Malaysian NGO seeking help for little boy Shao Heng who needs gastrostomy surgery and born with congenital genetic defects
Shao Heng is a 5-year-old boy who has been part of the Malaysian NGO organisation family since he was just a month old in 2020. Over the past few years, the NGO has walked alongside him, through every challenge, never giving up.
He was born with multiple complex medical conditions, including:
- Cerebral palsy (due to an underlying genetic disorder)
- Cyanotic congenital heart disease (Tetralogy of Fallot) with pulmonary atresia and collateral vessels
- Severe developmental delay, along with swallowing and feeding difficulties
- Despite all this, Shao Heng continues to warm every heart with his radiant smile. His strength and optimism inspire us every single day.
Long-Term Feeding Tube Has Caused Complications – Surgery Urgently Needed
Since birth, Shao Heng has relied on a nasogastric (NG) tube for feeding due to his inability to swallow.
After five years of NG tube use, he has begun to suffer frequent fevers and has been diagnosed with multiple complications, including:
Feeding difficulties , Poor nutrient absorption , Increased risk of infection
Doctors now strongly recommend a Percutaneous Gastrostomy – a surgical procedure that allows him to receive nutrition directly through the stomach. This would allow Shao Heng to live more safely and comfortably.
Due to his serious heart condition, the surgery must be conducted with great care, under the supervision of specialized anesthetic and surgical teams, to ensure his safety.
Persatuan Kebajikan Sayap Kasih Malaysia Urgently Need RM30,000 for Surgery and Medical Costs
"Time is running out. We are doing everything we can to raise RM30,000 for Shao Heng's life-changing surgery and medical care," said the NGO.
"This procedure will give him a chance to grow in better health so that he will no longer suffer from feeding complications, infections, and pain."
"In this difficult moment, we sincerely invite Malaysians to join hands with us."
" Your support is not just a kind gesture — it is a lifeline. Together, we can give Shao Heng the fighting chance he deserves ," added the NGO.
The statement also said: "We hope that kind-hearted individuals can contribute generously to assist Little Shao Heng. Thank you."
Those who wish to know more about the patient situation can contact the person in charge Ms SUSAN NG at 014-3323960 or email susanng@gmail.com on behalf of Persatuan Kebajikan Sayap Kasih Malaysia.
The NGO office in Jalan Gasing is open for visits daily from Monday to Saturday (10am till 6pm).
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