'One day at a time': community rallies around devoted dad burned in kitchen fire
The 32-year-old spent his birthday having surgery at Sydney Royal North Shore Hospital's intensive care unit, after he suffered serious burns in an accidental kitchen fire at Waratah just before 5pm on July 7.
The "gentle, kind, thoughtful, strong" and devoted dad faces several surgeries and a long journey to recovery ahead.
His father, Hugh, told the Newcastle Herald his son suffered burns to 40 per cent of his body, but he's grateful to still have him here.
"To be honest, I'm one of those people who take one day at a time," he said.
"If I think about last week, I'll have a cry; if I imagine what the future might look like, I'll have a cry.
"Not that those things aren't important, but the important thing is just to be here today for him, face whatever it is that's on today, and that's the best we can do. So much worse could have happened."
Mr Bright, his wife Claire and four-year-old daughter Bella live on Coolamin Road, just a few doors down from the police station and less than ten minutes from the local fire station.
Emergency services arrived at the scene as quickly as they could, rushing Mr Bright to John Hunter Hospital with critical injuries into a helicopter that was on standby.
Mr Bright was taken to Royal North Shore Hospital for further specialist treatment, where his condition, while serious, has stabilised.
He had his first surgery last Wednesday and faced a second on Monday.
Mr Bright said he is incredibly grateful to the nurses, doctors and medical staff who have diligently cared for his son.
He described Mr Bright as outgoing, friendly, and passionate about Indigenous and workers' rights.
"He loves the Newcastle Knights, which is almost compulsory here," he said.
The whole family is quite musical, Mr Bright said, and his son loves his death metal, although he "did not get that from his parents", and has previously played bass for local bands.
He ran his personal best at Lake Macquarie Parkrun last month and had taken up rugby league with the Waratah Mayfield Cheetahs.
"Above all, he is just a passionate father, just a really great father," Mr Bright said.
The community has wrapped their arms around the family, offering words of much-needed support, love, song recommendations to play to Mr Bright in the hospital and encouragement in an extremely difficult time.
As of Monday, a GoFundMe to support Mr Bright's family and his ongoing medical costs had raised more than $18,000 in just 20 hours.
Mr Bright said he and the family have been blown away by the outpouring of support.
"You read these stories, thankfully not all the time, about these GoFundMes, and it hasn't really dawned on me yet that Matthew is that person now," he said.
"I'm not in denial about it or anything, but it's just blown me away the level of support we've had, and on that side we're soaking it up at the moment because it's getting us through it."
Every morning, in the Bright family group chat, they send the same words: "From darkness to light. The sun got up. Our precious boy is still with us. He is in the best place for his care. And he has us."
To make a donation click here or visit the GoFundMe website.
WHAT should have been an otherwise quiet night at home took a horror turn for loving husband and father Matthew Bright.
The 32-year-old spent his birthday having surgery at Sydney Royal North Shore Hospital's intensive care unit, after he suffered serious burns in an accidental kitchen fire at Waratah just before 5pm on July 7.
The "gentle, kind, thoughtful, strong" and devoted dad faces several surgeries and a long journey to recovery ahead.
His father, Hugh, told the Newcastle Herald his son suffered burns to 40 per cent of his body, but he's grateful to still have him here.
"To be honest, I'm one of those people who take one day at a time," he said.
"If I think about last week, I'll have a cry; if I imagine what the future might look like, I'll have a cry.
"Not that those things aren't important, but the important thing is just to be here today for him, face whatever it is that's on today, and that's the best we can do. So much worse could have happened."
Mr Bright, his wife Claire and four-year-old daughter Bella live on Coolamin Road, just a few doors down from the police station and less than ten minutes from the local fire station.
Emergency services arrived at the scene as quickly as they could, rushing Mr Bright to John Hunter Hospital with critical injuries into a helicopter that was on standby.
Mr Bright was taken to Royal North Shore Hospital for further specialist treatment, where his condition, while serious, has stabilised.
He had his first surgery last Wednesday and faced a second on Monday.
Mr Bright said he is incredibly grateful to the nurses, doctors and medical staff who have diligently cared for his son.
He described Mr Bright as outgoing, friendly, and passionate about Indigenous and workers' rights.
"He loves the Newcastle Knights, which is almost compulsory here," he said.
The whole family is quite musical, Mr Bright said, and his son loves his death metal, although he "did not get that from his parents", and has previously played bass for local bands.
He ran his personal best at Lake Macquarie Parkrun last month and had taken up rugby league with the Waratah Mayfield Cheetahs.
"Above all, he is just a passionate father, just a really great father," Mr Bright said.
The community has wrapped their arms around the family, offering words of much-needed support, love, song recommendations to play to Mr Bright in the hospital and encouragement in an extremely difficult time.
As of Monday, a GoFundMe to support Mr Bright's family and his ongoing medical costs had raised more than $18,000 in just 20 hours.
Mr Bright said he and the family have been blown away by the outpouring of support.
"You read these stories, thankfully not all the time, about these GoFundMes, and it hasn't really dawned on me yet that Matthew is that person now," he said.
"I'm not in denial about it or anything, but it's just blown me away the level of support we've had, and on that side we're soaking it up at the moment because it's getting us through it."
Every morning, in the Bright family group chat, they send the same words: "From darkness to light. The sun got up. Our precious boy is still with us. He is in the best place for his care. And he has us."
To make a donation click here or visit the GoFundMe website.
WHAT should have been an otherwise quiet night at home took a horror turn for loving husband and father Matthew Bright.
The 32-year-old spent his birthday having surgery at Sydney Royal North Shore Hospital's intensive care unit, after he suffered serious burns in an accidental kitchen fire at Waratah just before 5pm on July 7.
The "gentle, kind, thoughtful, strong" and devoted dad faces several surgeries and a long journey to recovery ahead.
His father, Hugh, told the Newcastle Herald his son suffered burns to 40 per cent of his body, but he's grateful to still have him here.
"To be honest, I'm one of those people who take one day at a time," he said.
"If I think about last week, I'll have a cry; if I imagine what the future might look like, I'll have a cry.
"Not that those things aren't important, but the important thing is just to be here today for him, face whatever it is that's on today, and that's the best we can do. So much worse could have happened."
Mr Bright, his wife Claire and four-year-old daughter Bella live on Coolamin Road, just a few doors down from the police station and less than ten minutes from the local fire station.
Emergency services arrived at the scene as quickly as they could, rushing Mr Bright to John Hunter Hospital with critical injuries into a helicopter that was on standby.
Mr Bright was taken to Royal North Shore Hospital for further specialist treatment, where his condition, while serious, has stabilised.
He had his first surgery last Wednesday and faced a second on Monday.
Mr Bright said he is incredibly grateful to the nurses, doctors and medical staff who have diligently cared for his son.
He described Mr Bright as outgoing, friendly, and passionate about Indigenous and workers' rights.
"He loves the Newcastle Knights, which is almost compulsory here," he said.
The whole family is quite musical, Mr Bright said, and his son loves his death metal, although he "did not get that from his parents", and has previously played bass for local bands.
He ran his personal best at Lake Macquarie Parkrun last month and had taken up rugby league with the Waratah Mayfield Cheetahs.
"Above all, he is just a passionate father, just a really great father," Mr Bright said.
The community has wrapped their arms around the family, offering words of much-needed support, love, song recommendations to play to Mr Bright in the hospital and encouragement in an extremely difficult time.
As of Monday, a GoFundMe to support Mr Bright's family and his ongoing medical costs had raised more than $18,000 in just 20 hours.
Mr Bright said he and the family have been blown away by the outpouring of support.
"You read these stories, thankfully not all the time, about these GoFundMes, and it hasn't really dawned on me yet that Matthew is that person now," he said.
"I'm not in denial about it or anything, but it's just blown me away the level of support we've had, and on that side we're soaking it up at the moment because it's getting us through it."
Every morning, in the Bright family group chat, they send the same words: "From darkness to light. The sun got up. Our precious boy is still with us. He is in the best place for his care. And he has us."
To make a donation click here or visit the GoFundMe website.
WHAT should have been an otherwise quiet night at home took a horror turn for loving husband and father Matthew Bright.
The 32-year-old spent his birthday having surgery at Sydney Royal North Shore Hospital's intensive care unit, after he suffered serious burns in an accidental kitchen fire at Waratah just before 5pm on July 7.
The "gentle, kind, thoughtful, strong" and devoted dad faces several surgeries and a long journey to recovery ahead.
His father, Hugh, told the Newcastle Herald his son suffered burns to 40 per cent of his body, but he's grateful to still have him here.
"To be honest, I'm one of those people who take one day at a time," he said.
"If I think about last week, I'll have a cry; if I imagine what the future might look like, I'll have a cry.
"Not that those things aren't important, but the important thing is just to be here today for him, face whatever it is that's on today, and that's the best we can do. So much worse could have happened."
Mr Bright, his wife Claire and four-year-old daughter Bella live on Coolamin Road, just a few doors down from the police station and less than ten minutes from the local fire station.
Emergency services arrived at the scene as quickly as they could, rushing Mr Bright to John Hunter Hospital with critical injuries into a helicopter that was on standby.
Mr Bright was taken to Royal North Shore Hospital for further specialist treatment, where his condition, while serious, has stabilised.
He had his first surgery last Wednesday and faced a second on Monday.
Mr Bright said he is incredibly grateful to the nurses, doctors and medical staff who have diligently cared for his son.
He described Mr Bright as outgoing, friendly, and passionate about Indigenous and workers' rights.
"He loves the Newcastle Knights, which is almost compulsory here," he said.
The whole family is quite musical, Mr Bright said, and his son loves his death metal, although he "did not get that from his parents", and has previously played bass for local bands.
He ran his personal best at Lake Macquarie Parkrun last month and had taken up rugby league with the Waratah Mayfield Cheetahs.
"Above all, he is just a passionate father, just a really great father," Mr Bright said.
The community has wrapped their arms around the family, offering words of much-needed support, love, song recommendations to play to Mr Bright in the hospital and encouragement in an extremely difficult time.
As of Monday, a GoFundMe to support Mr Bright's family and his ongoing medical costs had raised more than $18,000 in just 20 hours.
Mr Bright said he and the family have been blown away by the outpouring of support.
"You read these stories, thankfully not all the time, about these GoFundMes, and it hasn't really dawned on me yet that Matthew is that person now," he said.
"I'm not in denial about it or anything, but it's just blown me away the level of support we've had, and on that side we're soaking it up at the moment because it's getting us through it."
Every morning, in the Bright family group chat, they send the same words: "From darkness to light. The sun got up. Our precious boy is still with us. He is in the best place for his care. And he has us."
To make a donation click here or visit the GoFundMe website.
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'They would withdraw care': cracks in NDIS costing Hunter families thousands
IT'S the system meant to offer them a safety net, but a funding crackdown is leaving some National Disability Insurance Scheme participants falling through the cracks. NDIS participants are being put at risk with lengthy delays and questionable decisions endangering the lives of those left without funded support and nowhere to go. Hospitals have become a last resort while families and service providers are being stranded with hefty bills into the tens of thousands of dollars. Industry insiders say that a broad-brush approach to a system-wide crackdown on NDIS spending is robbing those who genuinely rely on it. In two separate cases reported to the Newcastle Herald, people living with quadraplegia have had to rely on the goodwill of service providers for hands-on, life-sustaining care. Those service providers, and the families of those individuals, are paying out-of-pocket to ensure those supports remain in place. So far they have been unable to recover those costs due to what they describe as a combination of bureaucratic red tape, a lack of training and oversight, and the unavailability of NDIS staff with the experience, knowledge, or authority to address or escalate issues in a timely way. In the case of 52-year-old Jamie Phillips of Bolton Point, heavily reliant on his partner as well as funded supports, his NDIS journey has been difficult form the start. Karen Johnson, 58, works full-time as well as being Mr Phillips' full-time carer seven nights per week, starting at 4.30pm each day when she gets home from work. Night time care involves hoisting Mr Phillips out of bed and into a chair, onto a commode, in and out of the shower, into fresh clothes and hoisting him back onto the bed. He requires special boots, a CPAP machine, medications at 8pm and 11pm, and a catheter. She is preparing to purchase a $10,000 bed to enable her to sleep in the same room. "For three years he's been living in our loungeroom, he gets dressed there, he gets wheeled through the house naked to get showered, and wheeled back to go to bed," she said. Mr Phillips became a quadraplegic in 2022 after a botched medical procedure almost took his life, she said. He became an NDIS participant in December the same year. "Every plan we've had, we've had an issue with," Ms Johnson said. "It was underfunded or incorrectly funded, then last year his funding fell short. We had two agencies involved, both of them kept working for us without getting paid up until one who we paid because they said if we didn't pay they would withdraw their care." That was a bill for $21,000. The second company, which continued to provide services, has never been paid, she said, to the tune of about $15,000. "They just didn't get their money," Ms Johnson said. "This year Jamie got compensation for medical malpractice, so when we got the compensation, we had to pay back $1.9 million back to NDIS because that's the money they paid for him in the two years prior," she said. According to the civil court, compensation is calculated on the assumption that a quadraplegic has a life expectancy of eight years post-injury, but according to the NDIS it's about 22 years, Ms Johnson said. "So they took the $1.9 million and his funding will be cut down by around about $100,000 per year while he's alive, and so while we we're talking to them about that, that lady said she wasn't involved in the section where we could get our money back, and we've just never heard anything more about it." Mr Phillips has also lost out on occupational therapy due to NDIS-related cuts to allied health services impacting in-home care, Ms Johnson said. Jonathan Castellan, also a quadraplegic, was wheeled into the NDIS office at Charlestown earlier this month by support workers desperate to help him get the funding he needed. Already thousands of dollars out-of-pocket, it has been the dedication of those support workers that has kept Mr Castellan alive. "They didn't seem to understand how he couldn't spend a few days at home by himself," his sister, who did not wish to be named, told the Herald. Mr Castellan, 63, lives with quadraplegia following a spinal cord injury, as well as autism and dysphasia. He is catheterised and requires 24-hour care, but his sister said that due to an escalation in his care needs after a hospital stay, which meant he needed more support overnight, he ran out of funding. While the likelihood that he would run out of funding on that basis had been raised with the NDIS beforehand, delays meant his carers had no choice but to work without pay, she said. "You cannot ring the NDIS and speak to anyone who can actually do anything," an associated carer said. "They can't even escalate it and say to someone that we've got this major problem here - even if it was to release funding so we could continue caring for him until they can sort it out. "They don't read the reports. They will spend more money fighting the wheelchair than it would cost to buy the wheelchair." In both cases, family members and care teams considered hospitalisation as an option, but already hospitals are struggling with aged care and NDIS bedblock, and have pushed back. A spokesperson for the National Disability Insurance Agency (NDIA), which governs the scheme, said the safety and welfare of NDIS participants was its "top priority". "While providers should be spending within a participant's funded support levels, the agency can prioritise requests for further funding, when there is a risk to a participant through a change in their circumstances," the spokesperson said. "In these cases, the NDIA will work closely with participants and review supporting evidence to ensure participant safety." It is understood the NDIA disputes the sequence of events as relayed by family members and support workers, and said that the required level of supporting evidence had not been submitted. Further, while the agency can prioritise requests for increased supports when there is a risk to a participant through a change in their circumstances, early exhaustion of plan funding does not automatically initiate a plan review or the approval of a new NDIS plan. The Herald has reported rising levels of aged care and NDIS bedblock, which has increased by more than 40 per cent across Hunter hospitals since March, further exacerbating the issue as hospitals battle to find enough beds and staff to man them. IT'S the system meant to offer them a safety net, but a funding crackdown is leaving some National Disability Insurance Scheme participants falling through the cracks. NDIS participants are being put at risk with lengthy delays and questionable decisions endangering the lives of those left without funded support and nowhere to go. Hospitals have become a last resort while families and service providers are being stranded with hefty bills into the tens of thousands of dollars. Industry insiders say that a broad-brush approach to a system-wide crackdown on NDIS spending is robbing those who genuinely rely on it. In two separate cases reported to the Newcastle Herald, people living with quadraplegia have had to rely on the goodwill of service providers for hands-on, life-sustaining care. Those service providers, and the families of those individuals, are paying out-of-pocket to ensure those supports remain in place. So far they have been unable to recover those costs due to what they describe as a combination of bureaucratic red tape, a lack of training and oversight, and the unavailability of NDIS staff with the experience, knowledge, or authority to address or escalate issues in a timely way. In the case of 52-year-old Jamie Phillips of Bolton Point, heavily reliant on his partner as well as funded supports, his NDIS journey has been difficult form the start. Karen Johnson, 58, works full-time as well as being Mr Phillips' full-time carer seven nights per week, starting at 4.30pm each day when she gets home from work. Night time care involves hoisting Mr Phillips out of bed and into a chair, onto a commode, in and out of the shower, into fresh clothes and hoisting him back onto the bed. He requires special boots, a CPAP machine, medications at 8pm and 11pm, and a catheter. She is preparing to purchase a $10,000 bed to enable her to sleep in the same room. "For three years he's been living in our loungeroom, he gets dressed there, he gets wheeled through the house naked to get showered, and wheeled back to go to bed," she said. Mr Phillips became a quadraplegic in 2022 after a botched medical procedure almost took his life, she said. He became an NDIS participant in December the same year. "Every plan we've had, we've had an issue with," Ms Johnson said. "It was underfunded or incorrectly funded, then last year his funding fell short. We had two agencies involved, both of them kept working for us without getting paid up until one who we paid because they said if we didn't pay they would withdraw their care." That was a bill for $21,000. The second company, which continued to provide services, has never been paid, she said, to the tune of about $15,000. "They just didn't get their money," Ms Johnson said. "This year Jamie got compensation for medical malpractice, so when we got the compensation, we had to pay back $1.9 million back to NDIS because that's the money they paid for him in the two years prior," she said. According to the civil court, compensation is calculated on the assumption that a quadraplegic has a life expectancy of eight years post-injury, but according to the NDIS it's about 22 years, Ms Johnson said. "So they took the $1.9 million and his funding will be cut down by around about $100,000 per year while he's alive, and so while we we're talking to them about that, that lady said she wasn't involved in the section where we could get our money back, and we've just never heard anything more about it." Mr Phillips has also lost out on occupational therapy due to NDIS-related cuts to allied health services impacting in-home care, Ms Johnson said. Jonathan Castellan, also a quadraplegic, was wheeled into the NDIS office at Charlestown earlier this month by support workers desperate to help him get the funding he needed. Already thousands of dollars out-of-pocket, it has been the dedication of those support workers that has kept Mr Castellan alive. "They didn't seem to understand how he couldn't spend a few days at home by himself," his sister, who did not wish to be named, told the Herald. Mr Castellan, 63, lives with quadraplegia following a spinal cord injury, as well as autism and dysphasia. He is catheterised and requires 24-hour care, but his sister said that due to an escalation in his care needs after a hospital stay, which meant he needed more support overnight, he ran out of funding. While the likelihood that he would run out of funding on that basis had been raised with the NDIS beforehand, delays meant his carers had no choice but to work without pay, she said. "You cannot ring the NDIS and speak to anyone who can actually do anything," an associated carer said. "They can't even escalate it and say to someone that we've got this major problem here - even if it was to release funding so we could continue caring for him until they can sort it out. "They don't read the reports. They will spend more money fighting the wheelchair than it would cost to buy the wheelchair." In both cases, family members and care teams considered hospitalisation as an option, but already hospitals are struggling with aged care and NDIS bedblock, and have pushed back. A spokesperson for the National Disability Insurance Agency (NDIA), which governs the scheme, said the safety and welfare of NDIS participants was its "top priority". "While providers should be spending within a participant's funded support levels, the agency can prioritise requests for further funding, when there is a risk to a participant through a change in their circumstances," the spokesperson said. "In these cases, the NDIA will work closely with participants and review supporting evidence to ensure participant safety." It is understood the NDIA disputes the sequence of events as relayed by family members and support workers, and said that the required level of supporting evidence had not been submitted. Further, while the agency can prioritise requests for increased supports when there is a risk to a participant through a change in their circumstances, early exhaustion of plan funding does not automatically initiate a plan review or the approval of a new NDIS plan. The Herald has reported rising levels of aged care and NDIS bedblock, which has increased by more than 40 per cent across Hunter hospitals since March, further exacerbating the issue as hospitals battle to find enough beds and staff to man them. IT'S the system meant to offer them a safety net, but a funding crackdown is leaving some National Disability Insurance Scheme participants falling through the cracks. NDIS participants are being put at risk with lengthy delays and questionable decisions endangering the lives of those left without funded support and nowhere to go. Hospitals have become a last resort while families and service providers are being stranded with hefty bills into the tens of thousands of dollars. Industry insiders say that a broad-brush approach to a system-wide crackdown on NDIS spending is robbing those who genuinely rely on it. In two separate cases reported to the Newcastle Herald, people living with quadraplegia have had to rely on the goodwill of service providers for hands-on, life-sustaining care. Those service providers, and the families of those individuals, are paying out-of-pocket to ensure those supports remain in place. So far they have been unable to recover those costs due to what they describe as a combination of bureaucratic red tape, a lack of training and oversight, and the unavailability of NDIS staff with the experience, knowledge, or authority to address or escalate issues in a timely way. In the case of 52-year-old Jamie Phillips of Bolton Point, heavily reliant on his partner as well as funded supports, his NDIS journey has been difficult form the start. Karen Johnson, 58, works full-time as well as being Mr Phillips' full-time carer seven nights per week, starting at 4.30pm each day when she gets home from work. Night time care involves hoisting Mr Phillips out of bed and into a chair, onto a commode, in and out of the shower, into fresh clothes and hoisting him back onto the bed. He requires special boots, a CPAP machine, medications at 8pm and 11pm, and a catheter. She is preparing to purchase a $10,000 bed to enable her to sleep in the same room. "For three years he's been living in our loungeroom, he gets dressed there, he gets wheeled through the house naked to get showered, and wheeled back to go to bed," she said. Mr Phillips became a quadraplegic in 2022 after a botched medical procedure almost took his life, she said. He became an NDIS participant in December the same year. "Every plan we've had, we've had an issue with," Ms Johnson said. "It was underfunded or incorrectly funded, then last year his funding fell short. We had two agencies involved, both of them kept working for us without getting paid up until one who we paid because they said if we didn't pay they would withdraw their care." That was a bill for $21,000. The second company, which continued to provide services, has never been paid, she said, to the tune of about $15,000. "They just didn't get their money," Ms Johnson said. "This year Jamie got compensation for medical malpractice, so when we got the compensation, we had to pay back $1.9 million back to NDIS because that's the money they paid for him in the two years prior," she said. According to the civil court, compensation is calculated on the assumption that a quadraplegic has a life expectancy of eight years post-injury, but according to the NDIS it's about 22 years, Ms Johnson said. "So they took the $1.9 million and his funding will be cut down by around about $100,000 per year while he's alive, and so while we we're talking to them about that, that lady said she wasn't involved in the section where we could get our money back, and we've just never heard anything more about it." Mr Phillips has also lost out on occupational therapy due to NDIS-related cuts to allied health services impacting in-home care, Ms Johnson said. Jonathan Castellan, also a quadraplegic, was wheeled into the NDIS office at Charlestown earlier this month by support workers desperate to help him get the funding he needed. Already thousands of dollars out-of-pocket, it has been the dedication of those support workers that has kept Mr Castellan alive. "They didn't seem to understand how he couldn't spend a few days at home by himself," his sister, who did not wish to be named, told the Herald. Mr Castellan, 63, lives with quadraplegia following a spinal cord injury, as well as autism and dysphasia. He is catheterised and requires 24-hour care, but his sister said that due to an escalation in his care needs after a hospital stay, which meant he needed more support overnight, he ran out of funding. While the likelihood that he would run out of funding on that basis had been raised with the NDIS beforehand, delays meant his carers had no choice but to work without pay, she said. "You cannot ring the NDIS and speak to anyone who can actually do anything," an associated carer said. "They can't even escalate it and say to someone that we've got this major problem here - even if it was to release funding so we could continue caring for him until they can sort it out. "They don't read the reports. They will spend more money fighting the wheelchair than it would cost to buy the wheelchair." In both cases, family members and care teams considered hospitalisation as an option, but already hospitals are struggling with aged care and NDIS bedblock, and have pushed back. A spokesperson for the National Disability Insurance Agency (NDIA), which governs the scheme, said the safety and welfare of NDIS participants was its "top priority". "While providers should be spending within a participant's funded support levels, the agency can prioritise requests for further funding, when there is a risk to a participant through a change in their circumstances," the spokesperson said. "In these cases, the NDIA will work closely with participants and review supporting evidence to ensure participant safety." It is understood the NDIA disputes the sequence of events as relayed by family members and support workers, and said that the required level of supporting evidence had not been submitted. Further, while the agency can prioritise requests for increased supports when there is a risk to a participant through a change in their circumstances, early exhaustion of plan funding does not automatically initiate a plan review or the approval of a new NDIS plan. The Herald has reported rising levels of aged care and NDIS bedblock, which has increased by more than 40 per cent across Hunter hospitals since March, further exacerbating the issue as hospitals battle to find enough beds and staff to man them. IT'S the system meant to offer them a safety net, but a funding crackdown is leaving some National Disability Insurance Scheme participants falling through the cracks. NDIS participants are being put at risk with lengthy delays and questionable decisions endangering the lives of those left without funded support and nowhere to go. Hospitals have become a last resort while families and service providers are being stranded with hefty bills into the tens of thousands of dollars. Industry insiders say that a broad-brush approach to a system-wide crackdown on NDIS spending is robbing those who genuinely rely on it. In two separate cases reported to the Newcastle Herald, people living with quadraplegia have had to rely on the goodwill of service providers for hands-on, life-sustaining care. Those service providers, and the families of those individuals, are paying out-of-pocket to ensure those supports remain in place. So far they have been unable to recover those costs due to what they describe as a combination of bureaucratic red tape, a lack of training and oversight, and the unavailability of NDIS staff with the experience, knowledge, or authority to address or escalate issues in a timely way. In the case of 52-year-old Jamie Phillips of Bolton Point, heavily reliant on his partner as well as funded supports, his NDIS journey has been difficult form the start. Karen Johnson, 58, works full-time as well as being Mr Phillips' full-time carer seven nights per week, starting at 4.30pm each day when she gets home from work. Night time care involves hoisting Mr Phillips out of bed and into a chair, onto a commode, in and out of the shower, into fresh clothes and hoisting him back onto the bed. He requires special boots, a CPAP machine, medications at 8pm and 11pm, and a catheter. She is preparing to purchase a $10,000 bed to enable her to sleep in the same room. "For three years he's been living in our loungeroom, he gets dressed there, he gets wheeled through the house naked to get showered, and wheeled back to go to bed," she said. Mr Phillips became a quadraplegic in 2022 after a botched medical procedure almost took his life, she said. He became an NDIS participant in December the same year. "Every plan we've had, we've had an issue with," Ms Johnson said. "It was underfunded or incorrectly funded, then last year his funding fell short. We had two agencies involved, both of them kept working for us without getting paid up until one who we paid because they said if we didn't pay they would withdraw their care." That was a bill for $21,000. The second company, which continued to provide services, has never been paid, she said, to the tune of about $15,000. "They just didn't get their money," Ms Johnson said. "This year Jamie got compensation for medical malpractice, so when we got the compensation, we had to pay back $1.9 million back to NDIS because that's the money they paid for him in the two years prior," she said. According to the civil court, compensation is calculated on the assumption that a quadraplegic has a life expectancy of eight years post-injury, but according to the NDIS it's about 22 years, Ms Johnson said. "So they took the $1.9 million and his funding will be cut down by around about $100,000 per year while he's alive, and so while we we're talking to them about that, that lady said she wasn't involved in the section where we could get our money back, and we've just never heard anything more about it." Mr Phillips has also lost out on occupational therapy due to NDIS-related cuts to allied health services impacting in-home care, Ms Johnson said. Jonathan Castellan, also a quadraplegic, was wheeled into the NDIS office at Charlestown earlier this month by support workers desperate to help him get the funding he needed. Already thousands of dollars out-of-pocket, it has been the dedication of those support workers that has kept Mr Castellan alive. "They didn't seem to understand how he couldn't spend a few days at home by himself," his sister, who did not wish to be named, told the Herald. Mr Castellan, 63, lives with quadraplegia following a spinal cord injury, as well as autism and dysphasia. He is catheterised and requires 24-hour care, but his sister said that due to an escalation in his care needs after a hospital stay, which meant he needed more support overnight, he ran out of funding. While the likelihood that he would run out of funding on that basis had been raised with the NDIS beforehand, delays meant his carers had no choice but to work without pay, she said. "You cannot ring the NDIS and speak to anyone who can actually do anything," an associated carer said. "They can't even escalate it and say to someone that we've got this major problem here - even if it was to release funding so we could continue caring for him until they can sort it out. "They don't read the reports. They will spend more money fighting the wheelchair than it would cost to buy the wheelchair." In both cases, family members and care teams considered hospitalisation as an option, but already hospitals are struggling with aged care and NDIS bedblock, and have pushed back. A spokesperson for the National Disability Insurance Agency (NDIA), which governs the scheme, said the safety and welfare of NDIS participants was its "top priority". "While providers should be spending within a participant's funded support levels, the agency can prioritise requests for further funding, when there is a risk to a participant through a change in their circumstances," the spokesperson said. "In these cases, the NDIA will work closely with participants and review supporting evidence to ensure participant safety." It is understood the NDIA disputes the sequence of events as relayed by family members and support workers, and said that the required level of supporting evidence had not been submitted. Further, while the agency can prioritise requests for increased supports when there is a risk to a participant through a change in their circumstances, early exhaustion of plan funding does not automatically initiate a plan review or the approval of a new NDIS plan. The Herald has reported rising levels of aged care and NDIS bedblock, which has increased by more than 40 per cent across Hunter hospitals since March, further exacerbating the issue as hospitals battle to find enough beds and staff to man them.
Perth Now
4 days ago
- Perth Now
Mysterious illness lands newlywed on honeymoon in ICU
It was supposed to be the trip of a lifetime, but for one Aussie newlywed, it soon became a holiday nightmare. Layton McCann was on his honeymoon with his new wife Whitney in Mexico after spending two weeks in the United States. They arrived in the coastal resort town of Playa Del Carmen but within days their start to married life began to take a turn. Mr McCann begun to experience severe abdominal pain with the couple quickly calling the hotel doctor. The doctor gave Mr McCann something for his pain and then left. Mrs McCann's sister, Bronte Holland, told the DailyMail her sister called the doctor back after 10 minutes as his condition had not improved and he was in intense pain. Layton and Whitney McCann enjoying their honeymoon Credit: Facebook It has ended up in a lengthy hospital stay, ruining their honeymoon. 'They sent him to hospital and he's been there now for nearly two weeks,' she said. The hospital stay showed that Mr McCann had contracted an infection that led to pancreatitis and he was rushed to intensive care - but they're unsure of what caused it. The couple's Mothers flew to Mexico to support the newlyweds the same day Mr McCann was put in an induced coma and placed on a ventilator. The family considered medically evacuating Mr McCann but he was too unstable to travel. 'I'm a nurse and from what my sister's telling me, they're doing a really good job taking care of him. They've been checking his bloods, doing CT scans every day,' Ms Holland said. Layton and Whitney enjoy their honeymoon before disaster struck Credit: Facebook 'My sister's travel insurance also set up a doctor in Australia she can liaise with.' Despite this, Ms Holland said the language barrier added additional stress to an already pressure-filled situation. The couple are facing additional costs for staying on in Mexico, despite health insurance covering Mr McCann's medical bills. 'Everyone's stressed and everyone's a mess,' Ms Holland said. 'It just breaks my heart and I feel so helpless. She's my baby sister and there's just nothing we can do for them. It's awful.' A Go Fund Me page has been set up which you can donate to here.
The Advertiser
5 days ago
- The Advertiser
'Essentially shut': health authorities deny child mental health service in crisis
More than 300 Aboriginal children and young people are missing out on mental health care in the Hunter, insiders say, but Hunter New England Health denies the specialist clinic's "effective closure". The youngsters, aged three to 18, experience conditions like psychosis, personality disorders and extreme anxiety, along with self harm and suicidal thoughts. They had been treated at an Aboriginal-specific service at James Fletcher Hospital. The service, named Wiyiliin Ta, was now "essentially shut", a senior health professional said. Insiders said most of its 10 staff had left after a dispute with Hunter New England Health management over the running of the service. "On paper, Wiyiliin Ta appears to exist. But it's not providing direct clinical care. "This is the effective closure of a CAMHS [Child and Adolescent Mental Health Service] site." Dr Anand Swamy, Hunter New England Health's executive director, denied this. "The Wiyiliin Ta mental health service continues to deliver specialised, culturally safe mental health care for Aboriginal children and adolescents," Dr Swamy said. Hunter New England Health advertised a job last month for a "senior Aboriginal mental health clinician" at Wiyiliin Ta. The advertisement said the role would be part of "a specialised Aboriginal mental health service". "We are actively recruiting to vacancies within the Wiyiliin Ta mental health service," Dr Swamy said. "We are moving to a shared leadership model between Aboriginal Mental Health and the Child and Adolescence Mental Health Service." Wiyiliin Ta began operating in 1997. "It was the only Aboriginal-specific service in NSW for many years," an insider said. It had been based at Tara Lodge at James Fletcher Hospital for about a decade, but is no longer there. The site had an Aboriginal flag and art, bush tucker garden, smoking ceremonies and an outdoor space. "There was always a guarantee that an Aboriginal person would be involved in the treatment," an insider said. "It was integrated into the Aboriginal community as a safe entry point. Now there is no safe entry point." Dr Swamy said Wiyiliin Ta had been co-located with the Aboriginal Mental Health Service, "based primarily at Calvary Mater Newcastle". This was done to "further enhance cultural safety and support". "This move has fostered a more connected and supportive environment for our dedicated team members," Dr Swamy said. The insiders said most of the 300 children that had been treated at Wiyiliin Ta would not use "mainstream mental health services". "There's still a lot of fear for Aboriginal people linked to the history of racism and removal of children," one insider said. "We're seeing a return to an antiquated model when it comes to Aboriginal access to specialist care. "Yet there's been ongoing findings from coroners and government inquiries that Aboriginal people need specific services to meet their cultural needs." Suicide rates among Indigenous people aged up to 24 are more than three times as high as non-Indigenous Australians. Key causes of psychological distress for Aboriginal people are racism and intergenerational trauma. Wiyiliin Ta provided a "connection to culture" that helped protect young people facing complex mental health difficulties. It also helped those involved in the criminal justice system. The insiders said the health service had not informed the Aboriginal community or consulted them about the situation at Wiyiliin Ta. Dr Swamy said: "We continue to work with our Aboriginal partner agencies and the community". More than 300 Aboriginal children and young people are missing out on mental health care in the Hunter, insiders say, but Hunter New England Health denies the specialist clinic's "effective closure". The youngsters, aged three to 18, experience conditions like psychosis, personality disorders and extreme anxiety, along with self harm and suicidal thoughts. They had been treated at an Aboriginal-specific service at James Fletcher Hospital. The service, named Wiyiliin Ta, was now "essentially shut", a senior health professional said. Insiders said most of its 10 staff had left after a dispute with Hunter New England Health management over the running of the service. "On paper, Wiyiliin Ta appears to exist. But it's not providing direct clinical care. "This is the effective closure of a CAMHS [Child and Adolescent Mental Health Service] site." Dr Anand Swamy, Hunter New England Health's executive director, denied this. "The Wiyiliin Ta mental health service continues to deliver specialised, culturally safe mental health care for Aboriginal children and adolescents," Dr Swamy said. Hunter New England Health advertised a job last month for a "senior Aboriginal mental health clinician" at Wiyiliin Ta. The advertisement said the role would be part of "a specialised Aboriginal mental health service". "We are actively recruiting to vacancies within the Wiyiliin Ta mental health service," Dr Swamy said. "We are moving to a shared leadership model between Aboriginal Mental Health and the Child and Adolescence Mental Health Service." Wiyiliin Ta began operating in 1997. "It was the only Aboriginal-specific service in NSW for many years," an insider said. It had been based at Tara Lodge at James Fletcher Hospital for about a decade, but is no longer there. The site had an Aboriginal flag and art, bush tucker garden, smoking ceremonies and an outdoor space. "There was always a guarantee that an Aboriginal person would be involved in the treatment," an insider said. "It was integrated into the Aboriginal community as a safe entry point. Now there is no safe entry point." Dr Swamy said Wiyiliin Ta had been co-located with the Aboriginal Mental Health Service, "based primarily at Calvary Mater Newcastle". This was done to "further enhance cultural safety and support". "This move has fostered a more connected and supportive environment for our dedicated team members," Dr Swamy said. The insiders said most of the 300 children that had been treated at Wiyiliin Ta would not use "mainstream mental health services". "There's still a lot of fear for Aboriginal people linked to the history of racism and removal of children," one insider said. "We're seeing a return to an antiquated model when it comes to Aboriginal access to specialist care. "Yet there's been ongoing findings from coroners and government inquiries that Aboriginal people need specific services to meet their cultural needs." Suicide rates among Indigenous people aged up to 24 are more than three times as high as non-Indigenous Australians. Key causes of psychological distress for Aboriginal people are racism and intergenerational trauma. Wiyiliin Ta provided a "connection to culture" that helped protect young people facing complex mental health difficulties. It also helped those involved in the criminal justice system. The insiders said the health service had not informed the Aboriginal community or consulted them about the situation at Wiyiliin Ta. Dr Swamy said: "We continue to work with our Aboriginal partner agencies and the community". More than 300 Aboriginal children and young people are missing out on mental health care in the Hunter, insiders say, but Hunter New England Health denies the specialist clinic's "effective closure". The youngsters, aged three to 18, experience conditions like psychosis, personality disorders and extreme anxiety, along with self harm and suicidal thoughts. They had been treated at an Aboriginal-specific service at James Fletcher Hospital. The service, named Wiyiliin Ta, was now "essentially shut", a senior health professional said. Insiders said most of its 10 staff had left after a dispute with Hunter New England Health management over the running of the service. "On paper, Wiyiliin Ta appears to exist. But it's not providing direct clinical care. "This is the effective closure of a CAMHS [Child and Adolescent Mental Health Service] site." Dr Anand Swamy, Hunter New England Health's executive director, denied this. "The Wiyiliin Ta mental health service continues to deliver specialised, culturally safe mental health care for Aboriginal children and adolescents," Dr Swamy said. Hunter New England Health advertised a job last month for a "senior Aboriginal mental health clinician" at Wiyiliin Ta. The advertisement said the role would be part of "a specialised Aboriginal mental health service". "We are actively recruiting to vacancies within the Wiyiliin Ta mental health service," Dr Swamy said. "We are moving to a shared leadership model between Aboriginal Mental Health and the Child and Adolescence Mental Health Service." Wiyiliin Ta began operating in 1997. "It was the only Aboriginal-specific service in NSW for many years," an insider said. It had been based at Tara Lodge at James Fletcher Hospital for about a decade, but is no longer there. The site had an Aboriginal flag and art, bush tucker garden, smoking ceremonies and an outdoor space. "There was always a guarantee that an Aboriginal person would be involved in the treatment," an insider said. "It was integrated into the Aboriginal community as a safe entry point. Now there is no safe entry point." Dr Swamy said Wiyiliin Ta had been co-located with the Aboriginal Mental Health Service, "based primarily at Calvary Mater Newcastle". This was done to "further enhance cultural safety and support". "This move has fostered a more connected and supportive environment for our dedicated team members," Dr Swamy said. The insiders said most of the 300 children that had been treated at Wiyiliin Ta would not use "mainstream mental health services". "There's still a lot of fear for Aboriginal people linked to the history of racism and removal of children," one insider said. "We're seeing a return to an antiquated model when it comes to Aboriginal access to specialist care. "Yet there's been ongoing findings from coroners and government inquiries that Aboriginal people need specific services to meet their cultural needs." Suicide rates among Indigenous people aged up to 24 are more than three times as high as non-Indigenous Australians. Key causes of psychological distress for Aboriginal people are racism and intergenerational trauma. Wiyiliin Ta provided a "connection to culture" that helped protect young people facing complex mental health difficulties. It also helped those involved in the criminal justice system. The insiders said the health service had not informed the Aboriginal community or consulted them about the situation at Wiyiliin Ta. Dr Swamy said: "We continue to work with our Aboriginal partner agencies and the community". More than 300 Aboriginal children and young people are missing out on mental health care in the Hunter, insiders say, but Hunter New England Health denies the specialist clinic's "effective closure". The youngsters, aged three to 18, experience conditions like psychosis, personality disorders and extreme anxiety, along with self harm and suicidal thoughts. They had been treated at an Aboriginal-specific service at James Fletcher Hospital. The service, named Wiyiliin Ta, was now "essentially shut", a senior health professional said. Insiders said most of its 10 staff had left after a dispute with Hunter New England Health management over the running of the service. "On paper, Wiyiliin Ta appears to exist. But it's not providing direct clinical care. "This is the effective closure of a CAMHS [Child and Adolescent Mental Health Service] site." Dr Anand Swamy, Hunter New England Health's executive director, denied this. "The Wiyiliin Ta mental health service continues to deliver specialised, culturally safe mental health care for Aboriginal children and adolescents," Dr Swamy said. Hunter New England Health advertised a job last month for a "senior Aboriginal mental health clinician" at Wiyiliin Ta. The advertisement said the role would be part of "a specialised Aboriginal mental health service". "We are actively recruiting to vacancies within the Wiyiliin Ta mental health service," Dr Swamy said. "We are moving to a shared leadership model between Aboriginal Mental Health and the Child and Adolescence Mental Health Service." Wiyiliin Ta began operating in 1997. "It was the only Aboriginal-specific service in NSW for many years," an insider said. It had been based at Tara Lodge at James Fletcher Hospital for about a decade, but is no longer there. The site had an Aboriginal flag and art, bush tucker garden, smoking ceremonies and an outdoor space. "There was always a guarantee that an Aboriginal person would be involved in the treatment," an insider said. "It was integrated into the Aboriginal community as a safe entry point. Now there is no safe entry point." Dr Swamy said Wiyiliin Ta had been co-located with the Aboriginal Mental Health Service, "based primarily at Calvary Mater Newcastle". This was done to "further enhance cultural safety and support". "This move has fostered a more connected and supportive environment for our dedicated team members," Dr Swamy said. The insiders said most of the 300 children that had been treated at Wiyiliin Ta would not use "mainstream mental health services". "There's still a lot of fear for Aboriginal people linked to the history of racism and removal of children," one insider said. "We're seeing a return to an antiquated model when it comes to Aboriginal access to specialist care. "Yet there's been ongoing findings from coroners and government inquiries that Aboriginal people need specific services to meet their cultural needs." Suicide rates among Indigenous people aged up to 24 are more than three times as high as non-Indigenous Australians. Key causes of psychological distress for Aboriginal people are racism and intergenerational trauma. Wiyiliin Ta provided a "connection to culture" that helped protect young people facing complex mental health difficulties. It also helped those involved in the criminal justice system. The insiders said the health service had not informed the Aboriginal community or consulted them about the situation at Wiyiliin Ta. Dr Swamy said: "We continue to work with our Aboriginal partner agencies and the community".
