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National consultation on Retinopathy of Prematurity: Leaders unite to combat childhood blindness

National consultation on Retinopathy of Prematurity: Leaders unite to combat childhood blindness

Time of India03-07-2025
PUNE: In a significant step towards eliminating preventable childhood blindness in India, a National Consultation on Retinopathy of Prematurity (ROP) was held on 27th June 2025 at PBMA's H.
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V. Desai Eye Hospital, Pune.
The consultation witnessed active participation from members of the Indian ROP Society, the National Neonatology Forum (NNF), the Indian Academy of Paediatrics (IAP), government officials, CSR leaders, non-profit organizations, and prominent figures including Prof. Dr. Rajvardhan Azad, President of the Indian ROP Society.
The event was co-hosted under the aegis of Sight4All by Cognizant Foundation, Mission for Vision, and PBMA's H.
V. Desai Eye Hospital, bringing together a distinguished panel of experts and stakeholders from across the country.
The consultation served as a catalyst for several critical national-level outcomes aimed at strengthening ROP prevention and care in India:
Consensus on revised national ROP guidelines integrated into child health policies.
Strengthened multisectoral collaboration between neonatal units, eye care providers, and public health institutions.
Proposal to reinforce the National ROP Task Force with broader stakeholder representation.
Endorsement of a public awareness campaign to inform parents and caregivers.
Mobilisation of CSR and private sector support for infrastructure and telemedicine.
Formation of a Technical Working Group to drive policy and advocacy based on recommendations.
ROP is a rapidly growing public health challenge in India, emerging as one of the leading causes of avoidable blindness in children. Affecting preterm infants, particularly those born before 34 weeks of gestation or weighing under 2,000 grams, ROP is preventable and treatable yet continues to cause irreversible vision loss due to gaps in timely detection and intervention.
With nearly 3.5 million preterm births each year, India faces a critical public health challenge that demands a coordinated and strategic, national response. The National Consultation was convened to catalyse collective action through strengthened collaboration, policy alignment, and enhanced public and institutional awareness.
'Cognizant Foundation is committed to driving change where it matters the most.
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Under our flagship Sight4All programme, we have been working to strengthen early detection and treatment systems for vulnerable newborns at risk of vision loss. The national consultation on ROP is a critical platform that brings together experts, policymakers, and partners to align efforts, share insights, and shape a coordinated national response.
We are proud to spearhead this movement to safeguard the vision of India's future generation.'
said Mr. Deepak Prabhu Matti, Chief Executive Officer, Cognizant Foundation.
Since 2020, the collaborative efforts of Cognizant Foundation, Mission for Vision, and HV Desai Eye Hospital have been instrumental in transforming lives through early Retinopathy of Prematurity (ROP) screening and treatment. This partnership has successfully enabled early ROP screening for over 3,200 neonates and provided over 500 treatments at no cost to babies from economically weaker sections in various districts of Maharashtra, including Pune, Satara, Jalgaon, and Buldhana.
'Our mission is to enable quality eye health for all, especially for the most vulnerable. Preventing blindness due to Retinopathy of Prematurity (ROP) is a critical step toward that goal, as it ensures that children born too soon are not denied a lifetime of sight. This national consultation is a milestone in bringing together key stakeholders from across sectors including healthcare providers, policymakers, civil society and development partners to strengthen the linkages between neonatal care and eye health systems.
Together, we are taking meaningful strides to protect and preserve the sight of our nation's newborns,' said Sabitra Kundu, Chief Operating Officer, Mission for Vision.
'The time to act is now. With the growing survival of pre-term infants, it is essential that our health systems evolve to meet new challenges like ROP. This consultation brings us closer to a future where no child in India suffers blindness due to lack of awareness or access,' emphasized Parvez Billimoria, Executive Director, PBMA's H. V. Desai Eye Hospital
By fostering expert dialogue and actionable strategies, the National Consultation aims to lay the groundwork for a coordinated, nationwide approach to eliminate avoidable childhood blindness from ROP.
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National consultation on Retinopathy of Prematurity: Leaders unite to combat childhood blindness
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  • Time of India

National consultation on Retinopathy of Prematurity: Leaders unite to combat childhood blindness

PUNE: In a significant step towards eliminating preventable childhood blindness in India, a National Consultation on Retinopathy of Prematurity (ROP) was held on 27th June 2025 at PBMA's H. Tired of too many ads? go ad free now V. Desai Eye Hospital, Pune. The consultation witnessed active participation from members of the Indian ROP Society, the National Neonatology Forum (NNF), the Indian Academy of Paediatrics (IAP), government officials, CSR leaders, non-profit organizations, and prominent figures including Prof. Dr. Rajvardhan Azad, President of the Indian ROP Society. The event was co-hosted under the aegis of Sight4All by Cognizant Foundation, Mission for Vision, and PBMA's H. V. Desai Eye Hospital, bringing together a distinguished panel of experts and stakeholders from across the country. The consultation served as a catalyst for several critical national-level outcomes aimed at strengthening ROP prevention and care in India: Consensus on revised national ROP guidelines integrated into child health policies. Strengthened multisectoral collaboration between neonatal units, eye care providers, and public health institutions. Proposal to reinforce the National ROP Task Force with broader stakeholder representation. Endorsement of a public awareness campaign to inform parents and caregivers. Mobilisation of CSR and private sector support for infrastructure and telemedicine. Formation of a Technical Working Group to drive policy and advocacy based on recommendations. ROP is a rapidly growing public health challenge in India, emerging as one of the leading causes of avoidable blindness in children. Affecting preterm infants, particularly those born before 34 weeks of gestation or weighing under 2,000 grams, ROP is preventable and treatable yet continues to cause irreversible vision loss due to gaps in timely detection and intervention. With nearly 3.5 million preterm births each year, India faces a critical public health challenge that demands a coordinated and strategic, national response. The National Consultation was convened to catalyse collective action through strengthened collaboration, policy alignment, and enhanced public and institutional awareness. 'Cognizant Foundation is committed to driving change where it matters the most. Tired of too many ads? go ad free now Under our flagship Sight4All programme, we have been working to strengthen early detection and treatment systems for vulnerable newborns at risk of vision loss. The national consultation on ROP is a critical platform that brings together experts, policymakers, and partners to align efforts, share insights, and shape a coordinated national response. We are proud to spearhead this movement to safeguard the vision of India's future generation.' said Mr. Deepak Prabhu Matti, Chief Executive Officer, Cognizant Foundation. Since 2020, the collaborative efforts of Cognizant Foundation, Mission for Vision, and HV Desai Eye Hospital have been instrumental in transforming lives through early Retinopathy of Prematurity (ROP) screening and treatment. This partnership has successfully enabled early ROP screening for over 3,200 neonates and provided over 500 treatments at no cost to babies from economically weaker sections in various districts of Maharashtra, including Pune, Satara, Jalgaon, and Buldhana. 'Our mission is to enable quality eye health for all, especially for the most vulnerable. Preventing blindness due to Retinopathy of Prematurity (ROP) is a critical step toward that goal, as it ensures that children born too soon are not denied a lifetime of sight. This national consultation is a milestone in bringing together key stakeholders from across sectors including healthcare providers, policymakers, civil society and development partners to strengthen the linkages between neonatal care and eye health systems. Together, we are taking meaningful strides to protect and preserve the sight of our nation's newborns,' said Sabitra Kundu, Chief Operating Officer, Mission for Vision. 'The time to act is now. With the growing survival of pre-term infants, it is essential that our health systems evolve to meet new challenges like ROP. This consultation brings us closer to a future where no child in India suffers blindness due to lack of awareness or access,' emphasized Parvez Billimoria, Executive Director, PBMA's H. V. Desai Eye Hospital By fostering expert dialogue and actionable strategies, the National Consultation aims to lay the groundwork for a coordinated, nationwide approach to eliminate avoidable childhood blindness from ROP.

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In an example of care and compassion, doctors and hospital staff from Amravati and Pune came together to save the eyesight of a 45-day-old baby girl from a remote tribal village in Temru village in Chikhaldara tehsil of Melghat. This was a more aggressive form of ROP. Usually, we have three to four days to operate, but in such cases, even a delay of one or two days can lead to blindness. The swift action by the Amravati team ensured that didn't happen, says doctor. (REPRESENTATIVE PHOTO) Born on May 10 at the District Women's Hospital in Amravati, the baby weighed just 990 grams. She was admitted to the Special Newborn Care Unit (SNCU) for over a month. On June 12, doctors diagnosed her with Retinopathy of Prematurity (ROP), a potentially blinding eye condition that affects premature babies. Left untreated, ROP can lead to irreversible vision loss. Realizing the urgency—ROP in such cases requires surgical intervention within two to three days—the doctors at Amravati swung into action. But multiple challenges stood in their way. The baby's parents were in deep financial distress. They spoke a tribal dialect that many couldn't understand and lacked the necessary documents to avail of government health schemes. Above all, they had no means to travel to Pune, where the required treatment was available. Despite this, Dr Preeti Ingle, head of the SNCU in Amravati, contacted Dr Sucheta Kulkarni, medical director at PBMA's HV Desai Eye Hospital in Pune. Dr Kulkarni immediately agreed to perform the surgery free of cost, but the question remained—how would the baby reach Pune, nearly 600 km away? Initially, the baby's father refused to travel, citing a complete lack of money—he couldn't even afford the journey back to his own village. Recognising the gravity of the situation, hospital staff began counselling him. Meanwhile, district official Prakash Khadke contacted senior health officers Dr Tilottama Wankhede in Melghat and Dr Aishwarya Wankhede of the Primary Health Centre in Katkumb. Together, they arranged ₹ 5,000 to fund the family's travel. On June 12, the family was supposed to catch a train at 10:45 pm, but they missed it. Undeterred, hospital and district staff arranged fresh tickets for June 13 and personally accompanied the father and child to the station to ensure they boarded safely. They reached Pune the next day, June 14, at 7 am. Waiting at the railway station was Vishnu Gaikwad, an optometrist from the retina department at HV Desai Eye Hospital. He received the duo and took them straight to the hospital. The baby underwent surgery the same day. Later that evening, Gaikwad escorted the father and child back to the station and saw them off on their return journey. The baby was readmitted to the District Women's Hospital in Amravati for follow-up care. Doctors there confirmed her condition is stable and, most importantly, her eyesight has been saved. 'This was a more aggressive form of ROP. Usually, we have three to four days to operate, but in such cases, even a delay of one or two days can lead to blindness. The swift action by the Amravati team ensured that didn't happen,' said Dr Kulkarni. She also underlined the importance of early screening in rural areas. 'We conduct regular ROP screening in Pune, Satara, and Alibaug, but such programmes need to be expanded to remote districts like Melghat,' she added. From a tribal hamlet in the Melghat hills to a high-tech eye hospital in Pune, this journey was powered by urgency, empathy, and institutional coordination. For a 45-day-old baby girl, it was not just a medical intervention—it was a second chance to see the world.

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