Latest news with #PWS
The Irish Sun
03-07-2025
- Entertainment
- The Irish Sun
Katie Price reveals major update on son Harvey's future after being ‘kicked out' of £350k a year college
KATIE Price has opened up about her son Harvey's future after being "kicked out" of his £350k a year college. Harvey, 22, was born with ADHD , autism , genetic condition Prader-Willi Syndrome, and septo-optic dysplasia, which causes blindness. 3 Katie Price has revealed her son Harvey's future after being 'kicked out' of college Credit: Getty 3 The former glamour model said her son is moving into independent living Credit: Getty Now former glamour model Katie said: "Harvey is doing the countdown for his new place. "He's got his leavers ceremony where they give out certificates and then it's the 'real world' Mr Harvey Price." READ MORE ON KATIE PRICE The mum-of-five continued on the Katie Price Show podcast: "I've found him a place in Southampton which is temporary. "It's got five other adults in it. "Then he moves to his place in October, which is Little Hampton, which will be nearer to be. "He's going from college to independent living." Most read in Celebrity Katie previously said: "Harvey is supposed to be moving in four-and-a-half weeks, they've changed management and said they won't be able to cater for Harv, because he's too difficult. Katie Price reveals her 'most painful' surgery EVER - just days before getting more filler in her bum "So now I've got to find another placement for him... so yeah, more drama to deal with." Later in the show, she said: "We worked months and months for that and he was told four-and-a-half weeks before that he couldn't go there, and Harvey has been doing the countdown. "Well it's stressful because you want the right thing for your child and it is a lot of time and effort to go back and do more meetings, more forms, it is very time-consuming because you want the best for your child." Finding the right care for Harvey has been a constant issue for Katie since her eldest reached adulthood. Last year she had another run-in with a local authority over a place at a specialist college after a report allegedly found Harvey to have "no health issues". Twice-bankrupt Katie, who lived three hours away in Horsham, West Sussex, appealed the decision. Speaking on an episode of her podcast last spring, she said: "They've given me three months - he has to find somewhere else by July. "With someone like Harvey, you need a transitional move, you need to do it slowly." She added: "I'm trying to find somewhere nearer for Harvey, but three months isn't a long time." What is Prader-Willi syndrome? PWS is a genetic condition that can impact muscle tone, sexual development and the function of the nervous system. As well as this, those with Prader-Willi syndrome are more likely to have learning difficulties. Often, it also sparks a constant desire to eat food and a permanent feeling of hunger which leads to child obesity. However, the syndrome is very rare, with the NHS estimating that it affects "no more than one in every 15,000 children born in England". What causes Prader-Willi syndrome? Those with PWS have a genetic defect on chromosome number 15. In around 70 per cent of cases, some of the DNA information that's inherited from the father is missing, which is referred to as "paternal deletion". Other cases occur when a child has two copies from their mother and none from their father. The condition is obtained purely by chance, but those who have one child with PWS have a less than 1 per cent chance of the next one being affected. 3 Finding the right care for Harvey has been a constant issue for Katie Credit: Splash
Scottish Sun
03-07-2025
- Entertainment
- Scottish Sun
Katie Price reveals major update on son Harvey's future after being ‘kicked out' of £350k a year college
KATIE Price has opened up about her son Harvey's future after being "kicked out" of his £350k a year college. Harvey, 22, was born with ADHD, autism, genetic condition Prader-Willi Syndrome, and septo-optic dysplasia, which causes blindness. Advertisement 3 Katie Price has revealed her son Harvey's future after being 'kicked out' of college Credit: Getty 3 The former glamour model said her son is moving into independent living Credit: Getty He was previously accepted into a £350,000-a-year residential college, but in February Harvey was kicked out for being "too difficult". Now former glamour model Katie, 47, has revealed her eldest child will be leaving college this month and going into independent living. Katie said: "Harvey is doing the countdown for his new place. "He's got his leavers ceremony where they give out certificates and then it's the 'real world' Mr Harvey Price." Advertisement The mum-of-five continued on the Katie Price Show podcast: "I've found him a place in Southampton which is temporary. "It's got five other adults in it. "Then he moves to his place in October, which is Little Hampton, which will be nearer to be. "He's going from college to independent living." Advertisement The 21-year-old has Prader-Willi Syndrome, a complex condition that causes obesity and learning difficulties. He is also autistic and partially blind. Katie previously said: "Harvey is supposed to be moving in four-and-a-half weeks, they've changed management and said they won't be able to cater for Harv, because he's too difficult. Katie Price reveals her 'most painful' surgery EVER - just days before getting more filler in her bum "So now I've got to find another placement for him... so yeah, more drama to deal with." Later in the show, she said: "We worked months and months for that and he was told four-and-a-half weeks before that he couldn't go there, and Harvey has been doing the countdown. Advertisement "Well it's stressful because you want the right thing for your child and it is a lot of time and effort to go back and do more meetings, more forms, it is very time-consuming because you want the best for your child." Finding the right care for Harvey has been a constant issue for Katie since her eldest reached adulthood. Last year she had another run-in with a local authority over a place at a specialist college after a report allegedly found Harvey to have "no health issues". His time at £350,000-a-year National Star College, Gloucestershire came under threat as a result. Advertisement Twice-bankrupt Katie, who lived three hours away in Horsham, West Sussex, appealed the decision. Speaking on an episode of her podcast last spring, she said: "They've given me three months - he has to find somewhere else by July. "With someone like Harvey, you need a transitional move, you need to do it slowly." She added: "I'm trying to find somewhere nearer for Harvey, but three months isn't a long time." Advertisement What is Prader-Willi syndrome? PWS is a genetic condition that can impact muscle tone, sexual development and the function of the nervous system. As well as this, those with Prader-Willi syndrome are more likely to have learning difficulties. Often, it also sparks a constant desire to eat food and a permanent feeling of hunger which leads to child obesity. However, the syndrome is very rare, with the NHS estimating that it affects "no more than one in every 15,000 children born in England". What causes Prader-Willi syndrome? Those with PWS have a genetic defect on chromosome number 15. In around 70 per cent of cases, some of the DNA information that's inherited from the father is missing, which is referred to as "paternal deletion". Other cases occur when a child has two copies from their mother and none from their father. The condition is obtained purely by chance, but those who have one child with PWS have a less than 1 per cent chance of the next one being affected.
Irish Independent
04-06-2025
- General
- Irish Independent
Family of Wicklow girl (8) with rare genetic condition overwhelmed by support
Stella is the daughter of Anna and Conor Leonard of Moneystown and shortly after her birth she was diagnosed with Prader-Willi Syndrome (PWS), which is a genetic condition caused by missing or faulty genes on chromosome 15 and is characterised by a range of physical, cognitive, and behavioural symptoms. 'Team Stella' organised a fundraising coffee morning and raffle, which took place on Sunday in Moneystown Community Hall, which ended up raising over €7,500 for the Prader-Willi Syndrome Association of Ireland. Stella's mother Anna said: 'Words cannot express how much everyone's kindness and support mean to us. From the bottom of our hearts, thank you to everyone who donated, helped, and joined us on the day. 'Stella hasn't stopped talking about it, and we're so grateful for everything. It went beyond what we could have imagined. What started as a small community gathering turned into an amazing display of support, love, and generosity.' The morning was filled with fruit, cakes and bakes, while the talented Esther from 'The Risky Chicks' also put on a special performance. All the kids in attendance had a blast with the play corner—painting stones, tattoos and playing games, while the sweet and popcorn shop proved a massive hit. Anna stated: 'Possibly the most cherished part of the morning was Stella's calm corner, where people could take a moment to relax. Stella truly made the most of this space.' She added: 'What made this day even more special was the incredible turnout. We never expected such a large gathering, and it was heartening to see so many people coming together. The community spirit was truly infectious. We were especially moved by the support from Stella's friends with PWS, who travelled from Kildare, Greystones, and Wicklow just to be with us.' 'Team Stella' also offers a huge thanks to everyone who ensured the event ran smoothly, whether it was selling raffle tickets, assisting with the clean up, or lending a hand wherever needed. 'We'd also like to express our heartfelt thanks to the Timmons and Leonard families for their incredible support, and to principal Ms Morris and deputy principal Ms Durston, of Moneystown National School, for looking after everyone with teas and coffees, and a special thank you to Bruno, our teddy mascot, for keeping everyone entertained and spreading even more fun throughout the day,' said Anna. Local businesses also generously donated some great raffle prizes, which ensured that everyone left the coffee morning with a smile on their face.
New Straits Times
03-06-2025
- Entertainment
- New Straits Times
#SHOWBIZ: Ejen Ali sequel collects RM34.2mil at box office in just 11 days
KUALA LUMPUR: Ejen Ali The Movie 2 (EATM2) has officially made history, raking in over RM34.2 million in just 11 days, shattering the box office record of its predecessor. This achievement also makes EATM2 the highest-grossing local animated film in the shortest amount of time. The movie, presented by Primeworks Studios (PWS) and WAU Animation, in collaboration with Komet Productions, has also surpassed the earnings of several international productions released in May 2025, such as Thunderbolts, Mission: Impossible, and Lilo & Stitch. A recent statement by the producers said, "This proves the prowess of local productions in the face of fierce cinematic competition." It added that to date, over 2 million viewers have flocked to see EATM2. "This remarkable success is driven by an extraordinary turnout at cinemas, establishing EATM2 as the top choice for families throughout the school holidays, which began on May 29. "Many viewers have shared that they've watched the film more than once and are excited to encourage other family members to join them for a fun holiday outing." This success also reflects a positive shift in the reception of local animated films, which are increasingly gaining popularity with the general public. The film's director, Usamah Zaid Yasin, commented, "We poured our hearts into creating this sequel to meet the expectations of loyal fans who have long awaited Ejen Ali's next mission." "Our aim wasn't just to make Malaysian animation competitive with international titles. The audience's reactions—their tears, laughter, and applause in the cinema—are the most precious gifts to us and truly encourage us to continue expanding the world of Ejen Ali's storytelling. "To all the agents who have watched it multiple times, thank you for your continued support of EATM2 in cinemas," he said. Meanwhile, Media Prima Television Networks and Primeworks Studios CEO, Nini Yusof, also expressed gratitude for the new record achieved. "We are incredibly grateful and touched by the overwhelming response to Ejen Ali The Movie 2. "This RM34.2 million collection is more than just a number; it symbolises the confidence of Malaysians in the quality of local animation productions and the efforts of our local talent. "Thank you for continuing to believe in Ejen Ali's mission," she said.
Daily Mirror
02-06-2025
- Health
- Daily Mirror
UK landmarks glow orange to raise awareness of rare genetic condition
London's Tower 42, Cardiff Castle, The Mersey Gateway Bridge and Green's Windmill in Nottingham were among the buildings to 'Glow Orange' to highlight Prader-Willi Syndrome (PWS) This weekend saw some of the UK's most iconic landmarks bathed in light to raise awareness for a rare complex genetic condition affecting around 2,000 people in the UK. The illumination lasted from sunset on Friday until sunrise Saturday morning, across 17 different landmarks, marking the conclusion of Prader-Willi Awareness month in May. Landmarks such as London's Tower 42, Cardiff Castle, The Mersey Gateway Bridge and Green's Windmill in Nottingham were among those glowing orange to spotlight Prader-Willi Syndrome (PWS). Southend Civic Centre, Worcester's Guild Hall and Edinburgh's Camera Obscura and World of Illusions also shone bright in an orange hue. Nigel Birrell, CEO of Lottoland, the company behind the activation and a proud charity partner, expressed: "The Prader-Willi Syndrome Association (PWSA UK) is a cause that's very personal to me, and I've been a long-time admirer of the incredible work they carry out. "It's been truly inspiring to witness so many landmarks across the country light up in support of PWS awareness - the level of engagement has really touched us." For the second year running, PWSA UK and FPWR UK (Foundation for Prader-Willi Research UK) have collaborated to plan and organise several events, one of which was held at the House of Lords on 14th May. Held in the capital city, it featured speeches from both charities and members of the PWS community who shared their experiences of living with the condition. The event also offered information to help people understand the complexities of PWS. The objective of the events was to raise awareness and understanding of the rare condition, which triggers an overpowering and uncontrollable urge to eat that can be life-limiting, as well as causing learning and physical difficulties. They hope that a better understanding will lead to more effective support which will save money and lives. The charities are also collectively utilising the disorder's initials to help people identify key issues associated with the condition: P - Persistent hunger: can lead to life-threatening obesity. W - Warning signs absent: typical health warning signs are absent for people with PWS. S – Specialist Care: people with the condition need round-the-clock supervision. Jackie Lodge from PWSA UK and Catherine Shaw from FPWR UK released a joint statement. They said: "We're delighted that PWSA UK and FPWR UK have come together again for PWS month to raise awareness for such an important cause." "We want to generate as much awareness about PWS as possible and by these buildings and landmarks lighting up orange it is a fantastic way to do so, on top of the other events that have taken place this month. We're really grateful to these buildings for shining a light on this important cause."
