Latest news with #Huntington'sDiseaseSocietyofAmerica
Chicago Tribune
09-05-2025
- Entertainment
- Chicago Tribune
Naperville News Digest: Tickets on sale for Naper Settlement events in October; American Legion Post 43 announces essay contest winners
Tickets for Naper Settlement's fall festivals, including Oktoberfest, All Hallows Eve and Howlin' at the Moon, are on sale now. Oktoberfest will be celebrated Oct. 3 and 4 and features traditional German cuisine, beer and live music, including modern polka, pop and country. The event also includes a stein-holding contest, lawn games and a children's area. Activities are planned for 5 to 10 p.m. Oct. 3 and 3 to 10 p.m. Oct. 4. Tickets are $25 for adults and $15 for children. All Hallows Eve will be held from 5:30 to 9 p.m. Oct. 17-18 with Halloween-themed outdoor activities and family-friendly entertainment. The event is designed for families with children 16 and younger. It includes a zombie maze, dark art gallery, laser tag and a costume contest. Tickets are $25 per person. Howlin' at the Moon, an adults-only celebration, will take place from 5 to 10 p.m. Oct. 24-25. The event is for anyone 21 and older and includes food trucks, adult beverages, a costume contest and live entertainment. Tickets are $25 per person. All three events take place on the grounds of Naper Settlement, 523 S. Webster St., Naperville. Tickets are available at The student winners of Naperville American Legion Post 43's 2025 Americanism Essay Contest, recognized for their exceptional writing and academic dedication, have been announced. Participants were asked to write about 'What is My Favorite National Memorial or Monument' in an essay 500 words or less with a goal of encouraging an appreciation for America's landmarks and their historical significance, a news release said. Winners were chosen for their originality, clarity and compelling arguments. They are: All participants are eligible to apply for college scholarships awarded annually by Naperville post to help fund their academic and leadership development, the release said. To learn more on the contest and other youth programs, go to The Illinois chapter of the Huntington's Disease Society of America will host a fundraising walk at 10:30 a.m. Sunday, May 18, at the Naperville Riverwalk Grand Pavilion, 912 Honorary Sindt Memorial Court. Registration for the 2025 Team Hope Walk will begin at 9:30 a.m. The event is one of many taking part in communities across the country to support the Huntington's Disease Society of America. Team Hope is the society's largest national fundraising event and will take place in more than 100 cities, a news release said. Huntington's disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain and has no cure, the release said. Register to participate at For more information, contact Lillie Paxson at lilliepaxson@ DuPage Children's Museum in Naperville has been given a $5,000 grant from the DuPage Foundation's Next Generation Initiative to benefit the museum's programming and ensure children have access to hands-on learning. The initiative is designed to promote philanthropy in DuPage County among adults in their 20s to 40s. Each year it selects three causes on which to focus and invites nonprofit groups to apply for a grant, a news release said. The grant to the museum kicked off the group's year of giving, which raised money through its Spring Social fundraiser on April 9. Next on the organization's schedule is its Summer Social in June, which will benefit Exodus World Service, which help refugee and immigrant services, the release said.
Yahoo
26-04-2025
- Health
- Yahoo
Family affected by Huntington's disease brings awareness to Siouxland
SIOUX CITY, Iowa (KCAU) — A family with a rare genetic disease is bringing awareness to Siouxland. Deb Conley has Huntington's Disease. According to the Huntington Study Group, four to five people out of 100,000 have the neurological disorder. 'Huntington's is kind of described as a combination of having Alzheimer's, Parkinson's and ALS all together in one,' Angie Conley, Deb's daughter-in-law, said. It is a genetic disorder, and Deb Conley's father and grandfather passed away from the disease. Norm Waitt Sr. YMCA opens new Early Learning and Youth Development Center 'It most commonly occurs to people in their thirties and forties, is when they start showing symptoms,' Angie said. 'Symptoms can be either kind of psychically and then they can have like some subtle personality changes. Other people show more cognitive executive skills type of changes. The career part of it, which is kind of your motor symptoms, you can have loss of coordination and movement, swallowing, talking, that type of thing.' There's a 50 percent chance a child of a parent with Huntington's will inherit the disease. Deb's son — Angie's husband — was recently diagnosed. 'He wasn't showing a lot of like the motor symptoms that spurred more recent,' Angie said. 'It was really difficult, but it also explained a lot for him. And it kind of put things into perspective for our family.' Despite the challenges the family faces, they say hope gets them through each day. 'It's a little more of a depressing type of disease, you know, having the disease if I didn't have my faith,' Deb said. The Conleys want to inform others about the disease and help fund research. On May 3, there will be walk for Huntington's disease awareness in Le Mars at Cleveland Park. 2nd annual Breakfast by the Bridge event raises awareness of youth homelessness 'We are doing a walk for hope for Huntington's disease,' Angie said. 'It's put on by the Huntington's Disease Society of America.' Research into Huntington's disease has improved how we understand the condition. 'It's changed over the years. when my grandpa was diagnosed, an autopsy was the only way you could find out. but now we've advanced so far in knowing what gene it is,' Deb said. Click this link if you want to know more about the Huntington's Disease Society of America's Iowa Statewide Team Hope Walk and want to register for the walk in Le Mars. Copyright 2025 Nexstar Media, Inc. All rights reserved. This material may not be published, broadcast, rewritten, or redistributed.
Yahoo
11-04-2025
- Health
- Yahoo
Fundraiser in support of Huntington's Disease happening at Oak Mountain
PELHAM, Ala. (WIAT)– Huntington's Disease Society of America is hosting its 2025 Team Hope Walk on April 19 at Oak Mountain State Park. All proceeds from this event will go toward improving the lives of those affected with Huntington's Disease and their families. Huntington's Disease is a genetic disorder that causes the nerve cells in the brain to breakdown. Around 41,000 Americans are affected, while a further 200,000 are at risk. The children of those that suffer from Huntington's have a 50/50 chance of developing Huntington's. There is no cure. For registration and more information, click here. Copyright 2025 Nexstar Media, Inc. All rights reserved. This material may not be published, broadcast, rewritten, or redistributed.
