Latest news with #S.G.V.
Yahoo
03-06-2025
- General
- Yahoo
4-year-old girl with life-threatening illness and her mom granted humanitarian parole for one year
Following a public plea for deportation relief, a young girl with a life-threatening medical condition and her mother will be allowed to remain in the U.S. Deysi Vargas, the mother of the 4-year-old girl, received a notice Tuesday morning saying that her and her daughter's humanitarian parole had been approved for one year, the family's lawyers said. In April, the family unexpectedly received notice from the Department of Homeland Security that their parole and work authorization had been terminated. 'If you do not depart the United States immediately you will be subject to potential law enforcement actions that will result in your removal from the United States — unless you have otherwise obtained a lawful basis to remain here,' the notice, which was obtained by NBC News, read. The family and their attorneys at Public Counsel, the law firm representing them, talked at a news conference last week about what the revocation could mean for the 4-year-old's health. 'If they deport us and take away my daughter's access to her specialized care, she will die,' Vargas said in her native Spanish. Deysi's daughter, who is being identified only by the initials S.G.V., has short bowel syndrome, which affects the small intestine and causes problems absorbing nutrients from food. As a result, she requires daily treatment to get the proper nutrition, using a portable backpack when she's not home, according to the family and attorneys. The family's lawyers said S.G.V.'s equipment cannot travel outside of the U.S., with few places outside the country able to administer the treatment in the first place. Both S.G.V. and her mother were born in Mexico and entered with the girl's father in July 2023 through the CBP One app, after which the family was granted humanitarian parole. The family's humanitarian parole was set to expire at the end of July, but Vargas was working to get it extended. After the news conference last week, a senior DHS official told NBC News that the family was not 'actively being deported' and that the family's May 14 application with U.S. Citizenship and Immigration Services was 'still being considered.' This article was originally published on
Yahoo
03-06-2025
- General
- Yahoo
Bakersfield girl who faced deportation and loss of lifesaving medical care is allowed to stay in U.S.
The family of a 4-year-old Bakersfield girl with a rare medical condition has been granted humanitarian protection from deportation, allowing her to continue receiving lifesaving treatment in the United States. The plight of the girl, whom The Times has identified by her initials, S.G.V., drew public outrage and galvanized dozens of lawmakers to advocate on her behalf. The girl and her parents, who are from Mexico, originally received temporary permission to enter the U.S. legally through Tijuana in 2023. The Trump administration had rescinded the legal protections of S.G.V. and her parents, leaving them vulnerable to deportation. Her doctor at Children's Hospital Los Angeles said she could die within days of losing her medical care for short bowel syndrome, a condition that prevents her body from completely absorbing nutrients from food. 'By moving quickly, the agency has ensured that a four‑year‑old girl can continue receiving the specialized medical treatment that keeps her alive,' said the family's attorney Rebecca Brown of the nonprofit Public Counsel. 'However, many families still face harm under the sweeping policy to do away with humanitarian parole. We ask the government to ensure that no one be put in harm's way." Read more: 4-year-old Bakersfield girl facing deportation could die within days of losing medical care Last week, 38 congressional Democrats, including California Sens. Alex Padilla and Adam Schiff, condemned the termination of the family's status and urged the Department of Homeland Security to reinstate it. "Without action, S.G.V. will die," the lawmakers wrote May 29 to DHS Secretary Kristi Noem. "We urge a prompt response from your Department and a swift decision to extend this family's legal status in the U.S." The lawmakers wrote that the family's situation "clearly meets the need for humanitarian aid." In a letter Monday to the family and their attorney, acting field office director Carmen Paniagua of U.S. Citizenship and Immigration Services wrote: "This is to advise you that effective June 2, 2025, you have been granted Humanitarian Parole for a period of one year." In April, the girl's mother, Deysi Vargas, received notice from the federal government that their humanitarian protections and permission to work legally had been terminated. The notice told them to leave voluntarily or else 'the federal government will find you.' An online fundraiser for S.G.V.'s care amassed more than $40,000 as of Tuesday. Sign up for Essential California for news, features and recommendations from the L.A. Times and beyond in your inbox six days a week. This story originally appeared in Los Angeles Times.
Los Angeles Times
03-06-2025
- General
- Los Angeles Times
Bakersfield girl who faced deportation, loss of lifesaving medical care, allowed to stay in U.S.
WASHINGTON — The family of a 4-year-old Bakersfield girl with a rare medical condition has been granted humanitarian protection from deportation, allowing her to continue receiving lifesaving treatment in the United States. The plight of the girl, who The Times has identified by her initials, S.G.V., drew public outrage and galvanized dozens of lawmakers to advocate on her behalf. The girl and her parents, who are from Mexico, originally received temporary permission to enter the U.S. legally through Tijuana in 2023. The Trump administration had rescinded the legal protections of S.G.V. and her parents, leaving them vulnerable to deportation. Her doctor at Children's Hospital Los Angeles said she could die within days of losing her medical care for short bowel syndrome, a condition that prevents her body from completely absorbing nutrients from food. Last week, 38 congressional Democrats, including California Sens. Alex Padilla and Adam Schiff, condemned the termination of the family's status and urged the Department of Homeland Security to reinstate it. 'Without action, S.G.V. will die,' the lawmakers wrote May 29 to DHS Secretary Kristi Noem. 'We urge a prompt response from your Department and a swift decision to extend this family's legal status in the U.S.' The lawmakers wrote that the family's situation 'clearly meets the need for humanitarian aid.' In a letter Monday to the family and their attorney, acting field office director Carmen Paniagua of U.S. Citizenship and Immigration Services wrote: 'This is to advise you that effective June 2, 2025, you have been granted Humanitarian Parole for a period of one year.' In April, the girl's mother, Deysi Vargas, received notice from the federal government that their humanitarian protections and permission to work legally had been terminated. The notice told them to leave voluntarily or else 'the federal government will find you.' An online fundraiser for S.G.V.'s care amassed more than $40,000 as of Tuesday.
NBC News
03-06-2025
- General
- NBC News
4-year-old girl with life-threatening illness and her mom granted humanitarian parole for one year
Following a public plea for deportation relief, a young girl with a life-threatening medical condition and her mother will be allowed to remain in the U.S. Deysi Vargas, the mother of the 4-year-old girl, received a notice Tuesday morning saying that her and her daughter's humanitarian parole had been approved for one year, the family's lawyers said. In April, the family unexpectedly received notice from the Department of Homeland Security that their parole and work authorization had been terminated. 'If you do not depart the United States immediately you will be subject to potential law enforcement actions that will result in your removal from the United States — unless you have otherwise obtained a lawful basis to remain here,' the notice, which was obtained by NBC News, read. The family and their attorneys at Public Counsel, the law firm representing them, talked at a news conference last week about what the revocation could mean for the 4-year-old's health. 'If they deport us and take away my daughter's access to her specialized care, she will die,' Vargas said in her native Spanish. Deysi's daughter, who is being identified only by the initials S.G.V., has short bowel syndrome, which affects the small intestine and causes problems absorbing nutrients from food. As a result, she requires daily treatment to get the proper nutrition, using a portable backpack when she's not home, according to the family and attorneys. The family's lawyers said S.G.V.'s equipment cannot travel outside of the U.S., with few places outside the country able to administer the treatment in the first place. Both S.G.V. and her mother were born in Mexico and entered with the girl's father in July 2023 through the CBP One app, after which the family was granted humanitarian parole. The family's humanitarian parole was set to expire at the end of July, but Vargas was working to get it extended. After the news conference last week, a senior DHS official told NBC News that the family was not 'actively being deported' and that the family's May 14 application with U.S. Citizenship and Immigration Services was 'still being considered.'
Time of India
29-05-2025
- Health
- Time of India
What is short bowel syndrome? How serious is it?
When 4-year-old S.G.V. appeared at a recent press conference in Los Angeles, she seemed like any other preschooler—quietly coloring and playing cards. But the backpack strapped to her shoulders told a different story. Inside it was the equipment delivering life-sustaining nutrition directly into her bloodstream, a treatment known as Total Parenteral Nutrition (TPN). S.G.V. lives with short bowel syndrome (SBS), a rare but serious condition that makes her unable to absorb nutrients from food. Without the nightly intravenous nutrition she receives in the U.S., doctors say she would not survive more than a few days. Her case recently drew national attention because of a change to her family's immigration status, which threatens to interrupt the care that keeps her alive. But beyond the legal battle is a far more urgent medical issue: What exactly is short bowel syndrome, and why is it so dangerous? What is Short Bowel Syndrome? According to the Mayo Clinic, short bowel syndrome is a condition in which the body cannot absorb enough nutrients from the food you eat because part of the small intestine is missing or damaged. The small intestine is where most nutrients are absorbed during digestion. When a large portion of it is removed or doesn't function properly, the body can't get enough protein, fat, carbohydrates, vitamins, or minerals to survive. SBS can happen in two ways: A person is born with part of the intestine missing or damaged. A person has to have large sections of the small intestine surgically removed due to conditions like Crohn's disease, cancer, trauma, or blood clots in the intestinal arteries. How does it affect the body? The Cleveland Clinic explains that while the body has some ability to adapt to small intestinal changes, losing too much—especially the jejunum or ileum—makes it very difficult to absorb nutrients. In many cases, the ileum (the final portion of the small intestine) can take over some of the roles of the missing segments. But when too much of the intestine is gone, even that adaptation isn't enough. In infants like S.G.V., this can lead to severe malnutrition, dehydration, and growth failure. Symptoms in children Signs of short bowel syndrome in children include: Chronic diarrhea or loose, watery stool Bloating and excessive gas Fatigue Foul-smelling stool Poor weight gain or failure to grow These symptoms come from the body's inability to digest and absorb essential nutrients, fluids, and electrolytes. How is Short Bowel Syndrome treated? Dietary Changes Children with milder forms of SBS may benefit from frequent small meals, high-calorie foods, and supplements of vitamins and minerals. They may need to avoid certain foods that are hard to digest, such as those high in fat, sugar, or fiber. However, in more severe cases—like S.G.V.'s—diet alone is not enough. Total Parenteral Nutrition (TPN) TPN is a method of delivering nutrients directly into the bloodstream through a special IV catheter, bypassing the digestive system entirely. The fluid contains carbohydrates, protein, fats, electrolytes, and vitamins. This is the primary treatment for children with severe SBS. It is often given overnight for 12–16 hours to allow children to be mobile during the day. As in S.G.V.'s case, some children use portable TPN backpacks, which allow them to attend school or go outside while still receiving nutrition. 'If her treatment is interrupted, she will die within days,' said Gina Amato, the family's attorney, to NBC News. However, long-term use of total parenteral nutrition (TPN) can lead to several serious complications. These include bacterial infections, issues with the intravenous catheter, and blood clots. Over time, TPN may also reduce the body's ability to absorb calcium into the bones, increasing the risk of bone weakening. It can contribute to gallbladder disease, kidney damage, and liver problems. In severe cases, these complications may progress to kidney or liver failure. Enteral feeding (Tube Feeding) Some children also need a feeding tube inserted into the stomach or intestines to get liquid nutrition. This may be used in combination with TPN to encourage the intestines to function as much as possible. Complications of Short Bowel Syndrome Because the body can't absorb nutrients the usual way, SBS comes with serious health risks: Malnutrition and vitamin deficiencies Electrolyte imbalance (sodium, potassium, magnesium) Dehydration Gallstones Kidney stones Liver disease from long-term TPN Infections related to central IV lines In infants, complications like cholestasis (bile backup in the liver) and intestinal failure-associated liver disease are particularly dangerous. One step to a healthier you—join Times Health+ Yoga and feel the change
