Latest news with #OireachtasDisabilityCommittee
Irish Examiner
18-06-2025
- Health
- Irish Examiner
Assessment of need reform 'not code for taking away the right to it', says HSE chief
HSE chief executive Bernard Gloster pledged reform of the assessment of need (AON) system is not code for removing children's right to this at the Oireachtas Disability Committee on Wednesday. Waiting lists in Cork and Kerry were also raised and he is concerned about long delays facing children there in particular. Families nationally should see faster access to services by October with a 'no wrong door' system in place, he also said. This means if the first service a family encounters is not the best place, they can be referred to a more suitable service instead of starting over each time. Mr Gloster was answering questions on Progressing Disability programmes. 'Assessment of need, I believe, needs reform, that's not code for taking away people's right to it and it's not code for changing the timeline but it has actually become something it was never intended to be,' he said. 'Every single need across public services and across Ireland Inc is now being tagged to assessment of need either because people are led to believe they need it or they form the belief that they'll get something faster.' That's leading to children who really need it being delayed and children who don't need it being put through it. I have concerns about both. Labour spokeswoman on disability, Laura Harmon, said in the first three months of this year 'just 7% of assessment of needs were completed within the timeframes of the Disability Act itself". Mr Gloster said his focus is on 'ensuring that the legislation defines the purpose of the assessment and enables access to it". He is not aware of plans to change the requirement AON should be done within six months of referral. Ms Harmon said of Cork City waiting lists for primary care assessment for autism 'we're seeing 30 months waiting lists'. Mr Gloster responded: 'I have a particular concern about Cork', saying he has discussed with the regional team the need for better focus on children's services there. 'No wrong door' He described meeting GPs during the Irish Medical Organization AGM, saying they talked of how time-consuming it can be to match children to the most appropriate service. 'We're changing it to 'one front door' and there is no wrong door,' he said, saying this will take effect from October. Teachers, parents, and GPs are among those who can refer to a central system for assessment. 'They will decide what's at least the best chance of the quickest pathway for that child to receive an appropriate response. That will include the Autism protocol,' he said. Social Democrats TD Liam Quaide raised delays with primary care, saying this is 'deep in crisis' in addition to stresses facing Camhs and children's disability network teams. For primary care psychology, the waiting list for children is now over 6,500 'and that's for Cork and Kerry alone,' he said. Children might wait four to five years for help and then only get seven sessions, he added. Mr Gloster met 600 staff online this week from disability, primary care and mental health services for children to discuss staffing plans. HSE HR officials set out plans for recruitment to the committee, saying there is a global shortage of therapists and there are plans to increase training places. Read More Cara Darmody: The law breakers are at the Cabinet table
Belfast Telegraph
11-06-2025
- Health
- Belfast Telegraph
Teenager vows to ‘resist' any weakening of six-month timeframe for assessments
Cara Darmody, 14, addressed the Oireachtas Disability Committee on Wednesday about the backlog in the assessment of need (AON) system. An AON is carried out to identify if a child, children or young person has a disability, and is designed to identify their health needs as well as service requirements. Once the HSE receives an application, there is a legal requirement for the AON to be completed within six months. On the possibility of changes to the laws being in train, Cara said she would 'vigorously resist any negative change' to the six-month timeframe, saying she believed it would cause 'further permanent damage to children'. The total number of applications overdue for completion at the end of March 2025 stood at 15,296, an 8% rise on the end of 2024. Throughout the first quarter of this year, just 7% of assessments were completed within the timeframes set out in the Disability Act 2005 and accompanying regulations. The HSE said that demand for AONs continues to outstrip system capacity, despite increases in activity and commissions from private assessors. The health service anticipates that by the end of the year there could be as many as 24,796 AONs due for completion. Opposition parties including Sinn Fein, Labour, Social Democrats, People Before Profit-Solidarity, Independent Ireland and Aontu have supported Cara's campaign. Last month she staged a 50-hour protest outside Leinster House. She was initially motivated to pursue her advocacy because her two brothers have autism and severe/profound intellectual disabilities. Speaking at Committee, Cara said: 'My own story is very simple, I have two brothers Neil, 12, and John, eight, who are autistic and severely and profoundly intellectually disabled. 'They were both failed dramatically by the state in relation to assessments and services, and Neil remains in an inappropriate school place. 'Our story is the story of so many thousands of other families. I cannot do anything to change the permanent damage caused to Neil and John, but I can advocate to stop damage being done to autistic children in the future.' She said Taoiseach Micheal Martin and the wider Government are breaking the law over the delivery of AONs. 'Three different taoisigh have made promises to me to fix this issue, and all have dramatically failed.' She added: 'Let me explain how they're breaking the law. The Disability Act of 2005, an Act created by this House, states that an assessment of need must be carried out within six months, full-stop. 'That six-month timeframe is there because every single person knows that early intervention is the key. 'It's also generally accepted that when early intervention doesn't occur, that damage is caused to children with disabilities. It's a no-brainer.' Cara said she was shocked that Mr Martin would not declare a national emergency over the matter. She said the taoiseach should also set up a taskforce to address the matter, and increase financing for 'Cara's Fund'.
Sunday World
11-06-2025
- Health
- Sunday World
Government has ‘systematically smashed' disability laws for children, teen tells Oireachtas
Cara Darmody, 14, addressed the Oireachtas Disability Committee on Wednesday about the backlog in the assessment of need (AON) system. Campaigner Cara Darmody staged a 50-hour protest against the backlog in the assessment of needs system (Liam McBurney/PA) The Government has "systematically smashed" disability laws on important checks for children, a teenage campaigner has told the Oireachtas. Cara Darmody, 14, addressed the Oireachtas Disability Committee on Wednesday about the backlog in the assessment of need (AON) system. An AON is carried out to identify if a child, children or young person has a disability, and is designed to identify their health needs as well as service requirements. Once the HSE receives an application, there is a legal requirement for the AON to be completed within six months. On the possibility of changes to the laws being in train, Cara said she would "vigorously resist any negative change" to the six-month timeframe, saying she believed it would cause "further permanent damage to children". The total number of applications overdue for completion at the end of March 2025 stood at 15,296, an 8% rise on the end of 2024. Throughout the first quarter of this year, just 7% of assessments were completed within the timeframes set out in the Disability Act 2005 and accompanying regulations. The HSE said that demand for AONs continues to outstrip system capacity, despite increases in activity and commissions from private assessors. The health service anticipates that by the end of the year there could be as many as 24,796 AONs due for completion. Opposition parties including Sinn Féin, Labour, Social Democrats, People Before Profit-Solidarity, Independent Ireland and Aontu have supported Cara's campaign. Last month she staged a 50-hour protest outside Leinster House. She was initially motivated to pursue her advocacy because her two brothers have autism and severe/profound intellectual disabilities. Speaking at Committee, Cara said: "My own story is very simple, I have two brothers Neil, 12, and John, eight, who are autistic and severely and profoundly intellectually disabled. "They were both failed dramatically by the state in relation to assessments and services, and Neil remains in an inappropriate school place. "Our story is the story of so many thousands of other families. I cannot do anything to change the permanent damage caused to Neil and John, but I can advocate to stop damage being done to autistic children in the future." She said Taoiseach Micheal Martin and the wider Government are breaking the law over the delivery of AONs. Campaigner Cara Darmody staged a 50-hour protest against the backlog in the assessment of needs system (Liam McBurney/PA) News in 90 Seconds - June 11th "Three different taoisigh have made promises to me to fix this issue, and all have dramatically failed." She added: "Let me explain how they're breaking the law. The Disability Act of 2005, an Act created by this House, states that an assessment of need must be carried out within six months, full-stop. "That six-month timeframe is there because every single person knows that early intervention is the key. "It's also generally accepted that when early intervention doesn't occur, that damage is caused to children with disabilities. It's a no-brainer." Cara said she was shocked that Mr Martin would not declare a national emergency over the matter. She said the Taoiseach should also set up a taskforce to address the matter, and increase financing for "Cara's Fund".
Irish Independent
11-06-2025
- Health
- Irish Independent
Government has ‘systematically smashed' disability laws for children, teen campaigner tells Oireachtas
Cara Darmody, 14, addressed the Oireachtas Disability Committee on Wednesday about the backlog in the assessment of need (AON) system. An AON is carried out to identify if a child, children or young person has a disability, and is designed to identify their health needs as well as service requirements. Once the HSE receives an application, there is a legal requirement for the AON to be completed within six months. On the possibility of changes to the laws being in train, Cara said she would "vigorously resist any negative change" to the six-month timeframe, saying she believed it would cause "further permanent damage to children". The total number of applications overdue for completion at the end of March 2025 stood at 15,296, an 8% rise on the end of 2024. Throughout the first quarter of this year, just 7% of assessments were completed within the timeframes set out in the Disability Act 2005 and accompanying regulations. The HSE said that demand for AONs continues to outstrip system capacity, despite increases in activity and commissions from private assessors. The health service anticipates that by the end of the year there could be as many as 24,796 AONs due for completion. Opposition parties including Sinn Féin, Labour, Social Democrats, People Before Profit-Solidarity, Independent Ireland and Aontu have supported Cara's campaign. Last month she staged a 50-hour protest outside Leinster House. She was initially motivated to pursue her advocacy because her two brothers have autism and severe/profound intellectual disabilities. Speaking at Committee, Cara said: "My own story is very simple, I have two brothers Neil, 12, and John, eight, who are autistic and severely and profoundly intellectually disabled. "They were both failed dramatically by the state in relation to assessments and services, and Neil remains in an inappropriate school place. "Our story is the story of so many thousands of other families. I cannot do anything to change the permanent damage caused to Neil and John, but I can advocate to stop damage being done to autistic children in the future." She said Taoiseach Micheal Martin and the wider Government are breaking the law over the delivery of AONs. "Three different taoisigh have made promises to me to fix this issue, and all have dramatically failed." She added: "Let me explain how they're breaking the law. The Disability Act of 2005, an Act created by this House, states that an assessment of need must be carried out within six months, full-stop. "That six-month timeframe is there because every single person knows that early intervention is the key. "It's also generally accepted that when early intervention doesn't occur, that damage is caused to children with disabilities. It's a no-brainer." Cara said she was shocked that Mr Martin would not declare a national emergency over the matter. She said the Taoiseach should also set up a taskforce to address the matter, and increase financing for "Cara's Fund".
