Latest news with #HopeHouseChildren'sHospice
Powys County Times
03-07-2025
- Entertainment
- Powys County Times
Music festival to be held in memory of young Powys boy
A Powys music festival is set to return in memory of a young boy from the area. The newly named Festival on Ronnie Street will take place in Caersws, on Saturday, July 26, in honour of Ronnie Jones, who died in November 2021 at just 15 months old. Born with complex needs, Ronnie received care at Hope House Children's Hospice before his death, and the festival will raise funds for the charity. The event will be hosted at Seasons Café and will mark what would have been Ronnie's fifth birthday. His parents, Alice and Lewis Jones, who live in Newtown, have held similar celebrations each year since his death to keep his memory alive. Mrs Jones said: "Ronnie Street is a play on Sesame Street as Ronnie loved Elmo, he was his favourite. "The parties have been a lovely way to bring friends, family and community together to celebrate Ronnie's life and remember him. "It's important for Dougie and Mina to know about the big brother they never had the chance to meet, and this party and festival is the best way for them to hear all about him in a fun way. "Every time we drive past Seasons now, they ask if it's time for Ronnie's birthday." She added that the family will be taking a short break from organising the event after this year. Mrs Jones said: "We do have to announce that will be having a bit of a break after this event to focus on some other things, but we will be back in the future. "Make sure you come and enjoy this celebration with us as it will be the last one for a little bit." The festival will feature live music, family entertainment, tractors and supercars, animals, stalls, a wellbeing tent, food, and drink. Entry is £5 for adults, £2 for children over four, and free for under-fours. Tickets will be available on the gate. Mrs Jones thanked the businesses and sponsors who have supported the event. She said: "We have been blown away by generous businesses and supporters who have offered their time and commitment to help us." Hope House fundraiser Bekki Fardoe also thanked the family. She said: "Thank you to Alice and Lewis for all their hard work putting on the last few Party at Ronnie Street's and now the Festival on Ronnie Street. "Their fun days have already raised so much money to support children with life-threatening conditions and their families.
Yahoo
30-05-2025
- Health
- Yahoo
Couple in charity run challenge for son's hospice
A husband and wife are to take part in the Great North Run to raise money for a hospice that helps care for their son. Susie and Chris Seymour are training for the September charity run in Newcastle upon Tyne to fundraise for Hope House Children's Hospice which supports their eight-year-old son Will. Will has an underdeveloped brain causing spasms and a severe visual impairment, his parents said. Not only will the couple, who live near Bridgnorth, be running on their wedding anniversary, they said it would also be their first night away from their son which would be quite emotional. The hospice has helped the family after Will's birth, also offering respite care, prompting them to want to "give something back". Scans after his birth showed his brain had not fully developed, which resulted in him having infantile spasms and the couple being introduced to Hope House which helps families living in Shropshire, Cheshire and Wales. "We have been with Hope House for such a long time and there really is just nothing like it," said Mrs Seymour, 41, who works as a specialist nurse in an adult hospice, said. "The nursing and care we have had there has been absolutely incredible and we have been doing what we can to raise money and give something back to the charity that has helped us so much." She said respite care at the hospice meant she could "immerse" herself in enjoying being Will's mum and "not thinking when his next meds are due". Mrs Seymour said she had been training and had joined Bridgnorth Running Club. So far, she said she was able to run 10km. "This [the race] will be the first night away we've had from Will since he was born, which will be quite emotional," she added. "He will be staying at Hope House as we cross the finish line which I'm sure its going to be quite mix of emotions." Follow BBC Shropshire on BBC Sounds, Facebook, X and Instagram. Couple on fundraising walk for hospice Girl chosen as face of hospice's Christmas campaign Hope House Hospice
