Latest news with #EwingSarcoma
The Hindu
2 days ago
- Health
- The Hindu
Bombay High Court orders fertility clinic to preserve deceased man's sperm in landmark ART Act case
In a case that could set a key precedent for posthumous reproductive rights in India, the Bombay High Court has directed the interim preservation of a deceased 21-year-old unmarried man's frozen semen sample. Justice Manish Pitale, presiding over a Single Bench, was hearing a petition filed by the man's mother and noted that the matter raised 'important questions' regarding the interpretation and application of the Assisted Reproductive Technology (Regulation) Act, 2021 (ART Act). The petitioner moved the High Court after the fertility clinic refused to release her son's semen. She is seeking access to the sample to continue the family lineage, arguing that her son was the sole legal heir. Justice Pitale observed, 'This petition gives rise to important questions with regard to the manner in which the semen/gamete of a person is to be preserved after death, under the Assisted Reproductive Technology (Regulation) Act, 2021 and the Rules framed thereunder. This becomes particularly significant in the present case, for the reason that the deceased, being the son of the petitioner, was unmarried at the time of his death.' The Court said that the petition requires detailed consideration but cautioned that if the semen is discarded during the pendency of the matter, the very purpose of the petition would be defeated. 'In view of the above, list for further consideration on July 30, 2025, High on Board. In the meanwhile, as an interim direction, the respondent No.2 (the clinic) is directed to ensure safe-keeping and storage of the frozen semen sample of the deceased, during the pendency of the present petition.' According to the mother, her son was diagnosed in 2023 with Ewing Sarcoma, a rare form of cancer affecting bones. Before beginning chemotherapy, his oncologist had advised him to freeze his semen due to the potential impact on fertility. He subsequently deposited his sample at a fertility clinic in Mumbai. The consent form, the mother claims, gave only two options: discard upon death or hand over to a spouse. The son signed it without consulting his family. As he died unmarried and without a will on February 16, 2025, the clinic refused to release the sample. The mother requested that it be transferred to a Gujarat-based clinic but was informed that a court order was needed. She first approached the Maharashtra Public Health Department in March but received no response. She then appealed to the Union Ministry of Health and Family Welfare on April 28. On May 6, her grievance was formally rejected, prompting her to approach the High Court. The petition notes that there are no surviving male members in the family, as the father and uncles had passed away young. It also cites a dying wish conveyed by the son to his aunt — that his sperm be used to create children who could look after his mother and family. The petition asserts that 'the sperm constitutes property' and that 'parents are the legal heirs of their deceased son.'
The Sun
6 days ago
- Health
- The Sun
Beth took her last breath days before her 13th birthday after we spotted a strange symptom as she brushed her teeth
BETH Phelps passed away days before her 13th birthday, after her parents spotted a strange symptom as she brushed her teeth. While the 12-year-old got ready for bed, parents Ben, 48, and Aby, 49, noticed a "protruding lump" on her shoulder, visible under her t-shirt. 10 10 Tests at Jersey General Hospital revealed Beth had a 7cm tumour on her left lung. The family was told Beth had Ewing sarcoma, a rare and aggressive form of bone cancer. "Our world in the blink of an eye was completely tipped upside down," her dad Ben, from Jersey, said. "She had no symptoms that stood out. Beth was a healthy little girl. "But she took all the treatment in her stride, despite being terrified of needles." After chemotherapy, surgery and radiotherapy she was given the all clear - only for it to return nine months later in her right lung. "When we were told her cancer had come back, we were shocked and heartbroken," Ben said. Beth's parents were offered a clinical trial, but chose palliative care to make "her time left as comfortable as possible". She died 12 days before her 13th birthday, on October 3, 2022. Ben, an HR director, is cycling from Land's End, Cornwall, to John O'Groats, Caithness, Scotland, to raise money for the Bone Cancer Research Trust (BCRT). "We'd never heard of Ewing sarcoma before," he explained. "That's why I'm trying to raise as much money as I can, so we can find kinder treatments to help more people survive. "Beth is my guiding light and inspiration always; this might be a tough physical challenge, but doesn't compare to anything she endured. "We miss Beth every day, and we are determined to make a difference in her name." 10 10 10 Ben and Aby spotted the first lump in December 2020, prompting her GP to send them to A&E Jersey General Hospital, where Beth was given a CT scan, x-ray and MRI. On Christmas Day 2020, Beth began her first of four rounds of chemotherapy. In May 2021, Beth underwent surgery to remove the tumour and the entire left scapula at Stanmore Hospital. Back at Southampton General Hospital, Beth received three more rounds of chemo before she underwent six weeks of radiotherapy at University College London Hospitals. What is Ewing sarcoma? Ewing sarcoma is a type of cancer that begins in the bones or soft tissues. The bones most commonly affected by Ewing sarcoma are the: Pelvis Thigh (femur) Shin (tibia) Ribs and shoulder blades Ewing sarcoma is most often found in teenagers and young adults, but it can happen at other ages. It is slightly more common in men than women. Sometimes Ewing sarcoma can start in the soft tissue near the bone, which is called extraosseous Ewing sarcoma. Pain is the most common symptom of bone cancer, including Ewing sarcoma. But symptoms may vary, depending on what part of the body the cancer is in. The area may be swollen or painful when touched. Primary bone cancer is sometimes found when a bone breaks after a minor fall or accident. This is because it has been weakened by the cancer. Most of the time, these symptoms are caused by other conditions that are more common than bone cancer. But if you have any swelling or unexplained bone pain, get it checked by your GP. Tell your GP if the pain happens at night and when you are resting. Source: Macmillan Cancer Research "This was agonising as a parent to watch," Ben said. "The nursing and play staff were amazing at helping to keep her calm, but nothing prepares you for some of the procedures that take place in order to give treatment." After nine months of treatment, Beth was declared cancer-free and returned home. However, in June 2022, she started to experience pain in her right shoulder. The pain increased and an x-ray revealed that the cancer had returned. Ben said: "We had to make a decision whether to put Beth through a clinical trial which meant more time away in hospitals and the possibility of never seeing home again. 10 10 10 "We chose palliative care and set out to make her time left as comfortable as possible, giving her the dignity and love that she so truly deserved. "She took her last breath surrounded by me, Aby, the dog and our cat, Monkey." In Beth's memory, Ben will cycle from Land's End, Cornwall, to John O'Groats, Caithness, Scotland, from June 22 to July 5. The dad said: "Beth was funny, quick-witted and beautiful. She is with me forever and especially on this challenge." Louise Everett, senior regional relationship manager at the BCRT said: "This is an incredibly inspiring challenge that Ben is taking on. "We're grateful that people like Ben want to keep raising vital funds and awareness so no other family has to go through what they went through." You can contribute to Ben's fundraiser here.
BBC News
7 days ago
- Sport
- BBC News
Man to paddle across English Channel in memory of daughter
A man from West Sussex is training to cross the English Channel, from Dungeness to Boulogne-sur-Mer, via paddle BartlettBundy, is taking on the challenge in memory of Pearl, who died in 2017 with a form of bone cancer called Ewing hopes this challenge can help raise £10,000 for The Children & Young People's Cancer Association, which funds said: "The challenge itself is physical and mental, it's about being prepared to take on whatever hits us. After seeing what my daughter and all those other children go through, and still smile, I feel like I'm paling in significance when compared to them." Jamie will be joined on his 26.5-mile journey by his brother, John says the sport helped both of them feel more connected after suffering the loss of Pearl."It gave us a chance to communicate." Jamie's wife, Rachel, bought him a paddle board a year after Pearl's death."She could see I wasn't coping," Jamie said."It just clicked with me. The more we did it, the more I realised that being out on the water and long-distance paddle-boarding gave me a chance to cope with my loss." Jamie and John will take on their challenge at the start of says that the knowledge that Pearl would be proud of him keeps him going.
Daily Record
15-06-2025
- Health
- Daily Record
Kilmarnock teachers complete 10k challenge as a heartfelt tribute tragic pupil
The teachers are now hoping to make this an annual event to raise money for bone cancer research. Park School teachers took on a 10k challenge at Race for Life as a heartfelt tribute to Katy Hay, a beloved S4 pupil who passed away after a courageous battle with cancer. The Cancer Research UK Race for Life took place at the Low Green on Sunday, June 1 where the Park School team raised over £5,500 for life-saving research. Claire Matthews, the S4 key teacher, told Ayrshire Live: "The day started cold and wet but the weather picked up and we had a great day. "Katy's mum, aunt and one of her sisters came to cheer us on along with her best friend Kirsty and her mum. They stayed until every single one of us crossed the finishing line and cheered us all on throughout the race. "Some ran and others walked but we all completed the 10k and raised over £5,400 so far for Cancer Research. Dr Marie Macklin donated £1,000 which gave us all such a boost." Alanah Robb, who was Katy's key teacher, added: "It was a fantastic day tinged with sadness. We all wore our Katy T-shirts. We were the only ones wearing photo T-shirts so we really stood out on the course. "Crossing the finish line was bittersweet. We had a huge sense of achievement at completing the race but also sadness that our fundraising focus had come to an end." Fifteen-year-old Katy sadly lost her battle in April, after fighting stage 4 Ewing Sarcoma, one of the rarest and most aggressive forms of bone cancer for the past year. Katy knew about the fundraiser before she passed away peacefully on Tuesday, April 29. She was moved by the gesture from her teachers and felt proud. Katy's mum Shelly Cornick said: "The Race for Life was good and the team did amazing. "However, it was difficult, because Katy was supposed to be there to support them." Shelly continued: "We wanted to be there to support the team as we knew how much Katy wanted to go so we felt it was our place to be there." Park school teachers are now hoping to make this an annual event to raise money for bone cancer research. Claire mentioned: "Katy's mum Shelly said that she is going to do the Kiltwalk next year specifically for bone cancer and, all being well, 'Katy's Krew' will join her. "We are hoping to do something similar now annually. "Shelly says she is going to fundraise in Katy's name from now on and she asked if she could use the name 'Katy's Krew' for all fundraising activities in the future. We would be more than honoured for this to happen." Shelly is determined to join Katy's teachers to raise money for the Bone Cancer Research Trust. She explained: "I have asked that all money raised in the future fundraisers goes straight to the Bone Cancer Trust as only about 1 per cent from Cancer Research goes to fund life-saving research for bone cancer/Ewing Sarcoma. "We are going to set up a fund in Katy's name and all money raised will go to fund trying to find better treatment and hopefully a cure. "As a family, we are also going to fight to try and spread awareness for Ewing Sarcoma and try and fight for change in the amount of money that is not available for it." Park school teachers, together with pupils, also came up with other ideas to remember Katy. Head Teacher, Mrs Carol Anne Burns said: "There will be a 'Katy Hay Award for Resilience' every year in our Celebrating Success Assembly. "Every year on April 29 pupils will also wear blue or pink to remember Katy. We may ask pupils for £1 donation on this day. There are also plans for a stained glass window and a daffodil garden which will be in bloom every April. "We all feel it is important that we never forget Katy and that we celebrate her too short life." To support a fundraiser, please visit here.
Yahoo
05-06-2025
- General
- Yahoo
Hundreds celebrate life of 19-year-old Jack Constable from Norton Fitzwarren
HUNDREDS of people celebrated the life of 19-year-old Jack Constable at a "beautiful" funeral last month, with his parents announcing a memorial fund in his honour. Over 425 people turned out to pay their respects to Jack, from Norton Fitzwarren, who died on April 10 after an 18-month fight with extremely rare Ewing Sarcoma cancer. The service was held at Taunton Crematorium on May 9, with Silk Mills Road temporarily closed as a funeral procession led by 16 supercars travelled through Taunton, marking Jack's "passion for cars" — including Lamborghinis, Ferraris, Aston Martins, and McLarens. Katie Constable, Jack's mother, said: "It was such an amazing funeral, it was just lovely that everyone was there who should have been. On arrival at the crematorium, it was truly overwhelming as so many people had travelled from every direction to support us and, more importantly, to show their respect for Jack and the battle he endured with dignity and grace — including my best friend from Oz. Jack loved our family and his friends and everyone that supported us, he made everyone laugh with his quirky way, and constantly checked in on all around him." She added: "Jack's four best friends and two cousins were pallbearers and carried him into his favourite drum and bass tune, Sweet Carolina. His other besties walked Jack in, and his beautiful girlfriend Poppy walked behind." There were "no dry eyes" at Jack's final goodbye, which included a rendition of All Things Bright And Beautiful and readings from his girlfriend, Poppy Charles, 19, and friends Kira, Dave, and Fin. Katie wishes to share a "special thank you" to trumpeter Elliott Coles, who performed a "wonderful solo of Amazing Grace". The service was then shown "35 pics of Jack's wonderful fulfilled life with everyone that mattered". Jack's adored dogs, two Blue Staffies, Ivy and Olive, attended the ceremony. In his honour, Jack's parents are launching The Jack Constable Memory Fund, which will be the only UK charity dedicated to raising funds for the fight against Ewing Sarcoma cancer. Jack's charity will become his "legacy for eternity", Katie said. Donations can be made at with fundraising events planned. Jack's parents, Katie and Jeremy Constable, said: "As the days and weeks pass, our hearts still in pieces with an emptiness never to be filled, we realise that keeping busy is the wisest option and still with so many wonderful friends holding fundraising events which will now go into The Jack Constable Memory Fund once up and running. "This charity is super important as it will be the only Ewing sarcoma charity in the UK. Jem, myself and the incredible people we have surrounding us will forever more raise money to help other families not feel the pain from broken hearts as we are having to. So please help us with any ideas, and let's together continue to help others as this would be what our super kind-hearted son would want. "We are grateful for all the money raised that helped Jack beyond words during his 18-month battle, and let's pull together and help as many others as possible."
