Government approach 'disgusting' as infected blood victims 'harmed further' by compensation delay
Tony and Damian Conwell were haemophiliacs who both contracted HIV from contaminated blood products which were used to treat their bleeds.
Their relatives were speaking out following the publication of a damming report critising the government for the slow pace of compensation.
The government has insisted that it is not dragging its heels, saying that are "listening to victims".
Tony and Damian's sisters Catherine Logue and Carmel Conwell said: "The government's just dragging it out, dragging it out, and it's unfair and it's disgusting.
"We'll not get our brothers back. You know what I mean, they're buried not far from here, back to back, so no amount of money can ever bring them back."
The new report said the compensation scheme for the infected blood scandal has 'perpetuated' the harm of victims with key decisions about the scheme made 'behind closed doors'.
The Infected Blood Inquiry warned that there has been a 'repetition of the mistakes of the past' and that people have been 'harmed yet further' since the scheme was established.
Sir Brian Langstaff, chairman of the probe, said that the number of people who have been compensated to date is 'profoundly unsatisfactory' as he called for 'faster and fairer' compensation for victims.
The latest report of the inquiry concludes:
There was a 'missed opportunity' to consult with people impacted by the scandal.
There has been a 'repetition of mistakes in the past' in the way both the Conservative and Labour governments have responded.
Trust in the Infected Blood Compensation Authority (IBCA) has been 'lost' by many members of the infected blood community.
People impacted by the scandal have expressed a 'grave concern' over the delay in compensation and a 'lack' of clear timescales as to when it will be delivered.
The report raises concerns about how the regulations underpinning the compensation authority have created a 'liability window' which mean people infected with HIV with contaminated blood or blood products before 1982 will not be compensated which is 'illogical and profoundly unjust'.
The impacts of a hepatitis infection are not being 'fully recognised' in the compensation scheme, including the impact of early treatment for the virus which has been linked to severe side effects.
Campaign group Tainted Blood has estimated that at least 100 people have died while waiting for compensation since the main report was published last year.
Writing in the 210-page report, Sir Brian said: 'Trust has not yet been regained but instead has been further damaged and that people have been harmed yet further by the way in which they have been treated.'
He said that he felt the need to hold special hearings of the inquiry earlier this year due to 'increasingly desperate' concerns raised to him about the compensation scheme, including some saying that decisions were being made 'behind closed doors'.
Sir Brian added: 'Trust in government has only a tenuous hold; it was weakened further by the failures recounted here, to give people the dignity and the respect they deserve.'
He went on in a statement: 'For decades people who suffered because of infected blood have not been listened to.
'Once again decisions have been made behind closed doors leading to obvious injustices.
'The UK Government has known for years that compensation for thousands of people was inevitable and had identified many of those who should have it – but only 460 have received compensation so far and many, many more have not even been allowed to begin the process.
'It is not too late to get this right. We are calling for compensation to be faster, and more than that, fairer.
More than 30,000 people in the UK were infected with HIV and hepatitis C after they were given contaminated blood and blood products between the 1970s and early 1990s.
And more than 3,000 people have died as a result, and survivors are living with life-long health implications.
The latest report into the scandal states that 'the impacts of infection with hepatitis are not being fully recognised (or applied) in the scheme as it stands'.
It states: 'Anyone who has read the Inquiry Report of May 2024 will recognise that there has been a repetition of the mistakes of the past in the way in which government (both before and after the general election) has responded.
'The harm which all this has caused is evident in everything that has been said by people infected and affected.'
It adds: 'Although efforts have rightly been made by IBCA to meet and communicate with people infected and affected, what is fundamentally lacking is a formal, significant and influential role for people infected or affected within IBCA.
'Such a lack of involvement both exacerbates mistrust in IBCA and perpetuates the harm which people have suffered over decades.'
The Infected Blood Inquiry published its main report on the scandal in May last year, and a compensation scheme was announced a day later.
But in the same week a general election was called and officials from the IBCA have described how in the early days of the organisation it consisted of two men, a laptop and a phone.
Some £11.8 billion has been allocated to compensate victims, administered by the IBCA.
As of July 1, some 2,043 people have been asked to make a claim, and 460 people have had their compensation paid totalling more than £326 million, according to IBCA figures.
On Sunday, the Cabinet Office said that it will 'reduce the administration and process delays' victims are facing, meaning the IBCA will 'be able to deliver services quickly, and require different supporting information from claimants'.
A Government spokesperson said: 'This additional report reflects the unprecedented nature of the Infected Blood Scandal and the thoroughness of the Inquiry's investigation.
'We are grateful to the Inquiry for its ongoing work. We will now consider all of its recommendations.
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