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Syrian child with rare genetic disease begins treatment at Al Jalila Hospital in Dubai
Syrian child with rare genetic disease begins treatment at Al Jalila Hospital in Dubai

Gulf Today

time04-07-2025

  • Health
  • Gulf Today

Syrian child with rare genetic disease begins treatment at Al Jalila Hospital in Dubai

The family of Yaqeen Ibrahim Kanaker, a Syrian child, confirmed that she began treatment on Thursday at Al Jalila Children's Hospital, which is part of Dubai Healthcare City. This was a swift response to the directives of His Highness Sheikh Mohammed Bin Rashid Al Maktoum, the Vice President and Prime Minister of the UAE and Ruler of Dubai. Yaqeen's father told "Al Khaleej", "We started Yaqeen's treatment at Al Jalila Hospital, where we found that the entire medical staff were treating her with a high level of care. They are working to complete all the necessary assessments in preparation for the treatment plan." He added, "His Highness Sheikh Mohammed Bin Rashid Al Maktoum's humanitarian gesture will never be forgotten and will remain etched in our memories for as long as we live. This is not surprising given the UAE leadership's numerous urgent relief initiatives to assist those in need." He further pointed out that His Highness has always supported and backed every person in need in the country, setting an example in the fields of charity and humanitarian giving. Yaqeen's mother, whose little girl suffering from spinal muscular atrophy — a rare genetic disease requiring urgent treatment, expressed her happiness on the start of her daughter's treatment at Al Jalila Hospital. She thanked His Highness Sheikh Mohammed Bin Rashid Al Maktoum for his generosity and for taking a noble and humanitarian stance in supporting Yaqeen's treatment. She also expressed her gratitude for the donation, saying that it reflects His Highness's commitment to alleviating suffering and his boundless support for humanity. She added that his initiatives have had a profound impact on the lives of many people in the UAE and beyond. With the support of friends, the Kanaker family launched a moving appeal through the International Charity Organisation. In a moving video, Yaqeen's uncle urged the UAE and Arab leaders to donate in order to save the child's life, emphasising that time is running out and treatment is urgent. In 2021, Sheikh Mohammed undertook to provide for the medical treatment of an 18-month-old Iraqi girl suffering from spinal muscular atrophy. The girl's mother had posted a video to Sheikh Mohammed, in which she asked him to provide for the treatment of her daughter in Al Jalila Hospital in Dubai. She said that her child was suffering from a rare disease and muscle atrophy that may reach the bronchi and turn her into a doll. According to preliminary information, the treatment is one of the most expensive treatments in the world and its cost may reach Dhs8 million. Linking her appeal to Sheikh Mohammed to the Hope Probe, the mother said: 'I arrived in the UAE when the Hope probe reached Mars. I hope that you can meet my need.' The generous Dubai Ruler has always stands up for humanitarian situation. In June 2020, Sheikh Mohammed covered the expenses of a surgery of an Indian child in Dubai. Pritvik Sinhad, 15, who was suffering from kidney failure. Sheikh Mohammed sent a message to Pritvik. He said, 'To my dear Pritvik, this is a small gesture from me to you to remind you that you are here at home and that you are in safe hands, and I will pray to God to keep you in good health and safe… keep smiling little warrior.' The message was accompanied by a bouquet of flowers and a personal gift. Pritvik said that the gesture of Sheikh Mohammed Bin Rashid means a lot to him.

Dubai Ruler funds Dh7 million treatment to save girl's life after emotional plea
Dubai Ruler funds Dh7 million treatment to save girl's life after emotional plea

Khaleej Times

time03-07-2025

  • Health
  • Khaleej Times

Dubai Ruler funds Dh7 million treatment to save girl's life after emotional plea

A Syrian father who made a desperate plea to the UAE community for help in raising Dh7 million to save his daughter's life has now expressed heartfelt gratitude after receiving support from the most unexpected quarters. The Kanaker family, with the backing of friends, launched an emotional appeal through the International Charity Organisation. In an emotional video, Yaqeen Ibrahim Kanaker's uncle made a heartfelt appeal for donations from UAE residents and Arab leaders, stressing that time was running out and her treatment was urgently needed. Another social media post read: 'Your support is needed to help cover the remaining amount for the child Yaqeen,' he said. "We are up to the challenge, Zayed's children! May God grant you and me the reward for your support." Their calls for help quickly went viral on social media. Within hours, the unimaginable happened. Help came from none other than Sheikh Mohammed bin Rashid Al Maktoum, Vice-President and Prime Minister of the UAE and Ruler of Dubai. The Dubai Ruler responded to the appeal, announcing that he would fully cover the cost of the treatment, bringing hope and immense relief to the family. The child's father, Ibrahim Kanaker, confirmed that the office of Sheikh Mohammed bin contacted him directly and informed him that he would cover all of Yaqeen's treatment costs. Rare and serious genetic disorder Yaqeen suffers from spinal muscular atrophy (SMA), a rare and serious genetic disorder that affects muscle strength and movement. Her condition required urgent treatment and a staggering cost of Dh7 million. The treatment is available at a limited number of hospitals worldwide, including Al Jalila Children's Hospital in Dubai. Spinal muscular atrophy (SMA) is a group of genetic diseases that damage and kill motor neurons, leading to muscle weakness and atrophy. These motor neurons are located in the spinal cord and brainstem and control movement in various muscles. SMA affects individuals of all ages, but the most severe forms are typically diagnosed in infancy. SMA is not curable, but early diagnosis and treatment can significantly impact the course of the disease Treatment in Al Jalila Children's Hospital Yaqeen has been admitted to Al Jalila Children's Hospital in Dubai, where she is undergoing all medical tests, including genetic and antibody screening. A specialised medical team is conducting necessary assessments in preparation for her treatment plan, which includes administering gene therapy and closely monitoring her condition to ensure the best possible outcome. Dubai Ruler sponsoring life-saving treatments This is not the first time Sheikh Mohammed has stepped in to sponsor life-saving treatment — his generosity reflects a deep commitment to humanitarian values and aligns with the 2025 'Year of Community' initiative announced by President Sheikh Mohamed bin Zayed Al Nahyan. In March 2021, Sheikh Mohammed responded to an emotional video of an Iraqi mother, crying and asking for help to fund Dh8 million treatment to save her 19-mont-old girl's life. Baby Laveen Jabbar Al Kutyashi received the genetics treatment for spinal muscular atrophy successfully at Al Jalila Children's Specialty Hospital. The therapy - which includes a one-time infusion of the drug Zolgensma (AVXS-101) - is considered the world's most expensive treatment. Sheikh Mohammed sponsored the entire treatment when 15-year-old Fatima Ahmed Hassan was diagnosed with sarcoma cancer. She and her family were overwhelmed, until hope came from the highest level. After months of intensive treatment, Fatima is now cancer-free. The Sheikh's interventions in providing life-saving medical care to individuals who would otherwise not have access to it, particularly children, have been widely recognised. The Al Jalila Foundation, which is supported by Sheikh Mohammed, also plays a significant role in advancing medical research and providing treatment for various health conditions, especially children.

UAE, Syrian Presidents exchange Eid greetings
UAE, Syrian Presidents exchange Eid greetings

Gulf Today

time10-06-2025

  • Politics
  • Gulf Today

UAE, Syrian Presidents exchange Eid greetings

The UAE President His Highness Sheikh Mohamed Bin Zayed Al Nahyan on Sunday received a phone call from Ahmad Al Sharaa, President of the Syrian Arab Republic, during which they exchanged Eid Al Adha greetings. Both leaders conveyed their warm wishes for health and happiness to all, praying that the occasion would bring blessings, peace and prosperity to their peoples and to both countries. They also expressed their hopes for continued development and growth, and for lasting security, stability and wellbeing across the Muslim world and wider international community. The call also touched on the close relations between the UAE and Syria and ways to strengthen cooperation in a manner that serves the interests and aspirations of both nations. Recently, His Highness Sheikh Humaid Bin Rashid Al Nuaimi, Member of the Supreme Council and Ruler of Ajman, directed the International Charity Organisation (ICO) to intensify its relief and humanitarian efforts in Syria, in light of the difficult conditions affecting many areas there. During a gathering at the Royal Court, he was briefed on the Organisation's efforts across various humanitarian fields, as well as its programmes aimed at supporting those living under harsh conditions in certain regions in Syria, and assisting refugees and displaced persons in several other countries. This came during a meeting between the Ruler of Ajman and Dr Khalid Abdulwahab Al Khaja, Secretary-General of the ICO, along with the accompanying delegation. He expressed the UAE's full solidarity with the Syrian people, affirming the nation's unwavering support during these challenging times and its readiness to provide all possible forms of assistance to help alleviate their suffering. He stated that such supportive and compassionate stances towards brothers, sisters, and friends in times of crisis are not new to the leadership and people of the UAE. Rather, they are a continuation of the humanitarian legacy established by the late Sheikh Zayed Bin Sultan Al Nahyan, who was always among the first to extend a helping hand to countries affected by disasters and wars around the world. WAM

Bakery supplies reach Gaza as part of 'Operation Chivalrous Knight 3'
Bakery supplies reach Gaza as part of 'Operation Chivalrous Knight 3'

Dubai Eye

time23-05-2025

  • Politics
  • Dubai Eye

Bakery supplies reach Gaza as part of 'Operation Chivalrous Knight 3'

A UAE aid convoy has delivered essential supplies to restart bakeries in the Gaza Strip as part of Operation Chivalrous Knight 3 campaign to tackle worsening famine and humanitarian crisis. Bakeries backed by the UN's World Food Programme would produce the bread and the agency's staff would hand it out. The campaign is supported by the International Charity Organisation. On Wednesday, the UAE said it will deliver humanitarian aid to Gaza following an agreement with Israel. It will address the needs of 15,000 civilians, in the first phase. Israel has been forced to lift the 11-week aid blockade under mounting international pressure. Several bakeries in Gaza were forced to shut down due to depleting flour supplies.

Bakery supplies reach Gaza as part of UAE's 'Operation Chivalrous Knight 3'
Bakery supplies reach Gaza as part of UAE's 'Operation Chivalrous Knight 3'

Gulf Today

time22-05-2025

  • General
  • Gulf Today

Bakery supplies reach Gaza as part of UAE's 'Operation Chivalrous Knight 3'

A humanitarian aid convoy has arrived in the Gaza Strip under Operation Chivalrous Knight 3, supported by the International Charity Organisation, to urgently ease the population's growing hardship. The convoy delivered flour shipments to restart bakeries that had ceased operations due to a shortage of essential supplies, in an effort to ease the worsening famine and humanitarian crisis. This delivery is part of the ongoing relief efforts under Operation Chivalrous Knight 3 to address the crisis in the Gaza Strip, following the closure of border crossings for over two months, which halted relief operations and blocked the entry of basic goods, resulting in the shutdown of bakeries. The convoy reflects the UAE's ongoing humanitarian commitment under Operation Chivalrous Knight 3, which aims to deliver urgent assistance amid the deepening crisis, with a focus on essential needs, particularly bread, a daily staple in critical shortage.

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