I thought I found the answer to my chronic eczema but the 'cure' from doctors gave me an even worse condition
Lucy McDermott, a 32-year-old dance teacher, has been in a 'constant battle' with her skin due to chronic eczema flare ups.
'Even as a baby, my skin was red, inflamed, and itchy,' she said.
'By the time I reached primary school, it seemed to settle, and we thought I was growing out of it. But during university, it came roaring back.
'I was studying dance full time which was an incredibly high-pressured time, and my eczema started to flare again. First in the usual places, like the inside of my elbows, but it kept getting worse.'
While eczema is a physical condition, it can take an emotional toll on patients.
Eczema is among Australia's top 10 chronic health conditions affecting 2.8million people, including one in three children under six.
Adult sufferers are three times more likely to experience depression with one in five reporting they have contemplated suicide.
So, when Ms McDermott was offered a solution to her problems, she jumped at it.
What she didn't know at the time was the 'cure' would leave her with an even more debilitating condition - topical steroid withdrawal (TSW).
'My doctor gave me steroid cream and at first, they worked. But what no one told me, what I wish someone had screamed from the rooftops, was how dangerous long-term use could be,' Ms McDermott said.
'Every time I stopped using it, the eczema came back worse, more painful and more debilitating than ever. No one explained you need to wean off steroids slowly.
'My skin would clear, then flare even worse when I stopped.'
Ms McDermott described topical steroid use as an 'endless cycle' that continued for several years until she was prescribed oral steroids.
'I lived on them for most of my twenties,' she said.
'At my worst, I couldn't leave the house without relying on strong medication. I was in my 20s - the years you're meant to be enjoying life. Instead, I was trapped by my skin.'
During that time, Ms McDermott was 'hospitalised multiple times, smothered in steroid creams and wrapped in wet bandages like a mummy'.
'Then one night, everything changed. I stumbled across a woman on Instagram whose skin looked just like mine - same red, inflamed skin, same desperation in her eyes,' she said.
'She'd tagged something called Topical Steroid Withdrawal.
'That night I went deep into research mode and followed the hashtag #TopicalSteroidWithdrawal.
'Every symptom, every picture, every experience – it was like reading my own story.'
Ms McDermott decided to take advantage of the lockdowns during Covid and hid at home as she completely stopped using all her steroid medications.
'The first six months were absolute hell. I was bedridden, covered in raw, weeping skin,' she said.
'The photos from that time are hard to look at.
'I knew if I could just hang on, things would eventually get better as I'd seen others come out the other side stronger.'
The one product Ms McDermott continues to use is MooGoo Full Cream Intensive Daily Moisturiser.
'It's the only thing I can tolerate and doesn't sting. It doesn't make things worse,' she said.
'It's the most gentle and effective moisturiser I've found - trust me, I've tried everything.'
Melody Livingstone, CEO of MooGoo, said more of her customers are becoming aware of TSW.
'Sufferers say symptoms include redness, itching, flaking and dryness that just won't seem to go away, even when using the topical steroids,' she said.
'They report TSW recovery can be a challenging journey, marked by intense itching, burning, and skin that feels raw and sensitive.
'They tell us it can be frustrating, debilitating and disheartening for those experiencing it, as the symptoms can sometimes be even worse than the eczema itself.'
A recent report shows 88.4 per cent of dermatologists agree TSW needs urgent study including Dr Adriene Lee, President of the Australasian College of Dermatologists.
'Looking back, I feel like I lost a decade of my life. My 20s were spent surviving, not living. I relied on medication just to function,' Ms McDermott said.
'None of the doctors I saw warned me about the long-term risks of steroid use. I wasn't told to wean off. I wasn't told what could happen.
'It took over a decade before anyone even hinted that I shouldn't be on them long-term.'
Ms McDermott called for dermatologists to begin researching the causes, effects and treatment of TSW as soon as possible.
'We need research and accountability on topical steroid withdrawal and we need to stop handing out steroid creams like they're no big deal,' she said.
'Because for me, and so many others, they were life-changing - and not in a good way.'
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The Sun
an hour ago
- The Sun
Fat jabs are a nightmare for anorexics – I'll never get over my girl Nikki's death but I'd worry if she was still here
NIKKI Grahame was just seven years old when her mum said she came home from gymnastics club upset because another child had said her bum looked big in her leotard. That one tiny comment sparked the beginnings of an eating disorder in Nikki, which would see her spend the next decade in more than 18 different institutions, including two-and-a-half years in Great Ormond Street Hospital. 16 16 When she shot to fame on Big Brother in 2006, fans had no idea that behind her iconic diary chair meltdowns was a lifelong struggle with anorexia so severe that even the most experienced doctors described it as "the worst they'd ever seen." Now in a raw and emotional interview, Nikki's devoted mum Sue relives her gruelling journey with anorexia and recalls the last days before her tragic death from the disease, aged just 38. And she warns against the use of skinny jabs such as Ozempic or Mounjaro by people who are already slim - saying it could trigger or worsen eating disorders. 'Worst they'd ever seen' "I think these jabs are a nightmare for people with eating disorders because they are already skinny and it means they can restrict their food even more," Sue, now 71, told The Sun. "It would have been a worry for me while Nikki was alive. I don't know if Nikki would have taken them or not. She was already limiting her calories every single day, that was a huge part of her life. "I wouldn't have let her take the jabs, I'd have said, 'over my dead body'. "For people like Nikki, everything is counted, measured and weighed; it becomes their whole life. She would weigh herself before breakfast and again after each meal. It's constant. "To me, it's a short-term fix, to get an injection, because you need an education on how to look after your body, how to nurture it, how to nourish it. And just getting an injection, that's not going to change your ways, is it?" When shown examples of "thinspiration' content which can be found on social media sites such as TikTok, where influencers post images of ultra thin women and what they eat, Sue was shocked. 'Nikki used to go on sites like this and look at this kind of thing," she said. 'I know when I've walked into the room and she suddenly turned her phone off. 'Back then there were lots of websites about how to be as thin as you can. These people should be bloody locked up. It's disgusting. 'People should be locked up' 'I can honestly say I've never been on a diet. Never. And so it wasn't something Nikki learned from me." Sue said the first signs of Nikki's anorexia came when she was seven and she suddenly stopped eating and became withdrawn. 'There was the comment from the girl in gymnastics and she started to become withdrawn, that was the first sign," Sue said. "She started to get smaller and very picky with her food, so the alarm bells started to ring. 'I took her to the GP and he stood her in front of him and he asked her what she had eaten today. Of course she lied to him. 'She was so young, doctors refused to believe there was anything wrong with her." 16 16 16 Sue remembers being fobbed off by doctors until one day, Nikki was so weak she couldn't stand, and she carried her into the GP surgery where she refused to move until they admitted her daughter to hospital. "I didn't want her to be admitted to hospital but I couldn't get her to eat anything, she'd trick me," Sue said. 'It got to the point where I had to make her eat naked so she wouldn't stuff food in her knickers or anything. 'Because it started so young, by the time Nikki became an adult it was so engrained for her. Her purpose, her way of life, was to stay as thin as possible. 'She was very competitive about it. She'd walk on to a ward and want to be the skinniest anorexic in there. I would despair. 'When she was in Great Ormond Street, she had this wonderful doctor Professor Bryan Lask and he said 'You're not the worst I've ever seen Nikki, you are by far the worst I've ever seen' - and he travelled the world lecturing on anorexia." 'Don't leave me mummy' Sue recalls the heartbreaking day she left seven-year-old Nikki as an inpatient in hospital for the first time. 'She kept saying 'Mummy don't leave' and I said, 'Nikki I don't have a choice because you won't eat for me'," Sue said. 'Then they said, 'You can't see or speak to her for two weeks'. I said no, but they insisted. 'As we were leaving Nikki was screaming and these people just came from nowhere and pinned her down on the floor while we were rushed out of the unit. It was hell on earth, it was unnecessarily cruel." Sadly, Nikki did not improve. She refused to eat and became so thin nurses would have to force her to eat through a nasal tube. 'It got to the point where I had to make her eat naked so she wouldn't stuff food in her knickers or anything Sue Grahame Later on, she had to have a tube fitted surgically direct to her stomach as she kept pulling the nasal tube out, but that didn't work either as she pulled the tube out of her body. Sometimes she'd be sedated for a month at a time, as doctors desperately tried to increase her BMI with forced feeds. Sue said it some of the treatments were so "cruel" it was "gut-wrenching". 'The whole system of trying to treat anorexics it doesn't work," Sue said. 'I've been to all those units and some of them are pitiful. 16 16 'In my mind none of them delivered for Nikki, it just strengthened her resolve. 'There was one place that I'd have to bring her back to after a weekend visit home or something, and she'd lie on the floor and beat her hands and feet and scream and cry and say 'Mum don't leave me here, please don't leave me!' 'But I didn't have a choice because she wouldn't eat for me, what was I supposed to do? 'Barbaric' treatments 'There was one place where they'd melt Mars bars down and make them set the table until it was gone and if they didn't finish it they'd have to sleep on the kitchen floor. "At one point she was put her under for a month to be tube fed. So I just used to go and sit by her bed and talk to her and hold her hand. 'She'd wake up and say 'I can feel all that food inside of me - I can't take it mum, it's torture'. 'Staff weren't always very kind. A lot of things I could accept if it was making a difference but it wasn't. 'It was very barbaric and cruelty just doesn't work." Nikki's admissions to hospital stopped when she reached 18, but her struggles with anorexia continued and she also developed severe OCD behaviour around hygiene and preparing food. Sue said she was supportive of Nikki entering Big Brother because she was pleased to see her having some fun after the "hell" she'd been through as a child, however she did worry about how she'd cope with her eating disorder in such an environment. 'Going on Big Brother was great for her, it did give her a taste of a normal life, but obviously those demons were always there," she said. "When she got a call to say she had been chosen she started jumping around saying, 'I'm in, I'm going into Big Brother!' 'I was pleased for her but worried because at the time she couldn't eat in front of people and she wouldn't allow people to cook for her. 'I couldn't even cook for her because it she had this OCD as part of her illness and she became obsessed with hygiene. 'She had to clean her own plates before she'd eat on them, she had lots of rules. "That was the thing that worried me. But I just thought you know she's been in hospital from age seven til 18. Give the girl a bloody break. She had no life up to that point. 'This is why she used to have hissy fits in the Big Brother house because she learned in these units that if you shouted the loudest you'd get attention. "I used to watch her on the live stream and I could see she was having fun but I also knew when the s**t was going to hit the fan. I could predict it when she was heading for a meltdown. I'd think 'Christ here we go' and all of a sudden she'd let rip." 16 16 16 After Big Brother, Nikki enjoyed the fame the show brought and would travel the country doing appearances, even landing herself a magazine column. She entered the Big Brother house a total of five times, including the Canadian version. When TV work dried up, she moved to Nice, France where she worked in a Hard Rock Cafe branch, and learnt to speak French. After moving back to London, she went back to college to try and get her Maths and English GCSE and got a job in a local junior school as a teaching assistant. Sue said that in the years after Big Brother "she held her own" in her battle against anorexia, but Covid exacerbated her condition. 'She had a flat with a gym so she wouldn't come and stay with me during Covid, but then they closed the gym and so she spent £900 on a cross trainer," Sue said. 'I used to illegally drive up to London because she was so isolated. 'And while I was there she'd get on this cross trainer obsessively and I'd beg her to stop. I'd say, 'I don't want to lose you' and she'd say 'I'm not going anywhere. I said, 'Yeah that's what Karen Carpenter said'. 'Covid definitely didn't help Nikki, but I can't help feeling she'd already thrown the towel in. 'Because for months before, we'd be walking. I'd turn around, she'd be on the floor. Her legs would just gave way. 'Her body was packing up. She had been starved for so long. She never even had periods. "I don't think she was ever meant to make old bones in this world." 16 16 16 In the weeks before her death, both Sue and social services tried to encourage Nikki to become an inpatient again but she refused. Instead she decided to travel to her mum's in Dorset, stopping on the way at a pharmacy to pick up her meds. 'She was only 10 minutes away when she passed out in the pharmacy, hit her head on the floor and they had to blue light her in to Dorchester hospital," Sue said. 'She was in there for two weeks and I went in every day for the two weeks because it was just a regular ward, not an eating disorder unit and I wanted to take the weight off of the nurses because she needed supervising. 'If they brought her food, it would either go down the toilet or in the bin or out the window. 'I moved into a Premier Inn so that I could just walk there each day and I used to shower her and and watch her eat her meals. 'The mental health team said there was an eating disorders unit but it only had six beds and they were full. That might have made the difference. 'The nurses at the hospital were quite aggressive with her. Maybe they resented her. No one ever has any patience for anorexics. 'Her BMI was dangerously low. She was just skin and bones. She was pitiful to look at. "Then this nurse came in and said 'This isn't the place for you. This is a surgical ward. Nikki if you can walk up and down those steps outside there you can go home tomorrow. 'And I looked at her and the state Nikki was in and I couldn't believe it." Final journey Nikki was discharged from hospital later that day alone and took a taxi to her flat in London. 'She rang me from the taxi and said 'Hi Mum, I'm on my way home'. She was so weak, I couldn't believe they'd discharged her," Sue said. "She told me she really needed the toilet and the poor thing had an accident in the taxi she was so ill. I told her to get her friend to come over when she was at home and help her clean up and then I'd come over in the morning. 'Then she rang me up half three that morning. She used to do that a lot but it was usually when she was out clubbing. 'She said 'My friend came around and she helped me in the bath and put me in my jimmy jammies and then she saw me into bed, but I just wanted to tell you that I'm coping all right. ''I've just got up and been to the loo by myself on my walker.' 'I said, 'Every day take it slowly, you're not in a hurry, you'll get there. 'She said, 'Mum I'm tired. I love you.' I told her to go to bed and that I loved her." Nikki died that same morning. Sue was on a train on her way to London when Nikki's friend called her and broke the news. 'Goodbye darling' She rushed to Nikki's flat, where she said her final goodbye. 'I just lay on the bed with Nikki and cried," she said. 'The worst thing was watching the undertakers come and put her in a body bag and taking her out. 'I went down in the lift with them and we got to the outside door and I said 'Which side is her head?' 'They said it's up there. I just stroked the bag from the outside and said 'Goodbye darling'. It's awful, awful. I'll never get over it. It was the worst day of my life." Sue said she blames the hospital for Nikki's death and even looked into taking legal action but no law firm would take the case. She believes it was irresponsible for them to discharge her when she "couldn't even bathe herself or dress herself" and says she should have been transferred to a mental health unit. 'Even if I'd have taken it to court and won, I didn't want the money," Sue said. "I wanted things to change. Maybe I would have tried to get a unit built somewhere that would help others with anorexia. 'That nurse shouldn't have said, 'If you walk up and down the stairs, you can leave', because she clearly wasn't well enough to leave the hospital. If that's a rule, it shouldn't be. 'Nikki died on a Saturday morning. And I was walking my dog on the Monday morning when that same nurse rang. She was crying and she said, 'I'm so, so sorry. She shouldn't have gone home.' 'They shouldn't have let her home just because she put a bit of pressure on. She didn't know what was best for her." Signs and symptoms of anorexia if you're under 18, your weight and height being lower than expected for your age if you're an adult, having an unusually low body mass index missing meals, eating very little or avoiding eating any foods you see as fattening believing you are fat when you are a healthy weight or underweight taking medication to reduce your hunger (appetite suppressants) your periods stopping (in women who have not reached menopause) or not starting (in younger women and girls) physical problems, such as feeling dizzy, dry skin and hair loss Four years on from Nikki's April 2021 death, Sue says she's still struggling emotionally. She has relocated from Dorset and lives in East Sussex with her chihuahua Joey. Just two months ago, she suffered another heartbreak when she had to have Baby, Nikki's chihuahua who she had cared for since before her death, put to sleep aged 19. 'Until the day I take my last breath I won't get over Nikki's loss," she said. 'Nothing in this world scares me anymore because the worst possible thing has happened. "Life is tough, but since I came down here I'm trying extremely hard. I've made a couple of really good friends. 'But I have to say I have never been loved as much as Nikki loved me. And it wasn't because I was a pushover, it was because from day one of her illness I was fighting for her. 'I try and be philosophical because at the end of the day, she was mine for 38 years. How lucky was I? And people still write lovely things about her. They still love her. 'She wasn't everybody's cup of tea but for me she was very special. And even if I died tomorrow, I know I was truly loved in my life, and that's something not everybody can say."
The Independent
an hour ago
- The Independent
The struggle to access weight-loss jabs from NHS
Thousands of obese patients in England are unable to access the weight loss jab Mounjaro due to a 'postcode lottery' in NHS provision. Data obtained by Sky News reveals only 8 of 42 NHS Integrated Care Boards (ICBs) in England are currently able to provide the treatment, despite its intended availability from 23 June. Doctors warn patients are being 'set up for failure', with claims that NHS England has only funded treatment for a fraction of the 97,500 patients NICE calculated should be treated in the first year. NHS England stated it has 'fully supported the rollout', issuing guidance and providing funding to ICBs in March to cover treatment costs and support services. Concerns also exist regarding post-treatment support, with NICE stressing the need for structured follow-up for NHS patients to prevent weight regain, a service not available to the 1.5 million private users.
BBC News
an hour ago
- BBC News
Parents told jury daughter was 'let down' by the system
A father has told an inquest how his teenage daughter who died after being left unsupervised at a mental health hospital was "treated like a naughty child".Mark Szymankiewicz said his daughter Ruth was "punished not helped or supported" while at Huntercombe Hospital, near 14-year-old, from Salisbury, was being treated for an eating disorder and should have been under constant supervision when she self-harmed and later died, the inquest hospital, which has since shut down, was rated inadequate and later requires improvement by the Care Quality Commission (CQC) in 2021. Ruth was unaccompanied for about 15 minutes and left alone to walk around the hospital and to her room, assistant coroner Ian Wade KC afterwards, she was found unconscious and died at the John Radcliffe Hospital in Oxford two days was initially cared for on the children's ward at Salisbury Hospital, before being transferred to was then moved to Huntercombe Hospital, which Mr Szymankiewicz said "managed her but did not help her with her issues or problems".The inquest heard that in a letter to one of the psychologists, Ruth wrote that she went to Huntercombe for help but they did not help her, and that staff "never listened" to Szymankiewicz said her daughter was "isolated" due to the restrictions on family visits and without her family she had "no emotional support system".She said: "The system really did fail her, the team of doctors tried to help but she was let down."Dr Szymankiewicz said she "repeatedly asked the team at Huntercombe to allow for more family visitors and requested to take her out, as she loved being outside"."But all of these were refused, isolating Ruth more," she told the inquest she had been informed her daughter was only allowed 20 minutes outside a day, which she found "hard to believe" as "even prisoners get one hour".It previously heard Ruth was being cared for by a member of staff on his first shift, who was subsequently found to have false inquest, at Buckinghamshire Coroner's Court in Beaconsfield, is expected to last for about two weeks. You can follow BBC Berkshire on Facebook, X (Twitter), or Instagram.
