Latest news with #frontotemporalDementia
New York Times
07-07-2025
- Entertainment
- New York Times
In Tough Times in Alabama, It Helped to Live in a Ballroom
In 2021, Mason McCulley, an actor, felt stuck in Los Angeles as he watched his mother's health decline in Birmingham, Ala., from afar. 'Life was dark,' said Mr. McCulley, 42, noting that his mother was suffering from frontotemporal dementia. 'I was avoiding my mother's illness and her impending death, and I was drinking way too much.' After spending 20 years in Los Angeles, Mr. McCulley, whose recent acting credits include an appearance on the HBO Max streaming series 'The Pitt,' decided to at least take a look at Birmingham real estate. He scheduled a tour of a condominium apartment that was rumored to be a former ballroom in a building from 1924, and as soon as he walked in, he was smitten. The unit had a ceiling that soared to 15 feet and grand, divided-lite windows offering plentiful sunshine and leafy views. It immediately seemed like a place he could picture himself living. 'It was such a magical place that it forced me, in that moment, to go home,' Mr. McCulley said. 'I hoped it would give me a sense of place and help me find myself again.' Want all of The Times? Subscribe.
Fox News
23-06-2025
- Entertainment
- Fox News
Bruce Willis' daughter captures precious moments with her father as family navigates his dementia diagnosis
Bruce Willis' daughter, Tallulah, enjoyed some quality time with her father this weekend. Tallulah, 31, shared a carousel of images on social media after visiting with the "Die Hard" actor on Sunday. Bruce, 70, was diagnosed with frontotemporal dementia in February 2023, shortly after he received an aphasia diagnosis the year before. "Sunday funday at Grams ! Grateful," Tallulah captioned the post shared with her Instagram followers. In one image, Bruce and his youngest daughter shared a sweet embrace. In another photo, Tallulah laughed while holding on to her dad's hand. Tallulah's fiancé, musician Justin Acee, wrapped his arm over Bruce's shoulder as they laughed for a snap. Last week, Bruce's oldest daughter, Rumer Willis, offered more insight into her dad's journey with FTD in a Father's Day tribute to the "Pulp Fiction" actor. "Today is hard, I feel a deep ache in my chest to talk to you and tell you everything I'm doing and what's going on in my life," Rumer captioned an Instagram post. "To hug you and ask you about life and your stories and struggles and successes. I wish I asked you more questions while you could still tell me about it all. "But I know you wouldn't want me to be sad today so I'll try to just be grateful reminding myself how lucky I am that you're my dad and that you're still with me and I can still hold you and hug you and kiss your cheek and rub your head I can tell you stories. I can watch the way your eyes light up when you see Louetta I will be grateful for every moment I have with you." She added, "I love you so much dad happy Father's Day. Sending love to all those who are in the boat with me or have lost their fathers, to the single moms who are the dads too, to my future baby daddy… " FTD is "the result of damage to neurons in the frontal and temporal lobes of the brain," according to the National Institute on Aging. "Many possible symptoms can result, including unusual behaviors, emotional problems, trouble communicating, difficulty with work, or difficulty with walking." Bruce married Emma Heming at their home in Turks and Caicos in March 2009, and they have two daughters, Mabel and Evelyn. The actor was previously married to Demi Moore for 12 years, and the friendly exes have three daughters together: Rumer, Scout and Tallulah. While speaking at the Women's Alzheimer's Movement Forum in Las Vegas last month, the mom of two opened up about the isolating moment that inspired her upcoming book, "The Unexpected Journey." "On the day Bruce got his diagnosis, we left the doctor's office with a pamphlet and a hollow goodbye. No plan, no guidance, no hope, just shock," Heming told the crowd during the forum, per People. "The future we imagined simply vanished, and I was left trying to hold my family together, raise our two young daughters, and care for the man I love while navigating a disease I barely understood." The author will release her book this September. "The book is the roadmap I wish someone had handed me on the day in 2022," she said. "I wrote it for other caregivers who are desperate for answers, aching for support, and wanting to be seen and wondering how they're going to make it through."
Daily Mail
23-06-2025
- Entertainment
- Daily Mail
Bruce Willis' daughter Tallulah shares personal snaps after heartbreaking update on his dementia battle
Bruce Willis ' daughter Tallulah shared some personal snaps after a heartbreaking update regarding his battle with frontotemporal dementia (FTD) and aphasia. The 31-year-old fashion designer took to Instagram on Sunday to post a gallery of snaps as she spent time with her 70-year-old famous father. One of the most intimate snaps showed Tallulah lovingly embrace Bruce who sweetly wrapped her arms around his youngest daughter. Another photo shared the two sharing a laugh together as Tallulah sat on the floor while holding onto the Die Hard star's hand as he sat in a chair. Lastly, Tallulah shared a cute snap of Bruce posing with musician fiance Justin Acee who had a massive smile on his face. She shared the gallery of personal photos: 'Sunday funday at Grams ! Grateful [turtle dove emoji]' This comes as Tallulah's older sister daughter Rumer gave a sad update about her famous father in a Father's Day tribute post. The 36-year-old actress candidly wrote: 'Today is hard, I feel a deep ache in my chest to talk to you and tell you everything I'm doing and what's going on in my life. To hug you and ask you about life and your stories and struggles and successes.' The House Bunny star seemed to make the heartbreaking admission that Bruce was having trouble with his speech and memory. Rumer continued: 'I wish I asked you more questions while you could still tell me about it all. 'But I know you wouldn't want me to be sad today so I'll try to just be grateful reminding myself how lucky I am that you're my dad and that you're still with me and I can still hold you and hug you and kiss your cheek and rub your head I can tell you stories.' She also shared a sweet snap of Bruce with her two-year-old daughter Louetta as she reflected on their bond. Rumer wrote: 'I can watch the way your eyes light up when you see Louetta I will be grateful for every moment I have with you. I love you so much dad happy Father's Day. 'Sending love to all those who are in the boat with me or have lost their fathers, to the single moms who are the dads too, to my future baby daddy… [ red heart emoji]' Rumer was not the only one who got candid about Bruce on the holiday as his wife Emma Heming shared an emotional Father's Day post. On Sunday morning, the 46-year-old actress, who shares daughters Mabel, 12, and Evelyn, 10, with legendary action star paid tribute to her longtime spouse on Instagram. 'Happy Father's Day to all the dads living with disability or disease, showing up in the ways they can and to the children who show up for them,' she captioned a sweet snap of Willis sharing a sweet hug with one of their little girls on the couch. Heming continued: 'What Bruce teaches our girls goes far beyond words. Resilience, unconditional love, and the quiet strength in simply being present. This photo says so much. Love deepens. It adapts. It stays, even when everything else changes.' Still, the mother-of-two admitted that 'these symbolic days stir up a lot' of emotion for her. 'I'm profoundly sad today. I wish, with every cell in my body, that things could be different for him and lighter for our family,' Heming explained. 'As they say in our FTD community, 'It is what it is.' 'And while that might sound dismissive, to me, it's not. It grounds me. It helps me return to the acceptance of what is and not fight this every step of the way like I used to.' Willis, who passionately advocates for patients and caretakers dealing with incurable diseases, concluded her caption by writing: 'Today, let's celebrate the bada** dads, those who are here, and those we carry with us. Onward.' Rumer, 36, shared snaps of she with the 70-year-old action manthroughout the years in a pensive Father's Day tribute post on Sunday On her Instagram Story, Heming shared throwback photos of her husband taking their kids to the park and the Natural History Museum. 'I miss and mourn what was,' she wrote. 'I want it all back.' Last month, Heming was honored by Maria Shriver's Women's Alzheimer's Movement (WAM) at Cleveland Clinic. She received the organization's Caregiving Award for her 'outstanding work in advocating for unpaid family caregivers.' While accepting the honor she reflected on 'the day Bruce got his diagnosis' and how they 'left the doctor's office with a pamphlet and a hollow goodbye.' 'No plan, no guidance, no hope, just shock,' she said. 'The future we imagined simply vanished, and I was left trying to hold my family together, raise our two young daughters, and care for the man I love while navigating a disease I barely understood,' Heming shared. Heming continued: 'I needed someone to look me in the eye and say, "This feels impossible right now, but you will find your footing. You will survive this and you will grow because of it."' 'There's no roadmap or guide to becoming a caregiver,' Heming added. 'We desperately need more education and support resources for those in this 24/7/365 role.' Since publicly announcing her husband's diagnosis in February 2023, Heming has worked tirelessly to share information with others navigating a similar journey. In addition to Mabel and Evelyn, Willis shares three daughters — Rumer, 36, Scout, 33, and Tallulah, 31 — with his ex-wife Demi Moore. Rumer sweetly shared her stepmother's post on her Instagram Story to show her support. In May, Rumer revealed that her daughter, Louetta, who she shares with ex-boyfriend Derek Richard Thomas, is 'obsessed' with her grandfather. 'Even with my dad, given the challenges that he's dealing with, whenever we go over there to visit, his face just lights up and he gets so excited and is so sweet with her,' she told People of her father. 'My family is so incredible with her. I feel so lucky, and she's so lucky. I mean, they are obsessed with her.' Rumer also noted that Louetta is equally close to her grandmother. 'They love each other. I mean, you should see her face light up when they're on FaceTime when we're away,' Rumer gushed of Moore. 'She just gets so excited and it's sweet, and my mom is so incredible with babies. She always has been, and so it's such a delight to see them together,' she raved. The Willis family has remained extremely tight knit despite Demi and Bruce's divorce in 2000 after 13 years of marriage. They celebrate holidays together, along with Hemming, and they have rallied around the Glass actor amid his tragic health battle. Bruce has stepped away from public life after his diagnosis of frontotemporal aphasia in 2022. The condition progressed and the family announced he was suffering from frontotemporal dementia in 2023.
Yahoo
20-06-2025
- Entertainment
- Yahoo
Bruce Willis' wife shares ‘profoundly sad' update on retired actor's health
Emma Heming Willis, wife of Bruce Willis, used Father's Day to share a glimpse at the retired actor's experience with frontotemporal dementia. 'Happy Father's Day to all the dads living with disability or disease, showing up in the ways they can and to the children who show up for them,' she wrote in an Instagram post, which depicted Willis with his face obscured by a hat. Willis' family first shared news of his diagnosis in 2022, stating that the actor was experiencing aphasia, a condition caused by brain damage that impacts a person's ability to communicate and understand written and spoken language. The announcement coincided with his retirement, ending a four-decade career that spanned 100-plus film appearances and earned Willis one Golden Globe and two Primetime Emmys, among other honors. In 2023, Willis' first wife Demi Moore explained on social media that his 'condition has progressed' to frontotemporal dementia, also referred to as FTD. Heming Willis reflected on her husband's updated diagnosis in the Father's Day post, stating that 'these symbolic days stir up a lot.' 'I'm profoundly sad today,' she wrote. 'I wish, with every cell in my body, that things could be different for him and lighter for our family.' But Heming Willis also used the post to share some uplifting messages, and spoke about her husband's presence in the lives of their children; she and the actor share two daughters, in addition to his three daughters with Moore. 'What Bruce teaches our girls goes far beyond words,' she said. 'Resilience, unconditional love, and the quiet strength in simply being present.' Heming Willis ended the post on an uplifting note, encouraging readers to celebrate the fathers in their own lives. 'As they say in our FTD community, 'It is what it is.' And while that might sound dismissive, to me, it's not,' she concluded. 'It grounds me. It helps me return to the acceptance of what is and not fight this every step of the way like I used to. Today, let's celebrate the badass dads, those who are here, and those we carry with us.' Medway street closed amid large police, SWAT presence near cemetery Boston hotel in the running for best pet-friendly hotel in the US, here's how to vote Rafael Devers ghosted Alex Cora last offseason (report) GOP pundit says he knows why Trump must attack Iran, but 'MAGA idiots' will never understand Rafael Devers beef with Kristian Campbell and Red Sox AI story are 'falsehoods' (report) Read the original article on MassLive.
Medscape
17-06-2025
- Health
- Medscape
Epilepsy May Signal Future Dementia Risk
Epilepsy prevalence was significantly higher among people with frontotemporal dementia (FTD) than among those with Alzheimer's disease (AD), a new study showed, with epilepsy occurring in some cases up to 10 years before an FTD diagnosis. METHODOLOGY: In a case-control study in Finland, epilepsy prevalence and antiseizure medicine ( ASM) purchases were compared between 245 patients with FTD (mean age at diagnosis, 65 years; 49% women), more than 1300 patients with AD (mean age, 72 years; 59% women), and more than 2400 individuals matched for age, sex, and location to act as the healthy control group (mean age, 65 years; 49% women). Data were collected from 2010 to 2021, and epilepsy cases were identified using codes from the International Statistical Classification of Diseases and Related Health Problems, 10th Revision (ICD-10). Purchases of ASMs were tracked throughout the study period, and epilepsy prevalence was evaluated at four timepoints: 10 years before the diagnosis of FTD, 5 years before diagnosis, at diagnosis, and 5 years after diagnosis. TAKEAWAY: Both epilepsy prevalence and ASM purchases were significantly greater in patients with FTD than in those in the healthy control group at all timepoints ( P < .001 for both measures). < .001 for both measures). Epilepsy prevalence was significantly higher in patients with FTD than in patients with AD 10 years before ( P = .03), 5 years before ( P = .002), and 5 years after ( P = .05) the diagnosis of FTD. = .03), 5 years before ( = .002), and 5 years after ( = .05) the diagnosis of FTD. The prevalence of ASM use was also significantly higher among patients with FTD than among patients with AD ( P = .004 at 5 years before FTD diagnosis and P < .001 at other timepoints). = .004 at 5 years before FTD diagnosis and < .001 at other timepoints). After adjusting for age at the time of FTD diagnosis, the risk for mortality was not significantly different between patients with both FTD and epilepsy and those without epilepsy. IN PRACTICE: 'It is noteworthy that epilepsy occurred in some patients with FTD already 10 years before their dementia diagnosis, and it was more common in all the examined stages of the disease than previous international studies have reported,' lead investigator Annemari Kilpeläinen, MD, Institute of Clinical Medicine-Neurology, University of Eastern Finland, Kuopio, Finland, said in a press release. The researchers added that 'enhancing knowledge of the comorbidity between epilepsy and FTD could lead to more precise and comprehensive diagnostics and treatment of these conditions as well as new pathophysiologic findings.' SOURCE: The study was published online on June 2 in JAMA Neurology . LIMITATIONS: This study was limited by reliance on ICD-10 codes for classification of epilepsy types and included only two major provinces in Finland. Additionally, epilepsy diagnoses recorded before 1998 may have been missed. DISCLOSURES: This study was part of the Real-World Data Project on Neurodegenerative Diseases, funded by Roche OY. Additional funding was provided by the Kuopio University Hospital, the Finnish Brain Foundation, the Uulo Arhio Foundation, the Finnish Medical Foundation, the Finnish Cultural Foundation, the Wihuri Foundation, and the Sigrid Juselius Foundation. Several investigators reported having ties with various organizations and pharmaceutical companies. Full details are provided in the original article.
