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Hans India
21-07-2025
- Health
- Hans India
Cyberabad Commissioner backs ‘Run for SMA 2025' drive
Hyderabad: Cyberabad Police Commissioner Avinash Mohanty, alongside Joint Commissioner Traffic Dr Gajarao Bhupal, has unveiled the official poster for the 'Run for Spinal Muscular Atrophy (SMA)' and extended his support to this vital public health awareness initiative. Avinash Mohanty emphasised that while SMA treatment is important, prevention through awareness and early screening is even more critical. Commending the SCSC Health Forum for organising the 'Run for SMA', he noted that such initiatives are vital, especially given the high cost of treatment. He stated that collective efforts like these reflect a commitment to positive change. Srilakshmi Nalam, Co-founder and Trustee of Cure SMA India, announced that the Cure SMA Foundation of India, a non-profit organisation dedicated to supporting families affected by Spinal Muscular Atrophy (SMA), is organising the third edition of Run for SMA – 2025 on Sunday, 10 August at Gachibowli Stadium. Srilakshmi stressed the necessity for collaboration among medical professionals, research bodies, corporations, and the government to create a sustainable ecosystem for rare disease families in India. While treatment options have recently become available in India, their extremely high cost renders them inaccessible to most. Hence, she added, awareness and prevention, particularly through genetic carrier screening, are crucial to reducing the disease burden in future generations. 'Run for SMA' forms part of the global SMA Awareness Month, observed in August. The run includes timed and non-timed running categories – 21K, 10K, 5K, and a 5K non-timed event – with attractive cash prizes for winners in various categories. Dr Radha Rama Devi, Senior Geneticist and Paediatrician at Rainbow Children's Hospital, Dr Giriraj Chandak, former Chief Scientist at CSIR–CCMB, Naved Alam Khan, CEO, Society for Cyberabad Security Council, and Cure SMA India trustees Srilakshmi and Archana, along with other representatives, were present at the event.
The Hindu
20-07-2025
- Health
- The Hindu
Third edition of ‘Run for SMA' to be held on August 10 at Gachibowli Stadium
The third edition of Run for SMA will be organised by the Cure SMA Foundation of India at Gachibowli Stadium in Hyderabad on August 10. The event is part of the global Spinal Muscular Atrophy (SMA) Awareness Month observed in August. A press conference announcing the event was held at the Cyberabad Commissioner's office, with Commissioner of Police Avinash Mohanty unveiling the poster and extending his support to the awareness initiative. He said that while SMA treatment is important, prevention through awareness and early screening is even more critical. He appreciated the SCSC Health Forum for organising the event and noted that such efforts are essential, especially since treatment is expensive. Srilakshmi Nalam, Co-founder and Trustee of Cure SMA India, said there is a need for collaboration between doctors, research bodies, companies and the government to build a support system for families.
