logo
Scots woman makes desperate bid to get US treatment after life 'ripped away'

Scots woman makes desperate bid to get US treatment after life 'ripped away'

Daily Record6 days ago

Becca Finlay who was diagnosed with Superior Mesenteric Artery Syndrome (SMAS) says her life has been "ripped away".
A young Scots woman suffering from a devastating condition has launched a desperate bid for a life-changing US treatment after having her "life ripped away".
Becca Finlay, from Gilmerton in Edinburgh, was diagnosed with Superior Mesenteric Artery Syndrome (SMAS) in 2019 while she was studying nursing at the University of Glasgow. The condition is a rare, gastrointestinal disorder that carries a staggering 33 per cent mortality rate if left untreated.

After years of surviving with a feeding tube, Becca is hoping she will be able to be cured through US treatment after years of struggling to eat, drink and move around her home.

Speaking to Edinburgh Live, the 24-year-old said surgery is "her main focus" and she would do anything to get her life back.
She currently suffers from vomiting, nausea, stomach pain and bloating daily and was also forced to give up her studies due to her health. She was "robbed" of the ability to nourish herself properly.
Becca added: "When I was at university, I started having vomiting episodes and I kept going back to the doctors over a period of two years.
"I eventually had a test which showed the blockage in my bowel. I was taken into hospital within a few weeks and I got a feeding tube placed through my nose and into my small bowel.
"When this all happened, I was studying to be a nurse and I had to drop out in my second year because I was deemed not fit to do it anymore. Food and drink couldn't get down so I was forced to vomit.

Join the Daily Record WhatsApp community!
Get the latest news sent straight to your messages by joining our WhatsApp community today.
You'll receive daily updates on breaking news as well as the top headlines across Scotland.
No one will be able to see who is signed up and no one can send messages except the Daily Record team.
All you have to do is click here if you're on mobile, select 'Join Community' and you're in!
If you're on a desktop, simply scan the QR code above with your phone and click 'Join Community'.
We also treat our community members to special offers, promotions, and adverts from us and our partners. If you don't like our community, you can check out any time you like.
To leave our community click on the name at the top of your screen and choose 'exit group'.
If you're curious, you can read our Privacy Notice.
"There are days when I am confined to my bed due to the pain I am in. My weight fluctuates constantly too - one minute I am a healthy weight and the next I have lost two stone.
"I have been impacted mentally too because I don't like going out. I know that maybe sounds stupid but because I don't have easy access to a toilet, I don't like going out so it's restricted me seeing my friends."

When Becca was told of the condition, she was relieved to have an answer but she was "scared of what was to come".
Although there is surgery available in the UK, it's not specific to SMAS and it will not cure the condition. She is hoping to raise around £20,000 to £30,000 to get to the US.

She added: "I am not dying, I survive currently with a tube in my stomach that feeds me food overnight for 15 hours and that's how I get my nutrition.
"There are two doctors I know of that can shift the blockage away and take it out and it would completely cure me - I would be SMAS free.
"This is the main focus in my life - there is nothing more I want. I went from being a completely normal teenager to having my life ripped away.

"I would do anything to get my life back. I could go back to nursing, pursue my dream career, go back to hobbies - it would mean everything to me because I don't have a life now."
A message on the fundraiser reads: "Your support could help me access the vital surgery overseas that could save my life — and make a real difference in my day-to-day quality of life while I wait.
"Every donation, kind message, and share truly matters. Whether big or small, your generosity will help me fight for a future where my life isn't ruled by pain and fear. Please help me spread awareness of SMAS and give me a chance to reclaim my health, my independence, and my hope.
"From the bottom of my heart, thank you for standing with me."

Orange background

Try Our AI Features

Explore what Daily8 AI can do for you:

Comments

No comments yet...

Related Articles

Mum who lost home caring for anorexic daughter hopes life-saving charity has future
Mum who lost home caring for anorexic daughter hopes life-saving charity has future

Daily Record

time10 hours ago

  • Daily Record

Mum who lost home caring for anorexic daughter hopes life-saving charity has future

"It's the centre of my life at the moment... Some people have been here for 15 years. It scares me for some of the people that might lose this support." A mum who lost her home while caring for her anorexic daughter says a Scots charity threatened with closure is a "life saver". Janet Kramer battled anxiety and depression after her daughter started intensive treatment for the eating disorder. ‌ The 70-year-old credits Redhall Walled Garden in Edinburgh with helping her recover, saying it became the "centre" of her life. ‌ But the community garden, tucked in a glen off Lanark Road, is entirely maintained by people struggling with mental illness and is now at risk of closure due to funding cuts. Edinburgh Integrated Joint Board (EIJB) announced its intention to slash £2.2 million in funds to social care charities, meaning the garden, along with other charities in the Thrive Collective, could be hit. Janet told Edinburgh Live: "Caring for someone who has mental illness can also affect the person who's caring. I was a mess. I went to the Carers Council for some support and they recommended Redhall. "I can't even tell you how it's helped me, because it gave everything that I lost back to me. "I feel safe here. It's not just gardening, because a lot of us are all in the same position. We all have mental health issues and we understand each other because we don't have to explain constantly, as you probably do to the outside world." ‌ Janet spends three days per week with the charity, learning horticulture and helping maintain the grounds. Join the Daily Record WhatsApp community! Get the latest news sent straight to your messages by joining our WhatsApp community today. You'll receive daily updates on breaking news as well as the top headlines across Scotland. No one will be able to see who is signed up and no one can send messages except the Daily Record team. All you have to do is click here if you're on mobile, select 'Join Community' and you're in! If you're on a desktop, simply scan the QR code above with your phone and click 'Join Community'. We also treat our community members to special offers, promotions, and adverts from us and our partners. If you don't like our community, you can check out any time you like. To leave our community click on the name at the top of your screen and choose 'exit group'. If you're curious, you can read our Privacy Notice. She added: "I don't need anxiety medication. I don't need physical therapy. I get that here. I don't feel isolated. It dispels that feeling of being cut off from the world. That's incredibly helpful to me to be able to put my own mind to right so I can support my daughter, who is getting better, so she relies on me. It's not a guilty indulgence coming here. It's a necessity. ‌ "It's the centre of my life at the moment, and has been for the last four years. Some people have been here for 15 years. "It scares me for some of the people that might lose this support because it's a lifesaver, and I'm not being overdramatic." ‌ The EIJB has proposed cancelling Redhall's contract, which would leave dozens of trainees in the lurch. Claire Reynolds, senior service manager for the Scottish Action for Mental Health, says Redhall prevents people being sent to Edinburgh's already-overwhelmed statutory services by providing preventative mental health services. The SAMH boss said: "[The EIJB cuts] are a radical disinvestment of community mental health services in Edinburgh. This isn't a chipping away of services, it's a complete eradication of mental health supports that people go to. ‌ "We are very concerned about the human impact and of loss of life (this would cause) through people's mental health deteriorating to the point where they are needing hospital." Councillor Tim Pogson, Chair of the Edinburgh Integration Joint Board said: "The IJB funds a range of non-statutory services with third sector providers, through block contracts and service level agreements. ‌ "We are currently carrying out a review of this spend, with the aim of reducing annual spend by £2.2 million. We are taking time to consider this proposal to assess the data and evidence on the impacts of any changes, and to consider the concerns raised by providers, service users and others. "The level of funding Edinburgh's IJB receives has not kept pace with the increased demand and cost for our services. We are also being asked to care for people with more complex needs. As a result, the EIJB has had to make cuts of around £100m over the last three years which has been very challenging. "We recognise the contribution that our third sector providers make and the concern this may cause, however we are now in a position where unfortunately difficult decisions have to be made in order to protect the essential support we provide for some of Edinburgh's most vulnerable people. ‌ "This review will enable us to focus scarce resources on the provision of core, statutory services which help keep the people who most need our help safe and well cared for, while allowing our partners to meet their legal duties." "We really want the Health and Social Care Partnership to consult with the people affected by these changes instead of the radical removal of all support at the same time." A petition has been launched by Scottish Action for Mental Health to protest services like Redhall.

Edinburgh baby's 'everyday symptom' at birthday party leads to devastating diagnosis
Edinburgh baby's 'everyday symptom' at birthday party leads to devastating diagnosis

Edinburgh Live

time11 hours ago

  • Edinburgh Live

Edinburgh baby's 'everyday symptom' at birthday party leads to devastating diagnosis

Our community members are treated to special offers, promotions and adverts from us and our partners. You can check out at any time. More info An Edinburgh dad has opened up on his family's devastation after their son's first birthday party led to a rare diagnosis. Marc Robson and his partner Melinda Garratt noticed their little boy Finley wasn't his usual self on the day of his party, and he started throwing up. Finley still wasn't feeling right the day after, so the family decided to call 111. Melinda, 31, and Marc, 32, said they were advised to visit a pharmacist. They were told it may be due to Finley transitioning from formula to cow's milk, though this didn't help his condition. After several trips to A&E, Finley began vomiting blood. Finley was eventually rushed to Newcastle's Royal Victoria Infirmary, where doctors found a tumour on his brain. Marc, who grew up in Edinburgh before starting a family in Newcastle, told Chronicle Live: "When we initially went to the RVI we thought it was going to be stomach issues, so hearing it was a tumour was very tough. "The only way I can describe it is it was almost like I wasn't in my own body when I was hearing it. It was a strange feeling. Melinda was in tears." Finley underwent an operation the following day which removed the majority of the tumour from his brain. Marc said: "They took him away from us at about 9.30am and we didn't see him again until 6.30pm. It was a very, very long day." Sign up for Edinburgh Live newsletters for more headlines straight to your inbox Approximately one week later the family received preliminary results which revealed the tumour could be one of four aggressive forms. And on Monday (June 23) the family received the heartbreaking news that Finley's tumour was the most aggressive of the four - an Atypical Teratoid Rhabdoid Tumor (ATRT) - an extremely rare form of brain cancer. Finley will now begin chemotherapy on Monday (June 30). Marc said: "I'm not sure if it has even sunk in fully for us yet. We've had quite a few sleepless nights. It's so hard to explain what it's like hearing the news. It's almost as if you're watching someone else get that news. "I think the next stage when he has the chemo is when it's going to hit the most. When we need to manage the treatment and his wellbeing even more than we already do. (Image: Melinda Garratt) "Contact with family and friends is going to be non-existent because of the side effects and his immune system going down. And when he loses his hair we've decided that we're going to shave it off to get it over and done with. "The doctor recommended we do that too because we didn't realise but when babies go through this they can easily choke on their hair when they're sleeping. We'll shave it off when we feel that his scars have healed from his operation." Finley will receive chemotherapy for the next five months before undergoing tests to see if it has been successful. Reflecting on how Finley has been coping with treatment, Marc said: "He doesn't talk other than he's recently started saying 'dada' so he can't really tell you what's wrong. "But you can tell he's been in a lot of pain since the operation, which is normal. After his first operation he didn't really move much, he was sleeping a lot and couldn't lift his head up so we had to hold him. Join Edinburgh Live's Whatsapp Community here and get the latest news sent straight to your messages. "He used to love rolling around but you could see that it was frustrating him when he was trying to move but he couldn't because he was in pain and he didn't quite understand why he was in pain." The couple have set up a GoFundMe page to help ease the financial burden they have already encountered since Finley became unwell. Marc, who works as a business development manager for a company which provides maintenance for care homes, is currently receiving full pay. However, he is unsure how much he will be able to work once Finley begins chemo. Melinda, who works for Lookers car sales company, is currently off work. As well as helping to manage bills and any unexpected costs that arise as the couple navigate treatments and time away from work, the money raised will also help the couple with hospital parking fees and travel expenses. For more information and how to donate visit the GoFundMe page here.

Boris Johnson's wife in hospital after birth of fourth child as she issues warning to new mums
Boris Johnson's wife in hospital after birth of fourth child as she issues warning to new mums

Daily Record

timea day ago

  • Daily Record

Boris Johnson's wife in hospital after birth of fourth child as she issues warning to new mums

Carrie and Boris Johnson welcomed baby Poppy on May 21 but the mum was back in hospital this week after a string of health problems. Boris Johnson's wife has been left in hospital weeks after the birth of her fourth child as she issued a warning to fellow mums this week. Carrie and the former Prime Minister welcomed baby Poppy on May 21 - Boris' ninth child. ‌ But Carrie revealed she has been treated in hospital for two nights for "severe dehydration" a little over a month since the little one's arrival. ‌ T he Mirror told how the 37-year-old took to social media on Friday to share how she had been rushed in for treatment, warning new mums to "eat and drink enough in this heat". The Johnsons, who wed in July 2021, already share sons Wilfred, five, and Frank, one, and daughter Romy, three. Taking to her Instagram stories, she wrote: 'Being hospitalised for two nights for my severe dehydration was not on my postpartum bingo card. "Breastfeeding mums make sure you eat and drink enough in this heat. Especially if your babe is clusterfeeding." She said: 'This week has honestly been brutal. Mastitis (me), reflux (her), dehydration (me). What a pair we are! But thank you for all the kindest messages, especially all the brilliant advice on reflux. Really appreciate it and made me feel way less alone going thru it all.' ‌ Mastitis is a common condition in breastfeeding women, sparked by an inflammation of breast tissue. Join the Daily Record WhatsApp community! Get the latest news sent straight to your messages by joining our WhatsApp community today. You'll receive daily updates on breaking news as well as the top headlines across Scotland. No one will be able to see who is signed up and no one can send messages except the Daily Record team. All you have to do is click here if you're on mobile, select 'Join Community' and you're in! If you're on a desktop, simply scan the QR code above with your phone and click 'Join Community'. We also treat our community members to special offers, promotions, and adverts from us and our partners. If you don't like our community, you can check out any time you like. To leave our community click on the name at the top of your screen and choose 'exit group'. If you're curious, you can read our Privacy Notice. The Tory former PM has always remained private about his family life but is understood to have at least nine children and has been married three times. ‌ He first wed Allegra Mostyn Owen after meeting her at Oxford University. The couple divorced after six years before Johnson, now 60, tied the knot with lawyer Marina Wheeler in 1993. They remained together for 25 years but separated in 2018 amid rumours of his affair with Tory spinner Carrie - who is 24 years his junior. ‌ The pair moved into No10 after Johnson became PM in 2019. Media consultant Carrie shares snapshots of their family life through Instagram. Carrie and Johnson tied the knot in a low-key, secret ceremony in Westminster Cathedral just 30 guests amid the restrictions of the Coronavirus pandemic. A year later this said 'I do' again in a boho ceremony in the Cotswolds.

DOWNLOAD THE APP

Get Started Now: Download the App

Ready to dive into a world of global content with local flavor? Download Daily8 app today from your preferred app store and start exploring.
app-storeplay-store