Latest news with #EpilepsyScotland
Glasgow Times
04-07-2025
- Health
- Glasgow Times
Thousands raised for Epilepsy cause in memory of Glasgow teen
Tyla Neve Malone was just 19 years old when she passed away in March, and since that day, hundreds of people have come together to raise funds in her name for Epilepsy Scotland. Tyla lived with the neurological condition, but was described as a "resilient" person who "bounced back with a smile and spirit that inspired everyone around her." Following her death, Drumchapel Amateurs FC, where she often supported her dad as a coach, and her three brothers, who have played in their team, decided to organise a charity match "in her honour" to raise awareness of the condition. (Image: Drumchapel Amateurs FC) (Image: Drumchapel Amateurs FC) The game, which was played at Glenhead Park in Duntocher on June 21, raised an impressive £4789. A spokesperson for the club said, "Tyla was a beautiful girl with a bright, bubbly personality and a heart full of kindness. "With her dad and three brothers all playing for Drumchapel Amateurs at various times, she quickly became a regular supporter and a much-loved part of the club. "She was always up for a laugh, never missed a fundraiser and brought her energy to every social event. "She had a big heart and a genuine warmth. Her infectious character had us all smiling, and being in her company was always a pleasure. She wasn't just part of the crowd - she was a special part of the club." (Image: Drumchapel Amateurs FC) (Image: Drumchapel Amateurs FC) (Image: Drumchapel Amateurs FC) According to Epilepsy Scotland, over 80,000 people in Scotland are affected by epilepsy. The charity campaigns for improved healthcare, better information provision and an end to stigma. The club continued: "Tyla lived with epilepsy, but her strength and resilience shone through every challenge. "She will be deeply missed by all of us - as a friend, a sister, a daughter, and a cherished member of the Drumchapel family." A GoFundMe was set up shortly after Tyla's death and has since collected more than £22,000 in her memory from 740 donors. A message from Tyla's parents, Chris and Donna, says they are "overwhelmed" by the support they have received. "The outpouring of love has been overwhelming, and we've appreciated every bit of it. "To the club, our amazing community - your kindness, time and generosity have meant the world to us. "This event is a beautiful tribute to Tyla, and it wouldn't have happened without you. "Thank you for supporting us and keeping Tyla's spirit alive in such a powerful way."
Glasgow Times
14-06-2025
- Entertainment
- Glasgow Times
Live at the Apollo star to headline Glasgow comedy event
Jake Lambert, known for his appearances on BBC's Live at the Apollo, is set to headline the Patter Merchants Comedy Clash in Glasgow on June 22. The annual Epilepsy Scotland fundraising event will take place at the at The Stand Comedy Club, with doors set to open at 7:30 PM and the show due to begin at 8.30pm. The programme has an age restriction of 18 and over. Jake, 33, has quickly risen to become one of the UK's up-and-coming comedic talents. Dubbed "a joke machine" by The Telegraph owing to his lively storytelling, the comedian boasts more than 500 million views across his online videos. His reputation has been further solidified with three consecutive sell-out performances at the Edinburgh Fringe Festival. Read more: Ricky Gervais' comedy talent search coming to Glasgow with £5k prize Now, the young star is on an international tour with his acclaimed show, The Sunshine Kid, which will continue throughout 2025. Outside renowned comic platforms like Live at the Apollo, he has appeared on Comedy Central's Live From The Comedy Store, Comedy Central Live, UKTV's Rosie Jones's Disability Comedy Extravaganza, and is a regular on The Apprentice. Lambert shares hosting roles with fellow comedian George Lewis on their popular podcast Save It For The Podcast. The comedian has backed comedy giants such as Michael McIntyre, Jack Dee, Romesh Ranganathan, and Kerry Godliman, performing at arenas and theatres worldwide. Others gracing the Comedy Clash stage include award-winning hip-hop comedian MC Hammersmith, local favorite Gary Little, and veteran host Raymond Mearns. The event is set to offer comedy lovers an evening of exceptional entertainment whilst supporting an important cause with the entirety of ticket sales, minus booking fees, used to support Epilepsy Scotland. More information, including how to book tickets can be found online here: Read more: River City and Two Doors Down stars to bring 'amazing chemistry' to new tour The nationwide charity strives to improve the lives of those affected by epilepsy in Scotland. It provides direct support services, campaigns, and policy engagement, and offers training to both professionals and the public. Over the years, Epilepsy Scotland has offered a voice to the 80,000 Scots living with this condition. It also works to challenge the societal stigma surrounding epilepsy and to elevate public consciousness about the condition. The charity remains devoted to breaking down barriers, educating the public, and improving care and understanding.
Daily Record
06-06-2025
- Automotive
- Daily Record
Lanarkshire golf tournament in Natalie's memory raises record amount for Epilepsy Scotland
The event at Wishaw Golf Club is the fundraising highlight of the year An annual golf tournament organised by a foundation set up in memory of a Lanarkshire schoolgirl raised a record amount at this year's event. The Funky Natz Foundation was set up by the parents of 11-year-old Natalie Hughes who died suddenly in March 2011. Natalie's mum and dad Eileen and Eddie launched the fundraising initiative following the unexplained death of their daughter, who had epilepsy. The foundation has kept Natalie's memory alive while raising money for Epilepsy Scotland. Download the Lanarkshire Live app today The annual golf tournament at Wishaw Golf Club is the fundraising highlight of the year and featured a top-prize of a brand new car, courtesy of Park's Renault Motherwell, as a prize for a hole-in-one at one of the greens. Before this year's tournament the total raised stood at more than £160,000 and the committee hoped to take that to around the £170,000 mark. However, this year's event raised an incredible record total of £16,153 in the East Kilbride girl's memory. Around 140 golfers took part in 35 teams of four, with a Renault Clio Evolution TCe 90 up for grabs for a hole-in-one, worth almost £20,000. No one managed to take the top prize but that didn't stop anyone from enjoying a fantastic day. Tournament winners were Liam McGarry and Paul McMahon, who also had the best back nine, runners-up were Tam Wotherspoon and Grant Robertson, and finishing in third place were Brian Donahue and George Campbell. There was also a tournament within the tournament this year and the Natalie Hughes Cup, courtesy of Epilepsy Scotland, was presented to Wullie McCulloch who had the best individual score on the day. Th Funky Natz Foundation Committee would like to thank sponsors, Park's Motor Group, KPP Chartered Accountants, Watson Towers, Natgem Ltd and Halls Coaches. More information on the Funky Natz Foundation is available on its Facebook page. *Don't miss the latest headlines from around Lanarkshire. Sign up to our newsletters here.
Scotsman
25-05-2025
- Health
- Scotsman
Spike in Scots living with epilepsy as charity launches awareness drive
Fears that thousands of Scots may be at risk without adequate support Sign up to our daily newsletter – Regular news stories and round-ups from around Scotland direct to your inbox Sign up Thank you for signing up! Did you know with a Digital Subscription to The Scotsman, you can get unlimited access to the website including our premium content, as well as benefiting from fewer ads, loyalty rewards and much more. Learn More Sorry, there seem to be some issues. Please try again later. Submitting... Far more people in Scotland are living with epilepsy than has previously been reported amid calls from a leading charity to boost awareness about the condition. Epilepsy Scotland pointed to new statistics which shows that an estimated 80,406 people in the country are living with epilepsy. It has raised concerns that thousands of Scots could be at risk without adequate support. Advertisement Hide Ad Advertisement Hide Ad Although it has long been one of the most prevalent neurological conditions nationally, that figure, detailed in statistics published by Public Health Scotland, the national health agency, represents an increase of 38.6 per cent on the longstanding figure of 58,000 cited by charities, health services, and politicians. Roughly one in every 100 Scots has epilepsy. Picture: Epilepsy Scotland Now, as part of National Epilepsy Week, the leading charity has called for more open and informed conversations about epilepsy and its risks, including sudden unexpected death in epilepsy (SUDEP), a rare and fatal complication. The charity, which works to ensure people living with epilepsy have access to high quality medical, social, educational, and support services, and can be free from stigma and discrimination, said the updated figures showing the number of people living with epilepsy highlighted the importance of ensuring that those affected receive appropriate support. Lesslie Young, Epilepsy Scotland's chief executive, said: 'These new figures give us a clearer picture of the number of people affected by epilepsy in Scotland today. Most people with epilepsy live full, independent lives — but for some, the condition brings more complex challenges. Advertisement Hide Ad Advertisement Hide Ad 'Our campaign this year focuses on ensuring that people with epilepsy, their families, and clinicians are supported to have sensitive, open conversations about SUDEP. With greater understanding comes greater confidence to manage risk and support wellbeing.' Epilepsy Scotland's Lesslie Young | Epilepsy Scotland SUDEP refers to the sudden, unexpected death of a person with epilepsy, where no other cause of death is found. While uncommon, it is one of the most serious potential outcomes of epilepsy. Research suggests that up to 12 per cent of people with difficult-to-manage epilepsy may be affected. In Scotland, it is estimated that up to two people die each week as a result of SUDEP, yet many individuals and families remain unaware of the risk. Separate Public Health Scotland data shows there has been a clear increase in the number of deaths in Scotland where epilepsy was recorded as the underlying cause on the death certificate. While there were 104 such deaths recorded in 2008, the number stood at 135 in 2023. The number of men dying where epilepsy is deemed to be the underlying cause went up from 68 to 79 over the same period, with the respective figures for women also up, from 36 to 56. Advertisement Hide Ad Advertisement Hide Ad Epilepsy Scotland's current campaign, The Seizure that Stole a Future, is focused on sharing personal stories of people whose lives were cut short by epilepsy in an attempt to bolster recognition of the emotional and practical realities families face.
Scotsman
25-05-2025
- Health
- Scotsman
Spike in Scots living with epilepsy as charity launches awareness drive
Fears that thousands of Scots may be at risk without adequate support Sign up to our daily newsletter – Regular news stories and round-ups from around Scotland direct to your inbox Sign up Thank you for signing up! Did you know with a Digital Subscription to The Scotsman, you can get unlimited access to the website including our premium content, as well as benefiting from fewer ads, loyalty rewards and much more. Learn More Sorry, there seem to be some issues. Please try again later. Submitting... Far more people in Scotland are living with epilepsy than has previously been reported amid calls from a leading charity to boost awareness about the condition. Epilepsy Scotland pointed to new statistics which shows that an estimated 80,406 people in the country are living with epilepsy. It has raised concerns that thousands of Scots could be at risk without adequate support. Advertisement Hide Ad Advertisement Hide Ad Although it has long been one of the most prevalent neurological conditions nationally, that figure, detailed in statistics published by Public Health Scotland, the national health agency, represents an increase of 38.6 per cent on the longstanding figure of 58,000 cited by charities, health services, and politicians. Roughly one in every 100 Scots has epilepsy. Picture: Epilepsy Scotland Now, as part of National Epilepsy Week, the leading charity has called for more open and informed conversations about epilepsy and its risks, including sudden unexpected death in epilepsy (SUDEP), a rare and fatal complication. The charity, which works to ensure people living with epilepsy have access to high quality medical, social, educational, and support services, and can be free from stigma and discrimination, said the updated figures showing the number of people living with epilepsy highlighted the importance of ensuring that those affected receive appropriate support. Lesslie Young, Epilepsy Scotland's chief executive, said: 'These new figures give us a clearer picture of the number of people affected by epilepsy in Scotland today. Most people with epilepsy live full, independent lives — but for some, the condition brings more complex challenges. Advertisement Hide Ad Advertisement Hide Ad 'Our campaign this year focuses on ensuring that people with epilepsy, their families, and clinicians are supported to have sensitive, open conversations about SUDEP. With greater understanding comes greater confidence to manage risk and support wellbeing.' Epilepsy Scotland's Lesslie Young | Epilepsy Scotland SUDEP refers to the sudden, unexpected death of a person with epilepsy, where no other cause of death is found. While uncommon, it is one of the most serious potential outcomes of epilepsy. Research suggests that up to 12 per cent of people with difficult-to-manage epilepsy may be affected. In Scotland, it is estimated that up to two people die each week as a result of SUDEP, yet many individuals and families remain unaware of the risk. Separate Public Health Scotland data shows there has been a clear increase in the number of deaths in Scotland where epilepsy was recorded as the underlying cause on the death certificate. While there were 104 such deaths recorded in 2008, the number stood at 135 in 2023. The number of men dying where epilepsy is deemed to be the underlying cause went up from 68 to 79 over the same period, with the respective figures for women also up, from 36 to 56. Advertisement Hide Ad Advertisement Hide Ad Epilepsy Scotland's current campaign, The Seizure that Stole a Future, is focused on sharing personal stories of people whose lives were cut short by epilepsy in an attempt to bolster recognition of the emotional and practical realities families face.
