substantial resources in various cosmetic packages and alternative therapies, only to experience significant discrepancies between desired and actual outcomes. This frequently leads to disillusionment, loss of hope for effective treatment, and even emotional distress.""However,"emphasized, "with medical advancements, vitiligo is no longer considered untreatable. Repigmentation is now achievable, and we strongly encourage patients to seek professional medical consultation at the earliest opportunity."The survey reveals significant gaps in patients' understanding of vitiligo treatments and their mechanisms, leaving many uncertain about where to begin treatment. Over 80% of respondents expressed desire for patient support in medication access and resource referrals. Accordingly,andpropose the following recommendations:Conduct lectures and workshops to help patients and caregivers understand that vitiligo requires long-term management, with visible results often taking extended periods to manifest. These initiatives should also educate participants about various treatment modalities, particularly newly available options like non-steroidal topical JAK inhibitors, enabling informed discussions with healthcare providers about appropriate treatment that vitiligo necessitates prolonged treatment, and considering that many patients find private care cost-prohibitive while public service wait times are excessively long, we recommend establishing medication support and resource referral services to facilitate timely access to proper treatment. Hong Kong Vitiligo Support Group is currently implementing a "Vitiligo Patient Support Program," offering free psychological counseling, medication assistance, and resource referral services. Interested individuals may contact Hong Kong Vitiligo Support Group for Chan (pseudonym), 58, first developed symptoms thirty years ago with a small depigmented spot on his neck that subsequently spread to his neck, waist, wrists, and thighs. At diagnosis, his physician prescribed topical corticosteroids but stated vitiligo was essentially "incurable." Mr. Chan subsequently pursued numerous alternative treatments including UV light therapy, traditional Chinese medicine, electroacupuncture, topical shampoo applications, and cosmetic packages - exhausting savings and liquidating his stocks - all without achieving satisfactory years of unsuccessful treatment attempts, he discontinued treatment until being referred to the Hong Kong Vitiligo Support Group. Through their seminars and "Vitiligo Patient Support Program", he learned about modern treatment advances and, with medication assistance, has begun new therapy with renewed hope for repigmentation."My greatest wish is to wear crew-neck shirts again," Mr. Chan shared. "Since developing vitiligo, I've only worn high-collared shirts to conceal neck patches and haven't gone swimming in thirty years." He looks forward to regaining sartorial freedom following successful #Vitiligo #WorldVitiligoDay #TopicalJAKinhibitors #Non-steroidalTopicalJAKinhibitors #Ruxolitinibcream #SkinRepigmentation # #Dermatology #Skincare#HongKongVitiligoSupportGroup The issuer is solely responsible for the content of this announcement. About Hong Kong Vitiligo Support Group Initiated by social enterprise Hong Kong Health Care Alliance, Hong Kong Vitiligo Support Group is a non-profit patient organization dedicated to individuals affected by vitiligo and their caregivers. Our mission is to enhance societal understanding of vitiligo through comprehensive disease education and support services, empowering patients to better understand and confront their condition while fostering public awareness. We strive to ensure no patient faces this journey alone.
San Francisco Chronicle
05-06-2025
- Business
- San Francisco Chronicle
Big cookies arrive to big lines, plus more new Peninsula and South Bay food
Pudgy cookies, late-night Korean barbecue, Laotian smashburgers: The Peninsula and South Bay food scene saw exciting additions in recent weeks. Fans lined up for cookies in Los Gatos. A popular dim sum chain opened a shiny new outpost in Palo Alto. A new sweets shop specializes in Persian-inspired desserts. There's a lot of new food out there; read on for more on eight new Peninsula and South Bay food businesses. Hit cookies get their own home Batch 22, a popular South Bay business known for its oversized cookies, opened a bakery in Los Gatos to much anticipation in May. Co-owner Amy Wong, who left a marketing job to start the cottage food business in Cupertino in 2020, built a loyal following for her thick, 6-ounce 'pudge' cookies, inspired by New York City's famous Levain Bakery. The rotating menu includes flavors like chocolate chip, earl grey milk chocolate and dark chocolate-orange (as well as a few smaller, thin cookies). The best-seller is the ube dulcey, made with the purple Filipino yam, caramelized white chocolate and toffee. The Los Gatos bakery is airy and colorful, with one wall carved in the shape of a cookie with bites taken out of it. Batch 22 often sells out; check Instagram or call 408-827-4184 to find out what, if any, flavors are left. 15466 Los Gatos Blvd., #113, Los Gatos. Dumplings descend on Peninsula mall Bay Area mini dim sum chain Dumpling Time brought its latest outpost to the upscale Stanford Shopping Center in Palo Alto. With it came a slew of new dishes, debuting here and then rolling out at all Dumpling Time locations, like pho-flavored xiao long bao filled with beef broth and a twist on mapo tofu with deep-fried batons of tofu served over a shiitake mapo sauce. The new menu is courtesy of Dustin Falcon, who comes with experience at the three-Michelin-star French Laundry and now serves as corporate executive chef for Omakase Restaurant Group, which runs Dumpling Time as well as Niku Steakhouse and Prelude in San Francisco. The new restaurant has an ample outdoor patio, dumpling bar and view into the dumpling-making process in the open kitchen. Dumpling Time became known first in San Francisco for handmade dim sum and oversized soup dumplings, and has since steadily expanded throughout the Bay Area. Sunnyvale now has an outpost of popular East Bay Korean barbecue restaurant. Don Blanc, one of the Chronicle's picks for the Bay Area's top Korean restaurants, is known for meat cooked on cast iron grills (including a specialty in beef intestine) and a lively vibe. The menu also includes Korean specialties like marinated raw crab, fried chicken and beef tartare. While the Oakland original stays open until 2 a.m. on weekends, Sunnyvale closes at midnight daily. Plus, a Korean kimbap specialist arrives A local kimbap shop just opened, devoted to the Korean sushi rolled with fish cake, spicy beef, Spam, pickles and other fillings. Bibimmate, located inside a San Mateo ghost kitchen, comes from Seonghye Park-Kwak, a local veterinarian who's long wanted to open a kimbap shop, according to a social media post. 66 21st Ave., San Mateo. Lao food truck debuts Enter: A rare Lao smashburger. It comes courtesy of Szn N Spice, a new food truck parked in Redwood City. The burger comes with double beef 'sai oua' patties (made in the style of the Lao sausage), pickled onions and cucumbers, American cheese and a Thai chili crema. Also on the menu are chicken satay, truffle fries and beef croquettes. A sweet new dessert shop Petal's Creamery is now scooping ice cream and serving desserts in Los Gatos. The new shop, elegant with pastel-green walls, black-and-white checkered floors and tufted banquette seating, serves creative, Persian-inflected ice cream flavors like orange blossom creamsicle, cardamom-chocolate and 'rozu' (rose plus yuzu). Toppings come in the form of saffron brittle or sour cherry sauce. A glass case is also stocked with Persian-inspired desserts. Con Azucar Cafe's calling card is an Instagrammable giant concha, and it's now available in Redwood City. The San Jose cafe's second location just opened on Middlefield Road with coffee, iced horchata and conchas in a colorful, almost arcade-like space. A nostalgic Italian-American joint Mountain View is home to a new Italian-American restaurant from the team behind popular Peninsula pizzeria chain Doppio Zero. Johnny & Sanny's — a twist on the names of co-owners Gianni (Johnny) Chiloiro and Angelo Sannino (Sanny) — is serving Italian-American classics like chicken parm and housemade pastas, plus Roman-style pizza.
